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Healthcare Professionals Directory – United States
DISCLAIMER
The Ehlers-Danlos Society acknowledges how hard it is to find an EDS and HSD-friendly specialist across various disciplines globally, so to further our commitment to your access to management and care we have created this list that is populated by professionals submitting their information to our site.
It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific doctors or clinics listed on our EDS-friendly directory. There are no formal listing criteria, and The Ehlers-Danlos Society does not endorse, recommend, or certify any of these physicians.
If you think you have an emergency, call your doctor or emergency servicesimmediately.
The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of medical advice or care given by any listed physician.
The information listed in the results are based solely upon the data entered by the healthcare professionals listed.
Jump to your state by using the links below.
- Alaska
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- Colorado
- District of Columbia (Washington, DC)
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- Telehealth (includes telehealth services for multiple states)
Alaska
Kristen L. Coletti-Giesler, NP-C
Functional Medicine Family Practice
Functional Medicine of Alaska
43335 Kalifornsky Beach Road
Building E Suite 8
Soldotna, AK 99669
https://functionalmedicineofalaska.com
907-290-7063
fmoa@functionalmedicineofalaska.com
Hospital affiliations:
- Central Peninsula
>> Show more information about this practice/clinic
Functional Medicine of Alaska offers patient-centered care to promote health as a positive vitality, beyond just the absence of disease. We believe that functional medicine is the future of medicine. The focus of functional medicine is that it seeks to identify and address the root causes of disease and take a "no band aid" approach to care. We view the body as a whole, and not a collection of systems and sub-medical specialties from pediatrics to geriatrics. Functional medicine addresses the underlying causes of disease by shifting the traditional disease-centered focus of medical practice to a more patient-centered approach. Functional medicine addresses the whole person, not just an isolated set of symptoms. At Functional Medicine of Alaska, we spend time with our patients, listening to their histories and looking at the interactions among genetic, environmental, and lifestyle factors that can influence long-term health and complex, chronic disease. In this way, we are able to support the unique expression of health and vitality for each individual.
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E Frances Seater, Ed.M., M.Ed., M.S. CCC-SLP, M.Ed., Certified Brain Injury Specialist
Cognition, language, speech, voice, swallowing
Functional Therapy of Alaska
4041 Wright Street
Anchorage, Alaska 99508
http://fta.clinic
907-360-8513
info@functionaltherapyofalaska.com
Professional Boards and Affiliations:
- Certified Brain Injury Specialist
- American Speech-Language Hearing Association
>> Show more information about this practice/clinic
Private clinic specializing in medically complex adult rehabilitation.
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Margaret Arwood, DMD, DDS
Preventative dentistry, restorative dentistry, oral surgery, cosmetic dentistry, pediatric dentistry, emergency dentistry
Dental Innovations
3161 E Palmer-Wasilla Hwy
#5
Wasilla, ALASKA 99654
https://www.dentalinak.com/
907-357-5214
Margaret.arwood@gmail.com
Professional Boards and Affiliations:
- Alaska Board of Dental Examiners
>> Show more information about this practice/clinic
Our vision is to exceed the expectations of the community by providing our patients with an experience that will promote a lifelong relationship built on trust, quality of work and exceptional patient care. We make our contribution to a better society not only through the best dental care possible, but also by being an example of what is possible in dentistry.
We listen first, prevent disease, & care for you!
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Arizona
Elissa Gartenberg, DO
Family Medicine, Medical Acupuncture
Modern Family Medicine
7522 E 1st Street
Scottsdale, AZ 85251
http://www.modernfamilymedicine.com
602-363-1631
info@modernfamilymedicine.com
Hospital affiliations:
- Honor Health
>> Show more information about this practice/clinic
At Modern Family Medicine, we offer a unique health care setting embracing the Mind, Body, and Spirit. Offering not just diagnoses and prescription medications but alternative treatments such as; Osteopathic Manipulation, Medical Acupuncture, Cupping, Trigger Point injections,Vitamin injections, a "Breathing Bar™", a meditation atrium, classes and more!
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Paul Pannozzo, M.D.
Family Medicine, Physical Medicine, Rehabilitation residency
Summa Pain Care
2525 W. Carefree Highway
Ste. 134
Phoenix, AZ 85085
https://summapaincare.com
623-580-4357
summahealthcare@gmail.com
>> Show more information about this practice/clinic
Looking for pain management doctors in Phoenix and surrounding areas in Arizona? Summa Pain Care Center is perfect fit for you. Summa Pain Care is located in down town Phoenix, Arizona. Our medical clinic provide various treatment services like back pain treatment, knee pain treatment, spinal pain treatment, lower back pain treatment, head pain treatment and more. Our pain specialists provide complete pain management solutions in Arizona. Summa Pain Care doctors are leading pain management specialist in Phoenix, Arizona. Book an appointment today.
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Emily Rich, OTR/L – occupational therapist
Occupational therapy; EDS; POTS; CFS/ME
Tucson Medical Center
5395 E. Erikson Dr.
Tucson, AZ 85750
https://www.tmcaz.com/outpatient-services/occupational-therapy
520-324-7005
emily.rich@tmcaz.com
Hospital affiliations:
- Tucson Medical Center
>> Show more information about this practice/clinic
At TMC outpatient therapy we serve children and adults with a variety of diagnoses. We offer OT, PT, ST, and nutritional services. We accept nearly all forms of insurance. To request an evaluation, have your physician send a referral to (520) 324-6498. Emily specializes in EDS and conditions of dysautonomia.
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Gina Rooney, PT, LMT
Myofascial release, craniosacral therapy, wound care
Set Your Fascia Free
800 N Swan, #112
Tucson, AZ 85711
Https://www.setyourfasciafree.com
520-870-5794
gina@setyourfasciafree.com
>> Show more information about this practice/clinic
Non-insurance based private physical therapy and massage therapy practice specializing in sustained release myofascial release and Upledger craniosacral therapy. Appointments are 60-90 minutes direct one-on-one care with a PT, and are customized to each patient's specific needs.
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David Saperstein, MD
Neurology, Neuromuscular Disorders, Autonomic Disorders
Center for Complex Neurology, EDS & POTS
1010 E McDowell Road
Suite 101
Phoenix, AZ 85006
http://www.complexneurology.com/
602-900-9404
info@complexneurology.com
Hospital affiliations:
- Banner University Medical Center, Phoenix, AZ
>> Show more information about this practice/clinic
In addition to seeing patients with Neuromuscular disorders I have a focus on EDS and dysautonomia. I currently follow over 400 patients with EDS. I diagnose and manage their EDS, POTS, migraines, TMJ and MCAS. I also work with physical therapists, orthotists, allergists, orthopedists, gastroenterologists, cardiologists, geneticists and dentists knowledgable about EDS and its complications. In my office we can perform autonomic testing, EMG, EEG, and small fiber neuropathy testing.
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Andrew Sharobeem, DO
Rheumatology
Arizona Arthritis & Rheumatology Associates
5681 W. Beverly Ln.
#100a
Glendale, AZ 85306
https://azarthritis.com
480-443-8400
>> Show more information about this practice/clinic
Single specialty private group (Rheumatology) consisting of 4 Rheumatologists, 2 NPs and 1 PA. Handle and care for a wide variety of arthritic and rheumatic illnesses as well as osteoporosis, chronic pain syndromes and dysautonomia.
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Jennifer Robblee, MD MSc FRCPC
Headache Neurology
Barrow Neurological Institute
240 W Thomas Rd
Suite 400
Phoenix, AZ 85013
https://www.barrowneuro.org/get-to-know-barrow/centers-programs/jan-tom-lewis-migraine-treatment-program/
855-995-5783
Hospital affiliations:
- Dignity Health St. Joseph's Hospital and Medical Center
Professional Boards and Affiliations:
- American Headache Society
- American Academy of Neurology
- Royal College of Physicians and Surgeons
>> Show more information about this practice/clinic
At the Jan & Tom Lewis Migraine Treatment Program, our expert headache specialists have the tools and knowledge to accurately diagnose migraine and other headaches, as well as the experience and technology to minimize their effects on your daily life. Our team of neurologists who specialize in migraine, headaches, and headache disorders are adept at finding relief for headaches regardless of their cause. The team can tailor a migraine or headache treatment plan for the unique features of your diagnosis. We recognize that migraine and other headache disorders can co-exist with other disabling conditions like EDS, POTS and MCAS.
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Natalie Black, OTD
Occupational therapist, EDS specialist
Spooner Phsyical Therapy
2122 E. Highland Avenue #200
Phoenix, Arizona 85016
https://www.spoonerpt.com/
602-778-0900
n.black@spoonerpt.com
>> Show more information about this practice/clinic
Our therapy practice consists of talented practitioners who work as specialists within one or two areas of rehabilitation. Natalie Black, OTR/L focuses on treatment with patients who diagnosed with Hypermobile EDS (hEDS), Classical EDS (cEDS), and other EDS types. She is empathetic and understanding of how those with these conditions need rehabilitative physical/occupational therapy that is appropriate rather than those physical therapists who think those with a type of EDS or HSD need to ignore their pain and push through it while doing exercises designed for those without joint disability or for those who do not have vascular fragility.
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Theresa Dowell, DNP, PT
EDS, Chronic Fatigue Syndrome, Fibromyalgia, Mast Cell Activation, Dysautonomia
Four Peaks Healthcare Associates
1515 E Cedar Ave Ste C-1
FLAGSTAFF, AZ 86004
http://www.fourpeakshealthcare.com
928-773-9714
info@fourpeakshealthcare.com
Professional Boards and Affiliations:
- Board certified Family Nurse Practitioner
>> Show more information about this practice/clinic
Four Peaks Healthcare Associates is a medical clinic located in Flagstaff, Arizona that specializes in Fibromyalgia, Chronic Fatigue Syndrome, hEDS, Mast Cell Activation and Dysautonomia. Our mission is to provide compassionate, patient-guided care. We believe that through empathy, communication, trust and shared decision making our patients will achieve optimal outcomes. We get to know and develop relationships with our patients by minimizing staff and operating our clinic on a small scale. .
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Miranda Materi, OTD
Occupational Therapy, Hand Therapy, Silver Ring Splints
Hand Therapy Partners
430 N Dobson Road
Ste 103
Mesa, AZ 85201
https://handtherapypartners.com
480-565-2276
mmateri@handtherapypartners.com
>> Show more information about this practice/clinic
We are an outpatient occupational therapy clinic located in Mesa, Arizona specializing in upper extremity orthopedic and neurological impairments impacting performance in valued occupations. We see a high number of individuals with hyper mobility syndromes, degenerative conditions, and chronic pain, and our approach focuses on collaboration with the client to find meaningful goals that will improve independence and function. A typical evaluation assesses range of motion, pain, strength, and functional performance in valued occupations. A treatment plan integrates the goals of the client along with the impairments found in the assessment in order to promote independence and reduce pain. We specialize in custom orthosis fabrication for improving joint stability and decreasing pain, and are able to order Silver Ring Splints or other specialized splints for reduced joint pain. We also provide education in activity modification and assistive devices for improved function. We accept most insurance plans and would love to work with you!
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Melissa Frazier, OTD
Occupational Therapy, Hand Therapy, Silver Ring Splints
Hand Therapy Partners
430 N Dobson Road
Ste 103
Mesa, AZ 85201
https://handtherapypartners.com
480-565-2276
mfrazier@handtherapypartners.com
>> Show more information about this practice/clinic
We are an outpatient occupational therapy clinic located in Mesa, Arizona specializing in upper extremity orthopedic and neurological impairments impacting performance in valued occupations. We see a high number of individuals with hyper mobility syndromes, degenerative conditions, and chronic pain, and our approach focuses on collaboration with the client to find meaningful goals that will improve independence and function. A typical evaluation assesses range of motion, pain, strength, and functional performance in valued occupations. A treatment plan integrates the goals of the client along with the impairments found in the assessment in order to promote independence and reduce pain. We specialize in custom orthosis fabrication for improving joint stability and decreasing pain, and are able to order Silver Ring Splints or other specialized splints for reduced joint pain. We also provide education in activity modification and assistive devices for improved function. We accept most insurance plans and would love to work with you!
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Mike Brademann, DC
Chiropractic
Connect Chiropractic
5719 East 5th Street
TUCSON, Arizona 85711
https://www.connectchirotucson.com/
520-335-3663
hello@connectchirotucson.com
>> Show more information about this practice/clinic
We believe that your body is the healer, we are just the helper.
For nearly a decade, we have witnessed countless people achieve healthier, more connected lives through the power of chiropractic care and we can't wait to help you discover what is possible for your life.
If you have ever been unsure about receiving a chiropractic adjustment, would like to learn more about our gentle, seated technique or are ready to connect, we are here for you!
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Dan Bonaroti, PT, MPT
Spinal cord injury, Neuro Spine
Neurologic Therapy Specialists
5055 E Washington Street
Suite 125
Phoenix, AZ 85034
https://www.touchstonerehabilitation.com/
602 277 1073
Dan@touchstonerehabilitation.com
Professional Boards & Affiliations:
- Physical therapy
>> Show more information about this practice/clinic
Neurologic Physical Therapy
Wheelchair Clinic
Bracing Clinic
Spanish Speaking
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Arkansas
Thomas Lowder, PhD
Pulmonary function, immunology, muscle physiology
University of Central Arkansas
201 Donaghey, Farris Center 101
Conway, ARKANSAS 72035
501-450-5713
tlowder@uca.edu
>> Show more information about this practice/clinic
My research focuses on pulmonary function, women's health, and immune function in rare diseases. I am investigating sleep as well as the role of exercise in disease as well. I am new to EDS but have a couple of patients I am beginning to work with.
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California
Derik Anderson, DC
functional rehabilitation, chiropractic (low force)
Muscle & Joint Clinic
10 G St.
San Rafael, CA 94901-1720
http://www.MuscleJointClinic.com
415-488-5372
DrAnderson@MuscleJointClinic.com
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
>> Show more information about this practice/clinic
Muscle & Joint Clinic specializes in Hypermobile Ehler-Danlos Syndrome diagnosis and treatment. We develop indiviualize strengthening and functional rehabiitation programs for patients with hypermobility due to EDS.
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Margaret Aranda, MD, PhD
Anesthesiology, Critical Care, Forensic Science, Regenerative and Age Management, Pain Management
Aranda MD Enterprises
21900 Burbank Blvd, Suite 300
Woodland Hills, CA, 91367
http://www.thechroniclifediet.com
800-992-9280
maranda@cenegenics.com
>> Show more information about this practice/clinic
We have about 200 patients from all over the world, many of whom were patients of Dr. Forest Tennant for the past 30 years. Patients find us mostly by referral, and we are grateful to be using Dr. Tennant's protocol. We operate the clinic twice per week and are in the office on Mondays and Fridays. That is because my staff also has arachnoiditis and EDS, so we mostly work from home.
Our practice is about 80% telemedicine and 20% in person. We try to maintain a high standard of documentation and use an electronic medical record.
About once per month, we do procedures which are mostly umbilical cord mesenchymal cell injections. We also draw a lot of blood, and do diet, exercise, and hormone replacement therapy. We want our patients to be strong.
Most patients get better.
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Barbara Bogorad, PsyD
Psychology, Trauma
Dr. B. Bogorad
18600 Main Street
Suite 295
Huntington Beach, CA 92648
United States
714-914-0409
PsyDocB@gmail.com
>> Show more information about this practice/clinic
I am a State licensed Psychologist (California and New York) currently doing telehealth sessions and in private practice in Huntington Beach, CA. Previously I was the director of a trauma unit on Long Island, New York, where many of my patients were dual diagnosis. Currently, I work with individuals and couples struggling with a variety of psychological and emotional issues, typically with medical complications. An increasing number of my patients with immune system problems are finally being recognized as having connective tissue disorders, most often hEDS. I am looking to be of increasing service to such individuals, providing therapy and hopefully group support.
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Brianna Cardenas, MS, PA-C, ATC
Pain Management, EDS/HSD, Spinal CSF Leak, Dysautonomia, Craniocervical Instability
Brianna Cardenas
1160 Dewey Way B
Upland, CA 91786
https://www.healedandempowered.com/
909-703-3977
healedandempowered@gmail.com
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
>> Show more information about this practice/clinic
We are a private pain management practice specializing in holistic and non-medication options to help patients feel their best. Appointments take place over a half-day period in order to give ample time to understand each patient's needs. Our goal is to empower patients with the tools they need to feel better and manage their pain from a comprehensive, whole-person standpoint. Brianna is Physician Assistant, Athletic Trainer, and hEDS patient, and can help patients understand their health condition(s) and how to manage them.
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Christine Dao, LAc
LAc, Functional Medicine, Master Practitioner of NLP
Practice / Clinic 1
Dao Integrated Health
379 S LIVERMORE AVE, Ste B
Livermore, CA 94550
http://www.daointegratedhealth.com
Practice / Clinic 2
DAO INTEGRATED HEALTH
1050 Marina Village Pkwy
Ste 104
Alameda, ca 94501
http://www.daointegratedhealth.com
510-957-8260
christine@daointegratedhealth.com
>> Show more information about this practice/clinic
I specialize in Chronic Pain conditions including Hypermobility and Ehler's Danlos in addition to Auto-Immune conditions and Cancer. I work with patients to get proper and thorough testing of all organ systems to provide a comprehensive solution to reducing pain and improving quality of life. I look at the role of chronic stress and provide lifestyle coaching to help mitigate and provide tools to manage their pain conditions.
I personally suffer from Hypermobility and understand the complexity in getting proper testing, the role of nutition, tailored exercise, lifestyle and stress management tools for those of us who suffer from these conditions.
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John Fagan, MD
Family Medicine, Geriatrics
Aspen Family Medicine
10787 Laurel Ave
Rancho Cucamonga, CA 91730
United States
909 982 7741
Admin@aspenfamilymedicine.org
Hospital affiliations:
- San Antonio Reginal Hospital
- Casa Colina Hospital
>> Show more information about this practice/clinic
I am a 58 year old Family Medicine Physician with Certificate of Added Qualification in Geriatrics. I have a 30 year old daughter with Hypermobile EDS (hEDS). I have attended multiple conferences concerning EDS including several in Baltimore (Johns Hopkins). I have over 100 patients with hEDS in my practice and see patients from all over Southern California and the West for hEDS related issues.
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Catherine Karimov, MD
Clinical genetics, OB/GYN
Children's Hospital of Los Angeles
4650 Sunset Blvd. #90
Los Angeles, CA 90027
https://www.chla.org/medical-genetics
323-361-2178
ckarimov@chla.usc.edu
Hospital affiliations:
- Children's Hospital of Los Angeles
- Keck Medical Center
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Dr. Karimov provides specialized testing, diagnosis, and counseling for anyone who wishes to obtain information about a medical condition with a known or possible genetic component affecting them or a family member. She is trained in diagnosing inherited diseases, identifying unaffected and affected individuals through specialized testing and examination, determining a person's chance of developing or passing on a genetic disorder, and managing inherited diseases as it effects someone's health. She works in close association with the medical team to help guide every aspect of the personalized medical plan and provides education and support.
In addition, Dr. Karimov is interested in all aspects of general obstetrics and gynecology for women with connective tissue disorders, cardiac disorders, metabolic disorders, and cancer predisposition syndromes. She has expertise and interest in fetal anomalies, cardiac defects, and ultrasound for prenatal diagnosis of genetic syndromes.
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Harold Kraft, MD
Anesthesiology; Pain Management; High Dose Laser Therapy
Practice / Clinic 1
LaserMD Pain Relief Santa Monica
1821 Wilshire Blvd #300
Santa Monica, CA 90403
Practice / Clinic 2
LaserMD Pain Relief Manhattan Beach
2809 N. Sepulveda Blvd
Manhattan Beach, CA 90266
Practice/Clinic 3
LaserMD Pain Relief Sherman Oaks
4910 Van Nuys Blvd. #302
Sherman Oaks, CA 9140
http://www.lasermdpainrelief.com/
https://www.lasermdpainrelief.com/Ehlers_Danlos_EDS_pain_treatment.html
213-550-5600
hhk@lasermdpainrelief.com
>> Show more information about this practice/clinic
As the most experienced MD in the US with high-dose laser pain management, Dr. Kraft has treated over 64 EDS patients with a high-dose non-invasive laser, and 90% of EDS patients have excellent or very good pain reduction without side effects. Dr. Kraft is skilled at treating soft tissue, joint, spine, bone, skin, sciatica pains with this new, non-invasive and highly promising treatment modality.
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Vivian Rice, OD
TBI, EDS, vision therapy
Vision Care Clinic
2730 Union Avenue
San Jose, CA 95124
http://www.visiondiva.com
408-377-1150
rice@visiondiva.com
>> Show more information about this practice/clinic
Many EDS patients suffer from visual problems that require more specific care. I see a larger than average EDS population because they refer each other once they realize there are vision issues that are not always addressed by every eye care professional. the biggest problems I see are with convergence (using the two eyes together as a team) and tracking. People with convergence problems, read slower, lose their place while reading, can experience headaches with prolonged close work and work less efficiently with close work as on the computer or reading. To read more about convergence problems and symptoms, go to www.covd.org..
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Roxana Torres, Certified Massage Therapist
Myofascial Release Technique
Practice / Clinic 1
Spirit and Bodywork
49 South Baldwin Avenue
Sierra Madre, CA 91024
https://spiritandbodywork.com/
Practice / Clinic 2
Spirit and Bodywork
49 South Baldwin Avenue
Suite D
Sierra Madre, CA 90124
https://spiritandbodywork.com/
Practice / Clinic 3
Spirit and Bodywork
49 South Baldwin Avenue
Suite D
Sierra Madre, CA 90124
https://spiritandbodywork.com/
818-395-1439
roxanavtherapy@gmail.com
>> Show more information about this practice/clinic
At Spirit and Bodywork we help improve and support people with many conditions on a path to freedom by reducing pain and increasing mobility in there bodies. I specialize in myofascial therapy that has helped my long term clients live an extraordinary life.
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Gloria Tucker, MD
Prolotherapy, EDS, Hypermobility
250 Bel Marin Keys
Novato, CA 94949
https://gloriatuckermd.com/
415-506-4907
orthomedoffice@gmail.com
>> Show more information about this practice/clinic
I am a private-practice, Orthopedic Doctor specializing in Prolotherapy/Regenerative Medicine. This is a medical, non-surgical procedure for joint pain which actually heals ligaments and tendons. It is very effective in EDS and Hypermobility issues.
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Gerry Van Dyke, PT, SCS, ATC
Physical Therapy, Sports Medicine, Massage Therapy
California Orthopedic and Sports Physical Therapy Services
6193 Soquel Drive
Aptos, CA 95003
http://www.coast-physical-therapy-services.com
831-462-1212
gerry@coast-physical-therapy-services.com
>> Show more information about this practice/clinic
We are a locally owned and independent private practice serving greater Santa Cruz since 1995. The staff qualifications and the expertise of our physical therapists, massage therapists, and personal trainers remain unparalleled in the Tri-County region. We are an evidence based practice committed to providing convenient high quality, one-on-one physical therapy care in a friendly and caring atmosphere. We work with each patient individually and design a customized program that provides them the best opportunity for a speedy and optimal recovery.
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Tina Wang, MD
Physical Medicine & Rehabilitation, Fascia & Regenerative Medicine
Tupelo Pointe Healing Arts
429 N Central Ave
Upland, CA 91786
http://tupelopointe.com
909-667-2920
tinawang@tupelopointe.com
>> Show more information about this practice/clinic
EDS specific consults include a chart review of prior medical records and a detailed report with references to aid with comprehensive management and communication with other medical professionals. Consults are 2-3 hours and include ultrasound examination, detailed history, and osteopathic/fascial manipulation as indicated.
Dr. Wang is a specialist in the field of fascia and connective tissue and studies fascia and clinical interventions for treatment fascia based disorders.
Dr. Wang will work with your unique & individual needs to develop tailored and customized interventions utilizing the power of regenerative injections, Functional/ Integrative Medicine, fascial manipulation, movement rehabilitation with the ultimate goal of helping you achieve optimal living.
Treatments Include ultrasound guided injections (PRP, prolotherapy, stem cells, hydrodissection, and more), laboratory results guided supplementation (vitamins, proteins), dietary interventions, osteopathic manipulation, Fascia Manipulation, Functional Movement Screening (FMS), exercise programming, colder laser, alpha stim, Microcurrent therapy.
Dr. Tina J Wang practices a unique blend of Osteopathic Medicine, Functional/Integrative Medicine and Regenerative Medicine at Tupelo Pointe. Her focus is not just treating musculoskeletal (MSK) ailments but also facilitating Health by meeting the functional, nutritional, and unique needs of the Person seeking Health. At Tupelo Pointe, she practices bespoke MSK medicine, customized to her patient's individualized needs. By recognizing that all her patients are unique, she is able to adeptly utilize healing techniques across many discipline tailored to her patients' needs.
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Kelli Schneider, PT, DPT, OCS
Clinical specialist in orthopedic physical therapy, subspecialty in performing artists and runners
Evolution Physical Therapy
925 Wiltshire Blvd, Suite A
Santa Monica, CA 90401
http://evolutionphysicaltherapy.com/santa-monica
310-319-0090
kelli@evolution-pt.com
Electric Edge Movement Training (available for all states)
hello@electricedgemovement.com
(310) 683-2133
https://www.electricedgemovement.com/
>> Show more information about this practice/clinic
I'm a licensed physical therapist and board-certified specialist in orthopedics dedicated to maximizing the movement potential for people with hypermobility. My passion for treating patients with hypermobility started during my final clinical rotation of physical therapy school at Cincinnati Children's Hospital Medical Center. The high volume of patients with HSD/EDS during this rotation provided me with an opportunity to learn the impacts of hypermobility and nuances of how I can most effectively treat this population.
Within two years of graduating physical therapy school, I opened and managed a clinic for a nationwide physical therapy company in Chicago. By creating a safe place for patients with hypermobility, it quickly became one of the clinic's primary specialties allowing me to treat both pediatric and adult patients impacted by HSD/EDS. Since moving to Los Angeles in 2020, I've continued my involvement with the hypermobility community through the EDS ECHO Clinicians Program and building a network of multidisciplinary providers to facilitate more holistic care.
While I enjoy helping those with pain and injuries related to hypermobility as a physical therapist, I believe there is a lack of wellness services for this population. I'm dedicated to providing preventative interventions that decrease risk for injury and allow for a gradual initiation of a safe exercise routine to optimize the body's function. I pride myself on the ability to problem solve through complex cases, make progress measurable, celebrate small victories, and provide sustainable, long-term solutions instead of quick fixes.
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Amy Selinger, PT, DPT, OCS
Clinical specialist in orthopedic physical therapy specializing in musculoskeletal pain including pelvic pain and incontinence for adults of all levels of activity.
Practice / Clinic 1:
Back to Life
403 49th St.
Oakland, CA 95609
http://www.backtolife.net
510-601-1288
Practice / Clinic 1:
Back to Life
870 Market St.
Suite 709
San Francisco, CA 94102
http://www.backtolife.net
415-538-7878
office@backtolife.net
Professional Boards and Affiliations:
- Member APTA
- Clinical Faculty UCSF
>> Show more information about this practice/clinic
Our practice specializes in chronic spine (back and neck), shoulder, hip and pelvic pain including sacroiliac joint pain, painful intercourse and incontinence of urine, faeces and gas. We treat adults and youth, athletes and people who are more sedentary. We see a great number of individuals with EDS and this group often has cumulative strain over years of compensating for strains in school, the workplace and even at home where appliances and furniture is not ideal for the body who happens to be using it. Our specialty is to help people use t heir bodies with less strain by improving the balance of muscles around each joint and the way we move through our lives. Our main goal is to help you learn to not need us!
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Natalie Russell, PT, DPT
Physical Therapy, Orthopedics and pelvic floor
Back to Life Physical Therapy
403 49th St.
Oakland, CA 95609
http://www.backtolife.net
510-601-1288
natalie@backtolife.net
Professional Boards and Affiliations:
- OCS
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I am a PT at a small private practice that specializes in orthopedic and pelvic floor dysfunction.
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Iris Warchall, DPT
Physical Therapy
Back to Life Physical Therapy, Inc
403 49th St.
Oakland, CA 95609
http://www.backtolife.net
510-601-1288
iris@backtolife.net
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Outpatient physical therapy practice
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Michael Plude, PT, DPT, CSCS
Physical Therapy
Michael Plude Physical Therapy
438 S Hamel Road
West Hollywood, California 90048
(301) 272-5324
Drplude@mpludept.com
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Outpatient physical therapy and performance clinic in Los Angeles. Offering home visits (Los Angeles) and telehealth (California and New York States).
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Stephanie H. Abrams, MD, MS
Pediatric Gastroenterology, Hepatology & Nutrition; General Pediatrics, ABOM Certification
Practice / Clinic 1
Children's Gastroenterology, MCSG
3640 Lomita Blvd, #102
Torrance, CA 90505
Practice / Clinic 2
Chronic Fatigue Telemedicine
Telemedicine: Active California and Texas Medical Licenses
310-710-0251
drstephanieabrams@gmail.com
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
Hospital Affiliations:
- Miller Children's Hospital/Long Beach Memorial Medical Center
- Little Company of Mary, Torrance
- Torrance Memorial Medical Center
Professional Boards and Affiliations:
- American Board of Pediatrics: General Pediatrics
- American Board of Pediatrics: Pediatric Gastroenterology, Hepatology, & Nutrition
- American Board of Obesity Medicine: Adults & Pediatrics
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Dr Abrams is triple board certified with her primary practice in Pediatric GI & Nutrition. As a woman with EDS, Dr Abrams has always had a special interest in the GI manifestations of EDS/hypermobility syndrome. Originally working as an NIH funded researcher & hepatologist at Baylor College of Medicine, she had a focus on obesity and fatty liver disease. Dr Abrams transitioned into clinical medicine in California in 2013. After going through an emotionally traumatizing Chronic Fatigue Syndrome journey with her sister, Dr. Abrams became a super-specialist in Chronic Fatigue. Dr. Abrams has telemedicine practices in California & Texas that are highly focused on the nutritional management (including supplements such as CBD, as well as a focus on LDN consults) for patients with suspected or confirmed EDS, MCAS, POTS, CFS/ME and autoimmune diseases such as IBD, Psoriasis/Psoriatic arthritis, MS, RA, SLE, Hashimotos, Graves and MG.
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Jennifer Nava, LMFT
Anxiety, Depression, Trauma, PTSD/Cumulative Trauma
Jennifer Nava, Licensed Marriage and Family Therapist
1665 Creekside Dr. Suite 106
Folsom, CA 95630
916-710-0503
jennifernavamft@gmail.com
Professional Boards and Affiliations:
- Board of Behavioral Sciences
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I am a Licensed Marriage and Family Therapist who works with individuals, couples, and teens. My specialty is in trauma and trauma related symptomology. Individuals may experience many psychological symptoms associated with chronic illness such as anxiety, depression, grief/loss. I utilize many techniques in my practice including Eye Movement Desensitization Reprocessing (EMDR), Cognitive Behavioral Therapy (CBT), Internal Family Systems (IFS), and talk therapy.
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Katrina Duarte, MS, PA-C
Family Practice
Chino Valley Community Health Center
13193 Central Avenue Ste. 100
Chino, CA – CALIFORNIA 91710
https://healthservicealliance.org/
909-464-9675
kduarte@healthservicealliance.org
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Health Services Alliance provides comprehensive and integrated primary medical, dental, and mental health and substance abuse treatment services to the low-income residents of southwest San Bernardino County, California. HSA's target population are the 193,008 residents who live below 200% of the Federal Poverty Level (FPL) in the cities of Chino and Montclair, as well as sections of Ontario to the east, Pomona to the west, and Upland to the north.
Katrina Duarte is a family practice Physician Assistant who advocates for complex patients including those with Ehlers-Danlos & Behcet's syndrome. She completed her Master's thesis on Ehlers-Danlos diagnosis & management.
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Rachel Yaghoubian, PT, DPT, OCS, CSCS
Physical therapy, Orthopedics
Casa Colina Hospital & Centers for Healthcare
255 E. Bonita Ave
Pomona
Pomona, CA 91769
http://www.casacolina.org
(909) 596-7733 ext. 3500
ryaghoubian@casacolina.org
Professional Boards & Affiliations:
- APTA
- CPTA
- NSCA
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Casa Colina Hospital and Centers for Healthcare is a nonprofit provider of specialized medical and rehabilitative care for people of all ages with disabling conditions resulting from accidents, disease, or illness. Our EDS program is part of the Outpatient Orthopedics Department. My 2 colleagues, Sarah Barnes, PT, DPT, OCS and Patty Roney, PT, DPT, OCS and I specialize in treating patients with EDS and HSD. We offer a comprehensive program focused on strengthening, joint stabilization and protection, energy conservation and pain reduction with goal of improving overall function. Our physical therapy program offers a combination of land and aquatic therapy to address the unique needs of each patient. Our facility also provides services for those that may also need pelvic floor rehab, occupational therapy, lymphedema, hand therapy as well as an EDS support group for education and social support.
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Janet Burns, DO
Osteopathic Manipulative Medicine, Neuromusculoskeletal Medicine
Vital Total Health Medical Group, Inc
710 S Broadway
Ste 212
WALNUT CREEK, CALIFORNIA 94596
http://www.vitaltotalhealth.com
(925) 388-9800
vitaltotalhealth@gmail.com
Professional Boards & Affiliations:
- AOBNMM/OMM
- AOBFP
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My practice is limited to Osteopathic Manipulation, I practice gentle but very effective manual treatments which are safe and effective. They are tolerated well by EDS patients. I treat newborns to geriatric patients and specialize in chronic pain and scoliosis.
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Sarah Barnes, PT, DPT, OCS
Orthopedics
Casa Colina Hospital and Centers for Healthcare
255 East Bonita Avenue
Pomona, CA 91767
https://www.casacolina.org/Outpatient-Services/Outpatient-Center.aspx
+1-909-596-7733, ext. 3500
sbarnes@casacolina.org
Professional Boards & Affiliations:
- APTA
- CPTA
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Above all else, we want to provide every individual the maximum opportunity for rehabilitation after an unexpected injury or illness, or debilitating disease. This is at the very core of everything we do here. Casa Colina is a unique Center of Excellence that provides a culture of collaboration where medical leaders and experienced physical rehabilitation experts work together to help individuals steadily progress from one level of achievement to the next. It's a complete continuum of care designed for patients at any stage of rehabilitation – from acute rehabilitation hospital care to post-acute residential and outpatient services that are conveniently accessible throughout a state-of-the-art 20-acre Pomona campus and satellite locations. It's an uplifting environment where every protocol and therapy is shaped by the single-minded purpose of empowering people to regain their physical and cognitive function, so they may reclaim their independence and enjoy living to their fullest potential.
Physical therapists work with occupational therapists, including certified hand therapists, to address deficits and impairments with the aim of increasing patient function and quality of life
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Lisa Belvy, PhD
Clinical Psychology
Lisa Belvy, Ph.D
35 Avenida de Orinda
Orinda, California 94563
https://www.lisabelvyphd.com
510-592-1054
lisabelvy@lisabelvyphd.com
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I am a Licensed Clinical Psychologist with expertise in health psychology. My clinical focus includes helping clients cope with chronic disease and illness, pain management, sleep dysfunction, stress management, and achieving exercise and eating goals. I also can assist with anxiety, depression, trauma, grief, and other mental health symptoms that often accompany chronic health conditions. Through telehealth, I am able to work with anyone residing in the state of California.
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Moira Docherty, DPT
Clinical specialist in orthopedic physical therapy
Progressive Physical Therapy and Rehabilitation
129 W. Wilson Str
#202
Costa Mesa, CA 92868
https://www.ProgressivePTandRehab.com
949.631.0125
moira@progressiveptandrehab.com
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Progressive Physical Therapy & Rehab specializes in chronic pain and creating individualized programs for each patient. Moira has been a dancer her whole life and graduated Summa Cum Laude from the University of Arizona with a B.F.A. in dance, which gives her added insight into the issues involved with an EDS and joint hypermobility patient. She also serves as the PT resource for the ABT Gillespe School at Segerstrom Center for the Arts. She has a Pilates apparatus accreditation with Body Arts And Science International (BASI) that she actively incorporate in daily treatment sessions. She works closely with Orange County's top sports medicine physicians to manage the special needs of her EDS and joint hypermobility patients.
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Ann Ludolph, MPT, OCS
Clinical Specialist in Orthopedic Physical Therapy
Progressive Physical Therapy and Rehabilitation
129 W. Wilson Str
#202
Costa Mesa, CA 92868
https://www.ProgressivePTandRehab.com
949.631.0125
ann@progressiveptandrehab.com
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Progressive Physical Therapy and Rehabilitation specializes in chronic pain patients and creates customized programs for each individual. Ann has extensive experience working with patients that have complex issues included EDS, Joint Hypermobility Issues, POTS, and Fybromyalgia. She prides herself on helping her patients to better understand their conditions and develop proactive plans to teach them to manage their condition on a day-to-day basis. She is in an elite group of physical therapists nationally to have earned the distinction of an OCS certification.
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Mindy Marantz, PT MS, GCFP
Physical Therapy, Pilates, Functional Manual Therapy, Feldenkrais
HealthWell Physical Therapy Group
1200 Gough Street
San Francisco, California 94109
http://healthwellpt.com
415 921 1211
info@healthwellpt.com
Professional Boards & Affiliations:
- Formerly on the Board of the National Pain Foundation
- Formerly on the Board of the French American Foundation for Medical Research and Education
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HealthWell Physical Therapy Group is located in the heart of San Francisco. It was started in 1995 to provide personalized care for
patients with pain and movement limitations. All of our care is one on one with experienced therapists; we do not use aides. We have two gyms including a full Pilates circuit, and therapists each have the luxury of a well lit, private room. We developed a sub-specialty in hEDS shortly after opening, and currently are on of the few clinics that evaluate Craniocervical Instability (CCI) and Tethered Cord (TC) We accept most insurances, although no Medicaid or HMO's. Our office helps with each patient's insurance verification, billing, and scheduling.
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Marla Lerner-Powers,DC
Neurological Integration System (NIS), Directional Non-Force Technique® (D.N.F.T.®) Chiropractic, Neuro-Emotional Technique, Functional Medicine, Cold laser therapy, Real-time EEG Neurofeedback
Practice/Clinic 1
NeuroBlossom Chiropractic: A Neurocircuitry Clinic
3190 Old Tunnel Rd., Ste B1
Lafayette, CA 94549
Practice/Clinic 2
NeuroBlossom Chiropractic: A Neurocircuitry Clinic
1280 Boulevard Way, Ste 207
Walnut Creek, CA 94595
https://www.neuroblossomchiro.com
925-310-5314
drmarla@neuroblossomchiro.com
Professional Boards & Affiliations:
- NBCE
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Dr. Marla Lerner-Powers offers gentle, specific care based on real-time testing of the nervous system. She believes that the patient's nervous system knows best, and that her job as a doctor is to collaborate with patients to identify and deliver needs, and optimize health. Care is non-invasive, and suitable for patients—from babies to seniors—with hypermobility and/or sensitivity to touch. Dr. Marla's goal in practice is to help her patients access new health possibilities, and achieve powerful, sustained results through methods that honor the person and body.
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Kelly McCann, MD
Internal Medicine, Pediatrics, Functional Medicine, Integrative Medicine
The Spring Center
1831 Orange Avenue
Suite C
Costa Mesa, CA 92627
http://www.thespringcenter.com
949-574-5800
drkelly@thespringcenter.com
Hospital Affiliations:
- Hoag Memorial Hospital, Newport Beach, CA
Professional Boards & Affiliations:
- American Board of Internal Medicine
- American Board of Pediatrics
- American Board of Integrative Medicine
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Dr Kelly McCann's passion for understanding why certain people develop specific conditions drove her beyond conventional medicine to study first Complementary and Alternative Medicine, then Integrative Medicine, Functional Medicine, and Environmental Medicine, which led to an exploration of chronic infections and illness due to mold exposure. As a practicing Internal Medicine doctor and Pediatrician, Dr McCann utilizes her extensive knowledge of root causes, various modalities, and treatment options to guide patients to health in her practice. Dr. McCann lectures regularly at both national and international professional conferences on topics such as Complex Chronic Illness, Lyme Disease and Co-infections, Environmental Toxicants and their impact on Health, Mold and Mycotoxin Illness, Ehlers-Danlos syndromes, Mast Cell Activation Syndrome and related Illnesses and Psychological and Spiritual Issues related to Chronic Illness. She is on the Board of Directors for 2 professional organizations, The American Academy of Environmental Medicine and The International Society for Environmentally Acquired Illness.
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Mariem Metry, Occupational Therapist/Certified Hand Therapist
Hand therapist
Casa Colina Hospital
255 E Bonita ave
Pomona, CA 91767
https://www.casacolina.org/
(909)5967733 ex 3077
mmetry@casacolina.org
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Casa Colina is a non-profit, freestanding, community-governed organization based in Pomona, California. With incredible support from our community, we have been privileged to bring the benefits of rehabilitation to tens of thousands of people since our first patient in 1938. In the Hand Therapy clinic , we treat a variety of upper extremity diagnosis and disorders. we are specialist in fabricating custom-made splints. we are proud to be the only hand therapy clinic to provide EDS patients with custom-made wire ring splints with no out of pocket cost. We treat over 150 EDS patients a moth with collaboration with highly skilled physical therapist and under supervision of an outstanding EDS specialist DR. John Fagan.
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Sunny Raleigh, DO
Integrative Family Medicine, Neuromusculoskeletal Medicine
Restoration Healthcare, Inc.
18818 Teller Ave. #170
Irvine, California 92675
https://RhealthC.com
949-535-2322
Admin@RhealthC.com
Professional Boards & Affiliations:
- American Academy of Osteopathic Family Physicians
- American Osteopathic Board of Neuromusculoskeletal Medicine
- International Lyme and Associated Diseases Society
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Specializing in functional medicine with a focus on Mast Cell Activation Syndrome (MCAS); Postural Orthostatic Tachycardia Syndrome (POTS); Chronic Illness without a diagnosis; Osteopathic Manual Medicine (OMM); Environmental Medicine; Hypothalamic dysfunction
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Amy Neyer, PT, DPT
Physical Therapy
Re+active Therapy and Wellness
3848 W. Carson Street
Suite 110
Torrance, CA 90505
amy@re-activept.com
424-488-3191
http://www.reactivept.com
Professional Boards & Affiliations:
- PT Board of California
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We are a neurologic therapy clinic offering PT, OT, psychology, group exercises classes, adaptive yoga, and personal training. We have a passion for rare conditions, functional disorders, and all things neuro.
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Eric J. Grin, DDS, MS
Orofacial Pain
South Bay TMJ, Sleep, Headache & Orofacial Pain Institute
3475 Torrance Blvd. Ste. H
Torrance, CA 90503
info@southbaytmj.com
(310) 933-3077
Hospital Affiliations:
- University of California, Los Angeles
Professional Boards & Affiliations:
- American Board of Orofacial Pain – Board Certified
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Here at The South Bay TMJ, Sleep, Headache & Orofacial Pain Institute, we specialize in treating patients with acute and chronic pain in the shoulders, neck, head, face, temporomandibular joints, eyes, ears and maxillary sinus. Among other problems managed at the clinic are muscle pain, nerve pain, and bone pain. The clinic also treats patients with obstructive sleep apnea and snoring. We believe in a team approach based in medical evidence. Therefore, working with all healthcare providers including but not limited to primary care physicians, neurologists, pain psychologist, dietitians, psychiatrists and neurosurgeons.
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Nancy Block, PT/ATRet.
hEDS, HSD, Orthopedics
Advanced Therapy Programs
42 W. Campbell Ave #201
Campbell, California 95008
Advancedtherapyprograms@gmail.com
1 408 412-0673
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Advanced Therapy Programs Physical Therapy is dedicated to the evaluation, education, acute treatment, appropriate medical professional referral and physical therapy treatment of Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder. Treatment is focused on the development of safe and progressive exercise programs with the goal of improving daily life function. ATP PT does not accept insurance, but will provide a superbill that can be submitted to the client's insurance company for out of network reimbursement. Nancy Block is willing to educate other physical therapists as her clients individualized exercise program for EDS/HSD individuals, should they wish to see a physical therapist closer to their home. Telehealth for California residents is offered for appropriate initial evaluations and exercise progression on a case by case basis. Cash, check and credit cards are accepted.
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Marta Long, M.D.
Internal Medicine, Medical Acupuncture
Marta Long M.D., P.C.
19712 MacArthur Blvd
Suite 110
Irvine, CA 92612
admin@martalongmd.com
949-237-2949
https://MartaLongMD.com
Hospital Affiliations:
- Hoag Hospital, Irvine and Newport Beach
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Based in Irvine, California, we provide convenient physician house calls to Orange County residents, also known as concierge primary care, for patients who desire more than the standard 15 minute office visit, direct and 24/7 access to your physician, and care in the comfort of your home. We offer medical services above and beyond traditional care, and do not accept medical insurance. If you would like your insurance to pay for our services, we provide you with a superbill for the portion of care that is traditionally approved and covered by your medical insurance. Please read our website at www.MartaLongMD.com to obtain more information and then call to schedule an appointment.
We advocate for our patients to get you the care you need, educate medical professionals on Ehlers Danlos-related concerns so your team is on-board, and work with professionals who have familiarity with EDS. For patients with chronic pain, we offer medical acupuncture. Dr. Marta Long attended medical school at Yale University School of Medicine, and also trained in Internal Medicine at Yale. She is Board Certified and has privileges at Hoag Hospital.
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Colorado
Caroline Creager, DPT
Physical Therapy Doctors
247 Mountain Avenue
PO Box 1319
Berthoud, CO 80513
http://www.physicaltherapydoctors.net/
970-532-2533
caroline@carolinecreager.com
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Physical Therapy Practice Specializing in EDS, Intercranial Hypertension, Intercranial Hypotension, Tethered Cord, Chiari, and Pelvic Health.
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Alex Lanton, DPT
Physical Therapy
Atlas Physical Therapy
3401 S Quebec St
Denver, CO 80207
303-322-4900
stapletonsupport@atlasptco.com
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Atlas Physical Therapy is a small practice with big heart, our therapists work closely with their exercise specialists to make sure that our patients receive the very best care. We treat all kinds of patients, from post operative repairs to sprained ankles, older individuals to young athletes, whatever it is we can make them feel better.
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Brian Polvi, DC
Chiropractic, Physical Therapy, Pain Management
Absolute Health Center, Inc.
3910 S. Carefree Circle
Suite A
Colorado Springs, CO 80917
http://www.absolutehealthcenter.com
719-533-1000
appointments@absolutehealthcenter.com
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Our facility specializes in soft tissue disorders and we have trademarked a specialized soft tissue technique, Myodynamic Remodeling, that was developed by the lead health care provider in our facility. This treatment has proven to be extremely effective in assisting with the recovery or associated pathology affecting soft tissue disorders. The treatment frequently requires coordination of medical pain management procedures that are performed within the medical office building. Additional treatments performed within our facility may be found on our website.
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Lisa Ralston, PT
Physical Therapy, foot care, manual therapy
All Sports Physical Therapy
19201 E Mainstreet # 205
Parker, CO 80134
http://www.allsportspt.net
303-840-1323
skatingpt@msn.com
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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We are a private out patient physical therapy practice for adolescents and adults. We have experience and care in treating EDS and hyper mobility syndromes.
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Allison Rector, MPT, Certified Orthopaedic Manual Therapist, Orthopedic Clinical Specialist
Physical Therapy
Practice / Clinic 1:
ProActive Physical Therapy, LLC
9320 Grand Cordera Parkway
Suite 125
Colorado Springs, CO 80924
Practice / Clinic 2:
ProActive Physical Therapy, LLC
1808 Woodmoor Drive
Suite 130
Monument, CO 80132
https://www.proactiveptco.com/
719-535-2757
proactivept@me.com
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Allison was a gymnast, gymnastics coach and judge. She became a Physical Therapist to help the gymnastics community to understand and treat gymnasts with hyper-mobility related injuries and instabilities. As a Certified Orthopaedic Manual Therapist and Orthopedic Clinical Specialist she treats a variety of athletes and individuals with various types of EDS.
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Scott Rezac, PT, DPT, OCS, FAAOMPT, CSCS
Board certified orthopedic specialist, Fellow of the American Academy of Orthopedic Manual Physical Therapists
Rezac & Associates Physical Therapy
855 Citadel dr E
Colorado Springs, CO 80909
http://www.rezacpt.com/
710-465-1502
Scott.rezac@rezacpt.com
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Ambulatory outpatient clinic focusing on a whole body approach to rehabilitation.
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Kimberly Saunders, DPT
Physical Therapy
Foothills Orthopedic and Sport Therapy
3938 JFK Parkway
Fort Collins, CO 80525
http://www.foothillstherapy.com/
970-207-1500
kim.saunders@foothillstherapy.com
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We are a small private practice clinic with a focus on individualized one on one care. I have been working with individuals with generalized joint hypermobility/HSD/hEDS since 2003 and focused on this topic while achieving a post-professional doctorate (PP-DPT) completed in 2014. Over half of my caseload is individuals with hypermobile joints, abnormal connective tissue &/or chronic pain and fatigue. I have additional specialty training in peri-partum care and have supported women with GJH/HSD/hEDS through this phase. I experience GJH and meet 2017 criteria for hEDS, so I truly understand the pain and struggle that my patients live each day. My approach is focused on training body awareness and optimal movement strategies (Movement Impairment Syndromes Approach) and empowering individuals to take control of their daily lives. I have developed a style of manual therapy through trial and error that provides temporary symptom relief and augments the home exercise program and movement strategies. I also focus on training self care skills for pain management (TENS, hot/cold, massage, sleep hygiene, etc). I offer no miracles, but promise better management of our very unique bodies.
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Jill Schofield, MD
Internal Medicine; two year training in multi-specialty autoimmune disease
Center For Multisystem Disease
8101 E. Lowry Blvd.
Suite 250
Denver, CO 80230
United States
https://www.centerformultisystemdisease.com/
303-366-6633
admin@centerformultisystemdisease.com
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My practice specializes in evaluating patients with complex, multisystem disease including patients with diagnosed or suspected dysautonomia, autoimmunity and/or mast cell activation syndrome. A significant subset of these patients have hypermobility spectrum disorder or Ehlers-Danlos syndrome. Three hours of face-to-face time is spent for most new patients at the initial evaluation to allow enough time to address all issues and to properly evaluate patients for important comorbidities and underlying causes and to provide proper education about these complex conditions.
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Camille Sinclair, PhD
Clinical Psychology, Health Psychology, Neuropsychology,
Camille Sinclair PhD
50 S. Steele Street
Suite 950
Denver, CO, 80230
https://www.psychologytoday.com/us/therapists/camille-sinclair-denver-co/247918
845-533-2789
camillesinclair@hotmail.com
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As a clinical and health psychology practice we treat clients with a myriad of health problems and emotional concerns secondary to those health issues. Our clients typically come to us presenting with autoimmune conditions, vascular and cardiac disease as well as pain, anxiety, medical traumas and grief issues related to serial losses. Our practice help clients to better cope with their illness and lead more meaningful lives aligned with their values and capabilities.
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Patricia Stott, DPT, PT, MS, ATC, CHT
Functional Medicine, Health and Wellness, Physical Therapy, Reiki
Elevation Wellness
10200 West 44th Ave
Suite 139
Wheat Ridge, CO 80033
http://www.elevationwellness.co
720-815-6433
info@elevationwellness.co
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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I offer Functional Medicine, Health and Wellness, Physical Therapy, Reiki
We focus on overall health and wellness for the individual with EDS in examining overall systemic inflammation (especially due to underlying chronic viral issues, tick borne illnesses, and mold exposure), treating with a natural approach to restore well being. Our practice provides a good deal of education to the patient to assist in long term management of HSD/EDS and associated conditions, while focusing on individualized treatment plans.
I also am a telehealth provider outside of my state, internationally as needed.
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Mairead Jacobs Dougherty, MA, R-DMT, LPCC
Chronic illness, chronic pain, trauma, depression, anxiety, medical PTSD, stress, grief, low self-esteem
Rise Wellness Center
10200 W 44th Ave Suite 139
Wheat Ridge, CO 80033
http://www.therisewellnesscenter.com
720-649-0557
mairead@therisewellnesscenter.com
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Rise Wellness Center offers somatic counseling for children and adults in Colorado. We specialize in working with chronic illness, chronic pain and disabilities. Our founder has lived experience with EDS and knows how important it is to have a therapist that just "gets it." At Rise, we use body-based approaches and mindfulness practices to support patients in uncovering their resilience and connecting to meaning and empowerment.
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Jerry Hesch, PT, DPT
Orthopedic Manual Physical therapy, Sacroiliac Joint Dysfunction
Hesch Institute
25837 E Maple Pl
AURORA, Colorado 80018
http://HeschInstitute.com
303-366-9445
jerryhesch@heschinstitute.com
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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I treat patients with chronic pain and evaluate every major joint in the body. I am a manual therapy innovator and have developed evaluation and treatment methods. For example i use 16 basic passive joint mobility tests for patients with sacroiliac area pain and treat both hypermobility and hypomobility. I typically see patients (I prefer to refer to them as clients) for only 1-3 visits but typically spend 2-hours with them. my goal is to restore their norm of musculoskeletal function and make then independent of requiring passive care in the future. I refer to this approach as Interventional Orthopedic manual Physical Therapy. I advocate patient education and for every technique used to restore normal joint motion within a neurobiomechanical Biopsychosocial framework, I have developed a method of self-treatment to foster independence.
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Courtney Crance, DO
General Practice – Womens Health
Jack Ford MD PC
1715 N Weber St #220
Colorado Springs, CO 80907
jackfordmdpc@gmail.com
719-475-1810
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Small private practice for women providing primary care and office GYN procedures. Provider has hEDS and has worked to maintain a high level of knowledge in EDS treatment and the treatment of related conditions.
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Juliet Bromfield, Certified Rolfer
Rolfing–holistic myofascial tissue work, energy work
Rolfing Resilience
190 e 9th ave, ste 270
Denver, Colorado 80204
http://rolfingresilience.com/
303-817-4006
juliet@rolfingresilience.com
Professional Boards & Affiliations:
- Rolf Institute
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I am a solo practitioner doing Rolfing for the past 7 years. I have had a few clients with EDS who have benefitted from my work and recommended I join this site. I do deep tissue bodywork for chronic pain, with an emphasis on holding compassionate space for my clients to gain more awareness and understanding of their bodies. Often this can include assignments to be completed between sessions such as stretching, strengthening or awareness exercises. I have been teaching meditation for 15 years, so this can be a resource in sessions as well. I also practice Sourcepoint energy work, which is great for those with more severe EDS who need a lighter touch.
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Donovan Seow, LMT
Deep Tissue Massage
Donovan Seow, LMT
PO Box 16
Lafayette, CO 80026
seowdy.mt@gmail.com
720-386-1982
Professional Boards & Affiliations:
- ABMP
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My practice has a major therapeutic component to it. I start by listening to a new client and observing the actions of their body to formulate a strategy to approach a massage session. I've worked in a variety of fields in the wellness industry for over 12 years and use that experience to formulate a plan. My clients with Ehlers Danlos have all responded well to the techniques I incorporate.
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Fran Gorman, DNP, ANP-C, RN
Pain Management and Primary Care
Gorman Medical, PC
8540 Scarborough Dr Ste 370
Colorado Springs, CO, 80920
http://gormanmed.com
719-358-8270
Frannp63@gmail.com
Hospital Affiliations:
- Centura Health-Penrose Hospital
- Centura Health-St. Francis Medical Center
Professional Boards & Affiliations:
- American Academy of Nurse Practitioners
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Pain and primary care clinic experienced with dysautonomia and EDS. Specialty of Pain Management for over 13 years.
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Connecticut
Rebecca McConnell, PT, IMT.C
Physical Therapy, Integrative Manual Therapy, Craniosacral Therapy, Strain/Counterstrain(Positional Joint Release,) Myofascial Release
Metamorphosis Physical and Integrative Manual Therapy, LLC
34 Jerome Avenue
Suite 305
Bloomfield, CT 06002
860-281-1124
beckymimt@gmail.com
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I specialize in a comprehensive and holistic individualized, gentle hands-on treatment approach(Integrative Manual Therapy) of acute and chronic pain disorders including head, neck, back and joints. Ehlers-Danlos syndrome, migraine headaches, Lyme disease, fibromyalgia, chronic fatigue syndrome, joint replacements, sports-related injuries, and learning disabilities are examples of dysfunction that I have worked with successfully over 35 years. I strive to support the body to move into a place of self-healing and self-correction to repair tissues, normalize structure, and provide exercise to restore function. Integrative Manual Therapy works well alone or as a complement to many other medical and physical treatment modalities. I have completed an EDS – Echo 9 week webinar series Dec 2019. I own a private practice in Bloomfield, CT and I am a credentialed provider with Anthem BCBS of Connecticut.
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Eloise Stager, LMT, CST-D
CranioSacral Therapy
CT Center for CranioSacral Therapy
Manual Therapy Treatment Center for Ehlers-Danlos Syndromes
143 West Street, Suite 104
New Milford, CT 06776
http://www.ctcranio.com
860-488-0948
ctcranio@gmail.com
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The CT Center for CranioSacral Therapy specializes in pain management of physical and/ or emotional origin using gentle manual techniques. Of particular interest are Ehlers-Danlos Syndromes and related connective tissue disorders.
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Elizabeth Arnold, PT, DPT, CFMT, CSCS
Physical Therapy, Functional Manual Therapy, Proprioceptive Neuromuscular Facilitation, Craniosacral, TMJ and Myofunctional Therapy, Reflex Integration
Elite Health Services
1445 East Putnam Ave 2nd Floor
Old Greenwich, CT 06870
http://www.elitehealthservices.com
203-983-5748
larnold@elitehealthservices.com
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When a patient first comes to Elite our Certified FMT therapists carefully observe, assess and skillfully use their hands to identify inflammation, scar tissue and gauge strength and mobility.
Treatment is uniquely designed for each patient and involves manually treating soft tissues, muscles and joints, continually assessing progress and adapting treatment strategies to facilitate strength and healing.
Patients also learn how to prevent issues from recurring by showing them the right ways to move (and how to avoid stressors that may have caused the problem).
Based on specific patient needs, FMT also incorporates behavioral, nutrition and stress management components for maximal healing.
Functional Manual Therapy™ is a multi-dimensional approach to the body that evaluates mobility, motor control and how the brain affects our movements. We don't practice "traditional" physical therapy because FMT gives a better outcome for most patients. Instead of isolating the injured or impaired area, FMT therapists focus on how it aligns with the rest of the body, which often reveals a different root cause than originally assumed.
All treatments are one-on-one for sixty minutes.
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Patricia Berg, IBCLC, RLC, CST-D
CranioSacral Therapy, International Board Certified Lactation Consultant
CT Center for CranioSacral Therapy
143 West Street
Building C/ Suite 104
New Milford, CT 06776
http://ctcranio.com
847-512-7187
patricia@800lactate.com
Professional Boards and Affiliations:
- International Consortium of Ankylofrenula Professionals
- Breastfeed Chicago
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The center offers CranioSacral therapy (CST) – a gentle hands-on approach used to facilitate the body's process in healing from physical and emotional dysfunction and trauma.
CST supports the structure and function of the central nervous system thereby assisting in the functioning of all of the body's other systems.
The center is unique being the only center in CT who has a therapist who specializes in Ehlers-Danlos and Hypermobility Syndromes.
The center is unique in also having a therapist who is both and CranioSacral therapist and an International Board-Certified Lactation Consultant who specializes in Ankyloglossia.
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Shelby Davis, LPC Intern
Trauma, Medical Trauma/PTSD, Grief/Loss, Life Transitions, Chronic Illness, Chronic Pain
Wisdom Within Counselling
8 West Main Street #3-15
Niantic, CT 6357
https://wisdomwithinct.com/
1-860-451-9364
shelbywisdomwithin@gmail.com
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I love working with adolescents, teens, and adults navigating major life transitions, including managing chronic illness and chronic pain. I myself have been diagnosed with hEDS and other chronic illnesses, and know the importance of working with a therapist who understands the complicated nature of EDS. It can feel so freeing to not have to constantly describe your diagnoses and symptoms to someone, but rather be heard, understood, and validated in your experiences. I am also happy to provide referrals to practitioners in the state who have experience with EDS patients to ease the panic and fear that can come with trying to build a care team.
My own experiences have proved the importance of recognizing the mind-body connection when working with chronic illness patients. I have been trained in the use of drama therapy. Drama therapy is the intentional use of drama and theatre to achieve therapeutic goals. This embodied practice can help chronic illness and chronic pain patients connect with their bodies and release trauma that is stored in the physical body. This can be helpful for those suffering from medical trauma and PTSD related to their illness.
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District of Columbia (Washington, DC)
S. Shar Hashemi, MD, FACS
Nerve Bone & Joint Institute DC
3 Washington Circle NW
Suites 207/208
Washington, DC 20037
http://www.nerveboneandjoint.com/
202-955-6001
patients@nerveboneandjoint.com
Hospital affiliations:
- DCHUX
- George Washington University Hospital
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Multidisciplinary approach in evaluating patients with EDS and Hypermobility for peripheral nerve conditions.
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Noah Raizman, MD, MFA
Orthopaedic Surgery, Hand Surgery
The Centers for Advanced Orthopaedics
1850 M Street NW
Suite 750
Washington, DC 20036
http://www.dchand.com
202-835-2222
nraizman@cfaortho.com
Hospital affiliations:
- Sibley Memorial Hospital
- George Washington University Hospital
- Georgetown University Hospital
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I am a Fellowship-trained Hand and Upper Extremity Surgeon. I have dozens of patients with EDS and other connective tissue disorders linked to hypermobility. We have on-site hand therapy and physical therapy and coordinate care with our therapists to include bracing, splinting, activity modification and medical/injection therapy as needed. My bias is towards conservative care and working around some of the difficult issues faced by EDS patients by being creative with approaches to functional activities, but perform surgery when necessary, with an understanding that EDS patients need to be rehabbed and treated differently from the general population. I am often in the situation of making the initial diagnosis of EDS in many patients and referring them for a appropriate genetic screening.
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Morgan Panzer, PT, DPT
Physical Therapy, EDS, HSD, POTS
Practice/Clinic 1:
Set Physical Therapy – Metro Center
555 13th St NW
C112
Washington, District of Columbia 20004
Practice/Clinic 2:
Set Physical Therapy – West End
2401 M St NW
Washington, District of Columbia 20037
https://setptusa.com/
2023471800
morgan@setptusa.com
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Set Physical therapy is a one-one-one practice with two locations within Washington, DC. Our physical therapists spend one hour in a private room with patients and do not use any accessory staff for treatment. We use a combination of techniques including manual therapy, strength and stability exercises, postural re-education, trigger point dry needling, cupping, extensive patient education, and more. We pride ourselves on helping our patients to better understand their conditions – particularly more complex conditions such as EDS, HSD, and POTS – so that they can be as involved in their treatment plan as possible.
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Florida
Paldeep Atwal, MD
Clinical Genetics, Medical Biochemical Genetics, Internal Medicine
Atwal Clinic
214 Brazilian Avenue
Suite 230
Palm Beach, FL 33480
http://www.AtwalClinic.Com
904-364-9985
DrA@AtwalClinic.com
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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Managed by Dr. Paldeep S. Atwal, a board-certified geneticist, our standalone genetics institute caters to patients with rare genetic conditions and is committed to improving access to state-of-the-art genomic testing. With the widespread availability of affordable genetic testing laboratories we are able to find more specific and effective ways of managing patients. We are based in Jacksonville, FL and see patients from around the world.
When evaluating patients for a suspected genetic diagnoses we have 5 main objectives for patients and families:
- Provide a precise diagnosis
- Answer whether the symptoms are genetic in nature
- Provide a more accurate natural history & prognosis (i.e. what to expect)
- Optimize medication and treatment
- Give an accurate recurrence risk estimate of the condition in other members of the family
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Irman Forghani, MD, FACMG
Medical Genetics, Internal Medicine
Practice / Clinic 1
University of Miami, Mailman Center, Connective tissue disorder clinic
1601 NW 12th Ave
Miami, Florida 33137
Practice / Clinic 2
University of Miami, The Lennar Foundation Medical Center, Adult Genetic Disorders
5555 Ponce de Leon Blvd
Coral Gables, FL 33146
305-243-6006
medgen@med.miami.edu
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In multidisciplinary hereditary connective tissue disorder we see all categories of connective tissue disorders, with special interest in Ehlers-Danlos Syndromes. We provide diagnosis, counseling and management for the patients and their families. We coordinate a multidisciplinary care for these complex disorders.
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Ross Hauser, MD
Prolotherapy, Platelet Rich Plasma, Stem Cell Therapy, Nerve Release and Regeneration Injection Therapy, Digital Motion X-ray, Cervical Realignment Therapy
Caring Medical Regenerative Medicine Clinics
9738 Commerce Center Ct
Fort Myers, FL 33908
https://www.caringmedical.com/
239-303-4069
drhauser@caringmedical.com
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Ross Hauser, MD is a Board Certified Physical Medicine and Rehabilitation physician who has diagnosed and helped patients with joint hypermobility and hypermobility EDS since 1993. He is most well-known for his work developing comprehensive treatment protocols using Prolotherapy (including PRP and Stem Cell therapy) to alleviate pain and improve joint function patients suffering from EDS and severe joint and spinal instability. These Regenerative Injection Treatments help treat chronic pain and joint instability due to ligament laxity. Dr. Hauser also specializes in cervical spine instability cases, pioneering the combined use of Digital Motion X-ray (DMX), Prolotherapy, and cervical weight and bracing protocols to help restore stability of the neck and eliminate cervical instability-related symptoms such as vertigo, migraines, and drop attacks. Caring Medical treats some of the world's toughest pain cases, seeing patients from all 50 states and internationally. Our motto is "Hope Practiced Here" because we see lives restored when the underlying joint instability is corrected. We believe the goal of EDS treatment should not just be pain "management," it should be pain "resolution."
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Sharon Keefe, OTR/L, CHT
Occupational Therapy, Certified Hand Therapy
Keefe Hand Therapy, Inc
210 Jupiter Lakes Blvd., #4201
Jupiter, FL, 33458
http://www.keefehandtherapy.com
561-295-5726
keefehand@gmail.com
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Located across the street from the Jupiter Hospital you will find the 1 to 1 treatment at Keefe Hand Therapy, Inc. is just what you are looking for. Our outpatient private facility specializes in treatment of the hand and upper extremity. All treatment is administered by Certified Hand Therapists who provide all aspects of Occupational Therapy including fabrication of orthoses, fitting for silver ring orthoses, patient education, ADL and strengthening exercises just to name a few. Treatment programs are customized for each individual patient. You will have the same therapist for each treatment session who will be with you throughout the hour.
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Sebastian Klisiewicz, DO
Osteopathic Physical Medicine & Rehab (Physiatry), Integrative Approach to Pain and Functional Impairments, Prolotherapy and Regenerative Medicine, Nerve Studies/EMGs
Integrative Rehab Medicine
9250 Corkscrew Rd #15
Estero, FL, 33928
https://www.iRehabMed.com
239-687-3199
sebastian@irehabmed.com
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Integrative Rehab Medicine combines traditional western medicine with lifestyle and complementary therapies to promote relief of symptoms, restore meaningful function and create a state of health and wellness. The integrative approach merges the wisdom of osteopathic, functional and rehabilitation medicine with the use of natural products and high quality evidence based interventions to help patients achieve their functional goals. Interventions such as injections, physical and manual therapy, acupuncture and energy medicine modalities are utilized to decrease pain and stimulate healing while the pillars of lifestyle medicine (nutrition, exercise and mental wellbeing) are incorporated to help create a healing environment within the body, mind and spirit.
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Dacre Knight, MD
General Internal Medicine; Ehlers-Danlos
Mayo Clinic's Division of General Internal Medicine Ehlers-Danlos Clinic
4500 San Pablo Road South
Jacksonvilled, FL 32224
http://www.mayoclinic.org
904-953-0869
flacaogim@mayo.edu
Hospital affiliations:
- Mayo Clinic Hospital in Jacksonville, Florida
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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Mayo Clinic's Ehlers-Danlos Clinic provides diagnosis, genetic testing and specialized care for patients with Ehlers-Danlos Syndrome (EDS) or other Hypermobility Spectrum Disorders (HSD). Inspiring hope, relieving suffering and advancing the education and science of conditions unique to patients and their families with EDS or HSD is our primary mission. Mayo Clinic is a multidisciplinary clinic with specials in over 55 specialty and subspecialty clinics including necessary clinical services such as Neurology, Cardiology, Genetics, Physical Therapy, Occupational Therapy and Integrative Medicine to name a few.
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Marlon Pereira, DPT
PT, DPT
University of Miami, UHealth Tower
1400 NW 12th Avenue
Suite 1301
Miami, FL 33136
http://pt.med.miami.edu/clinical
305-689-5635
mpereira@med.miami.edu
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Orthopedic and Sports setting; Out-patient physical therapy. Co-Author: Unlocking the Secrets to the Hypermobility Puzzle- An Educational Guide to Understanding How to Live and Exercise with Joint Hypermobility Spectrum Disorders: A Physical Therapist Perspective
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Marcia Perretto, PT, DPT, COMT
Ehlers-Danlos Syndrome, Shouders Pelvis, hips and spine disorders, orthopedics
Actify Physiotherapy & Wellness
7000 West Palmetto Park Road
Suite 220
Boca Raton, FL 33433
http://actifypt.com
561-366-2435
info@actifypt.com
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The name ACTIFY developed out of our passion for wellness of both the body and the mind. The activation of our minds is essential to the success of our physical health. In rehabilitation of the body, neuroplasticity allows our brains to create new positive and powerful neural connections to override painful, ineffective and self-limiting habits and movement patterns. Neurons that fire together, wire together. So, if we focus on new efficient and effective functional movement patterns, we will build stronger, positive neural pathways. We can re-educate your nervous system through a hands on approach that creates uniquely chosen therapeutic activities for you. From restoring your posture to re-creating functional and pain-free movement patterns, when we activate the connection between body and mind, you get better quicker.
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Alissa Sheldon, PhD
Psychology
Alissa Sheldon, PhD, PLLC
601 North Flamingo Road
Suite 213
Pembroke Pines, FL, 33028
954-659-0115
alissa.sheldon@gmail.com
Hospital affiliations:
- Memorial Hospital West
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I am a licensed psychologist in private practice in Pembroke Pines, Florida. I have completed two post-doctoral fellowships in pediatric and adult behavioral medicine at the University of Miami School of Medicine/Jackson Memorial Hospital.
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Frederick Stahlman, PT, CST-D (CranioSacral Therapy Diplomate Certification)
Physical Therapy, CranioSacral Therapy (CST-D)
The Upledger Institute International Clinic
11211 Prosperity Farms Rd
D 223
Palm Beach Gardens, FL 33410
http://www.theupledgerinstituteclinic.com
239-398-3154
fstahlman@yahoo.com
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The Upledger Institute International Clinic is a facility that is dedicated to providing the best treatment available to clients with a variety of disorders/disabilities utilizing CranioSacral Therapy, physical therapy, acupuncture, Osteopathy, Chiropractic treatment , counseling and therapeutic massage. We are dedicated to treating the entire person to reduce and or eliminate the presenting symptoms, and enhancing the client's quality of life.
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Amanda Lazo, OT, MOT, OTR/L
Occupational therapy outpatient practice, familiar with treating patients with HSD, hEDS, POTS, etc.
Mayo Clinic
4500 San Pablo Rd South
Jacksonville, FL 32233
https://www.mayoclinic.org/
904-956-3170
lazo.amanda@mayo.edu
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Occupational therapy outpatient practice, familiar with treating patients with HSD, hEDS, POTS, etc.
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Stephanie Moir, LMHC
Mental Health Counseling
Serene Mind Counseling + Evaluations
730 S Sterling Ave Suite 301
Tampa, FL 33609
http://www.serenemindpsych.com
813-321-8280
hello@serenemindpsych.com
Professional Boards and Affiliations:
- License Mental Health Counselor
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You are capable of living the life you want. We believe that people can change their thoughts, you are not broken and you do not need to be fixed. Therapists are simply navigators in transforming the way you think and show you how to view different events in your life. By realizing that you are not a victim of circumstance you can change what is in your actual control. You can empower yourself to make beautiful changes.
We specialize in therapy services for kids, teens, young adults and millennials with dysautonomia, autoimmune conditions and Lyme Disease. Through personal expereince with these conditions we know how isolating they can make us feel. By helping you regain control and a new perspective, we hope you can gain the life you want to live.
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Erin Weiner, MS, CCC, SLP
Pediatrics
Erin's Place, LLC
290 N Olive Ave
633
West Palm Beach, FL 33401
http://www.erinsplacefortherapy.com
561-961-8488
erin@erinsplacefotherapy.com
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Erin is a speech pathologist who has been active in the special needs community for over 15 years. She has worked as a consultant and a therapist in both individual and group settings.
She has been recognized as an innovator in the field of Speech Pathology because of her unique approach to providing therapy that involves working closely within a child's natural environment.
For instance, instead of providing services in a traditional therapy setting, Erin conducts real-time therapeutic sessions out in the real world. She provides services in the office, in clients' homes, in private schools, and most importantly, out in the community. She collaborates with family members and communicates with other professionals to provide your child with the best support available. This rigorous hands-on approach has proven straightforward in developing skills that a child can effectively apply to day to day life.
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Arun Kalava, MD, FASA, EDRA
Pain Medicine
Acute Pain & Ketamine Clinic
375 S12th Street, Tampa
Tampa, FL 33602
https://www.breakthrupain.com/
8135336259
breakthrupain@gmail.com
Hospital Affiliations:
- Tampa General Hospital
- Memorial Hospital
Professional Boards & Affiliations:
- American Board of Anesthesiology
- European Board of Regional Anesthesiology & Pain Therapy
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We are the first and only Acute Pain Clinic in Florida addressing pain after surgery or trauma and we're proud to be one of the very few facilities in the State of Florida offering Peripheral Nerve Stimulation for nerve pain and post-amputation pain management. We also offer IV Ketamine treatments for mood disorders and IV Lidocaine for chronic pain conditions.
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Adriana Potter, DPT
Pelvic Floor, Pelvic Specialist and Connective Tissue Specialist
Yin Yang Labs
5318 Van Dyke Road
Lutz, Florida 33558
https://www.yinyanglabs.com/
8132653033
info@yinyanglabs.com
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Mission:
Provide thorough assessment for patients with varying connective disorder and assist in managing their symptoms and improving quality of life.
Vision:
Providing a multi-disciplinary approach to assist patients with varying degrees of connective tissues disorder. Also, by identifying the musculoskeletal, gastrointestinal, neurological, urogenital dysfunction that may be underlying and providing them with knowledge to seek other professionals when indicated. Information on co-morbid conditions and symptoms, including management and care guidelines.
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Laura Coppee, PT
Physical Therapist, Manual Therapist
Practice/Clinic 1:
Holistic Well-Being
515 N Flagler drive
West Palm Beach, FL 33401
Practice/Clinic 2:
Holistic Well-Being
23 East Acre Drive
Plantation, FL 33317
https://myholisticwellbeing.com
561-922-7070
Lc@myholisticwellbeing.com
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Provide specialized hands-on treatment for all type of chronic pain and dysfunctions, Ehlers Danlos Syndrome, Parkinson, post stroke, chronic headaches, joint pain (all joints) and others.
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Georgia
Melissa Dickinson, LPC
Behavioral Health, Mental Health, Counseling, Psychotherapy, Psychology
Wellspring Counseling, Coaching and Transitions Center
2972 Memorial Drive SE
Atlanta, GA 30317
http://www.melissadickinson.com
404-969-5139
melissadickinsonlpc@gmail.com
Fran Kendall, M.D.
Clinical Biochemical Genetics
VMP Genetics
5779 Chamblee Dunwoody Rd
Ste 110
Atlanta, GA 30338
http://www.vmpgenetics.com
404-793-7800
info@vmpgenetics.com
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Extensive experience with connective tissue disorders because of the overlap with my primary expertise in mitochondrial and metabolic disorders. Very accustomed to cases with multisystem involvement and approaching each patient as an individual requiring personalized symptomatic management across a wide range of issues. In the Professional Background section below, thought that where and what Fellowship is important to a medical doctors history which in my case is: Fellow in Genetics and Metabolism, Children's Hospital and Harvard Medical School.
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Savas Koutsantonis, DPT
Dry needling specialist/instructor, manual orthopedic/osteopathic skills, pilates certified, neuromuscular re-ed
One on One Physical Therapy
3300 Northeast Expressway
Building 8, Suite C
Atlanta, GA, 30341
http://www.onetherapy.com
770-500-3848
savas@onetherapy.com
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I have over 34 years of clinical practice and am currently working in a practice allowing for full hour of one-on-one care.
One on One Physical Therapy provides ample private space for individualized treatment with access to a gym and pilates area for active functional rehabilitation.
My patient population is composed primarily of chronic pain population, multi-regional pain syndrome, HAs, craniofacial and TMD pain, and pelvic health.
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Elizabeth Kemper, MPT, WCS, PRPC
Pelvic Health Physical Therapy
Kemper Pelvic Physiotherapy
1549 Clairmont Road
Suite 105,
Decatur, Georgia 30033
http://www.kemperpt.com
404-606-2730
kemperpt@gmail.com
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Private outpatient clinic devoted to pelvic health physical therapy in relation to the entire body. Manual therapy and Redcord-based treatment programs integrated into exercise and home progression. Primary areas of interest in care of pelvic pain, prolapse, menopause-related and hypermobility-related issues.
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Jenna Lightfoot, PA-C
Family Practice
Ageless Wellness Center
1000 Commerce Dr #300
Peachtree City, GA 30269
https://agelesswellnessptc.com/
678-364-7332
jenna.lightfoot.pac@gmail.com
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Family practice clinic that provides patient care for both adults and pediatrics of all ages. Our staff thoughtfully considers all your health and wellness concerns to care for you as a whole person. This includes treatment for acute illnesses and injuries as well as treatments that promote ongoing wellness. Jenna Lightfoot, PA-C has special interest in using diet and lifestyle to manage and prevent many chronic medical conditions.
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Eric Wagner, MD, MS
Upper Extremity Orthopedics, Upper Extremity Orthopedic Research, Recurrent Shoulder Instability
Emory Orthopedics and Spine
59 Executive Park S
Atlanta, GA 30309
404-778-7249
eric.r.wagner@emory.edu
Hospital affiliations:
- Emory Orthopedics and Spine Center
- Emory University Hospital
Professioal Board Affiliations:
- Georgia State Medical License
- Massachusetts State Medical License
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Eric R. Wagner, M.D., M.S., completed his orthopaedic surgery residency training at the Mayo Clinic in Rochester, Minnesota. After residency, Dr. Wagner completed a Hand and Microvascular Surgery at the Mayo Clinic in Rochester, Minnesota. Following this year, he completed another fellowship at Harvard's International Shoulder and Elbow Fellowship at Massachusetts General (under Jon J.P. Warner M.D)., and Brigham and Women's (under Laurence D. Higgins M.D.) Hospitals in Boston, Massachusetts. As part of the international component of the Harvard fellowship, Dr. Wagner trained with world leaders in shoulder arthroplasty and arthroscopy, including Pascal Boileau in Nice, France, and in Laurent LaFosse in Annecy, France.
Dr. Wagner joined the Emory Clinic's Orthopaedic Surgery department in 2018, where he sees patients with complex shoulder and upper extremity pathologies. His main clinical interest in the realm of shoulder surgery include complex rotator cuff pathologies, primary and revision shoulder arthroplasty, recurrent shoulder instability (E.g. Ehlers Danlos Syndrome or Hyperlaxity), scapular pathologies, and the paralytic shoulder. He has published over 180 peer-reviewed journals.
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Edward Jackson II, MD
Orthopeadic Surgery, Orthopeadic Sports Medicine
Emory Orthopedics
3903 South Cobb Drive Southeast, Ste 275
Smyrna, GA 30080
https://providers.emoryhealthcare.org/provider/Edward+Robert+Jackson/777651
404-778-7249
edward.r.jackson.jr@emory.edu
Hospital affiliations:
- Emory University Hospital System
Professioal Board Affiliations:
- Orthopaedic Sports Medicine
- Orthopaedic Surgery
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Emory orthopedic surgeons are at the top of their field as practitioners and as teachers at a major medical research center. Emory surgeons have trained at leading institutions around the world and are supported in their treatment and repair of knee injuries and conditions by state-of-the-art medical technology at the Emory Orthopaedics & Spine Center in Atlanta.
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Jill Driver, DC
Doctor of Chiropractic, Orthospinology, Upper Cervical
Pierce Chiropractic Center
1409 N Highland Ave NE
Suite A
Atlanta, GA 30306
http://pierceuc.com
404-860-1030
info@pierceuc.com
Professioal Board Affiliations:
- Georgia Board of Chiropractic Examiners
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I practice a gentle form of non-manipulative chiropractic called Orthospinology/Upper Cervical. I work with many hypermobile and EDS patients. My work is safe for hypermobile spines and provides relief from neck pain, migraines, and other related issues. We utilize x-rays and non-manipulative approach similar to atlas-orthogonal. Our clinic specializes in neck pain, cervicogenic vertigo and migraines, and other related issues like facial/jaw pain. I have worked with many POTS patients as well. Many patient has experienced reduction in brain fog and drop attacks due to decreased tension and improved CSF flow at the CCJ (cranio-cervical junction). I provide EDS education and guidance for my patients, include EDS related questionnaires in the new patient intake forms, and encourage involvement in support group and the EDS online society. My goal it to help as many EDS patient as possible by providing safe, gentle spine care and compassionate patient centered healthcare. I am a member of the Georgia support group. I have established relationships with other EDS practitioners in the state, Carl Heldman DPT and Melissa Dickinson LPC. I had my own hEDS, dx in 2017.
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Daniel Penn, MD
Gestroenterology, Internal Medicine
Atrium Navicent Gestroenterology Center
240 Sheraton Blvd
Macon, GA 31210
478-227-9871
daniel.penn@atriumhealth.org
Hospital Affiliations:
- Atrium Navicent Health System
Professional Boards and Affiliations:
- ABIM Gastroenterology
- ABMS
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Seven years into my practice after treating numerous young women with "idiopathic" gastroparesis and post-infectious dysmotility syndromes it finally dawned on me that these patients' GI disorders had many other common features: joint pain, migraines, frequent UTIs, POTS, and joint hypermobility. This epiphany in my practice has led me to recognize the phenotype in many patients who would have otherwise gone undiagnosed (and under-treated). Since that time I have read everything that I can find on the peculiarly-common hEDS and its many manifestations and now diagnose 2-3 patients a week in my own clinic. I now perform genetic testing in addition to guiding therapy, and I connect patients with knowledgeable immunologists, cardiologists, urologists, nutritionists and physical therapists. My main research interest is now in finding a treatment for the neurologic manifestations of hEDS, something to halt or perhaps reverse the progressive dysautonomia that can be so disabling. I am currently writing a grant for a project to objective measure the effects of a therapeutic agent in hEDS patients with POTS and GI dysmotility.
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Lisa Shaw, PT, DPT, PHC, CMTPT
Physical therapy
Integral Physical Therapy
3535 Roswell Road Suite 36
Marietta GA 30062
http://www.myintegralpt.com
470-210-7222
lisa@myintegralpt.com
Professional Boards and Affiliations:
- Licensed Physical Therapist in Georgia
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Private practice with individualized treatment focus and one on one patient care with hour long sessions to allow thorough and effective treatment by Dr. Shaw, who has over 23 years of experience as a PT. Dr. Shaw is unique as she has clinical experience with hypermobility in all ages and has personal experience with hypermobility as well. She uses an integrative whole body approach with a blend of manual therapy, exercise, muscle retraining, and education. She believes strongly in a collaborative approach with other providers in the community.
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James Craig, MD
Addiction Medicine, Family Medicine
Craig Wellness and Recovery
2205 Riverstone Blvd.
Suite 205
Canton, GA, 30114
https://craigwellnessrecovery.business.site/
770-720-5011
craigwellnessandrecovery@gmail.com
Hospital Affiliations:
- Northside Hospital
Professional Boards and Affiliations:
- Diplomate of the American Board of Addiction Medicine
- Diplomate of the American Board of Family Medicine
- Diplomate of the American Board of Preventative Medicine
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The goal of Craig Wellness and Recovery is to assess and treat all aspects of our client's health, physically and emotionally. We place an emphasis on mental health, addiction recovery and addiction prevention through careful review and utilization of a variety of pain management strategies. As a staff we have personal connections to Ehlers-Danlos, POTs and other limiting disorders. We understand the pain, frustration and emotional turmoil that can result from Ehlers-Danlos and its complications.
We welcome our clients to visit us in our comfortable, relaxing and professional environment. We realize that each person is an individual with unique characteristics and challenges and treat you as the special person you are. Our office is located in the North Metro Atlanta area of Canton Georgia and is easy to access off of I-575 at exit 20. Our over arching goal is to help our clients achieve a life of quality in every day, not just quantity of days.
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Katelyn Raymond, DPT
Pelvic Floor Dysfunction, Strength Training Safely
STAT Wellness
1465 Howell Mill Rd
Atlanta, Georgia 30318
http://www.statwellness.com
4042545905
katelyn@statwellness.com
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STAT Wellness is a MEDICINE + MOVEMENT facility. Our goal is to be a wellness home for our patients. We treat with a root cause approach and realize that everyone is unique. We offer Functional Medicine, Physical Therapy, Health Coaching, Personal Training, and Group Fitness. Our Physical Therapist specializes in pelvic floor dysfunction (urinary symptoms, bowel health, pelvic pain, etc), along with orthopedics dysfunction. Her passion is to motivate and educate patients on how to move without fear or pain through exercise and other tools.
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Ami Kirollos, PT, DPT, CSCS
Orthopedics, Dance Medicine, Pelvic Floor, Hypermobility
One on One PT
3300 Northeast Expressway
Bldg 8 Ste C
Atlanta, GA 30341
https://onetherapy.com
7705003848
ami@onetherapy.com
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One on One is an outpatient physical therapy clinic in Atlanta, Ga. I see all patients in a one on one context for anywhere from 30-90 minutes to ensure high quality and personalized care. I strive to make sure each patient is heard and their story told, so I can fully understand their complaints. By doing so, getting to the root cause of the problem in a more efficient and empathetic manner.
All patients at One on One Physical Therapy receive a comprehensive evaluation with one of our Physical Therapists to identify the nature and source of the pain or injury.
We will refer the patient to other health care providers when further evaluation is necessary. The Physical Therapists use various techniques and modalities as a part of treatment. One on One offers post-rehabilitation services to help patients maintain function and improve health and performance after physical therapy goals have been met. In cases where a specific activity or sport is involved, injury prevention is addressed from day one. The Physical Therapist will pay careful attention to mechanics and technique to address sport-specific training.
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Samuel Jones, LMSW
Mental Health
Counseling Associates for Well-Being, LLC
1123 Clairmont Road
Decatur, GA 30030
https://ca4wellbeing.com/
678-528-0082
sam@ca4wellbeing.com
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My passion is in helping people identify and make the changes that lead to meaning and fulfillment in their lives. I have been privileged to join with individuals, couples and families in their darkest hours, as they work to find hope and healing. My philosophy of therapy is person-centered and wholistic. I believe that you are the expert on your life, and my role is to provide encouragement, support and guidance on your journey of growth and change. My treatment approach is based on Acceptance and Commitment Therapy, as well as other behavioral approaches that incorporate mindfulness, acceptance and compassion. My goal is to assist you in figuring out what is important to you and empowering you to do what matters to you.
I have extensive experience in supporting individuals and families that are living with chronic and serious physical illness. As a person living with a chronic illness, my professional expertise is informed by lived experience. I enjoy helping adults and couples across the lifespan navigate life transitions (including caregiving, end of life, grief and loss), relationship issues and symptoms of anxiety and/or depression.
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Hawaii
Katie Vitousek, DPT
Physical Therapy, Women's Health, Lymphadema
Practice / Clinic 1
Club Rehab Inc
79-7422 Mamalahoa Hwy
Kealakekua, HI 96750
http://www.clubrehabhawaii.com
Practice / Clinic 2
Club Rehab Inc
75-5699 Kopiko Street
Kailua-Kona, HI 96740
http://www.clubrehabhawaii.com
808-322-8400
kvitousek@clubrehabhawaii.com
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Club Rehab has been serving the Island of Hawaii since 1994. Our mission is to bring motion back to life! Our Kailua office is housed in "The Club in Kona" which is a 20,000 square foot, fully equipped health club which includes a outdoor/indoor olympic sized pool. Our second facility, located in Kainaliu, is a 4000 square foot fitness facility and clinic that serves our Mauka community. Each of these facilities is equipped with state of the art Erchonia cold lasers, Pilates equipment, and a full compliment of exercise equipment and physical therapy modalities. For our fitness clients, personal trainers are available to help you achieve your fitness goals
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Idaho
Kristen Burris, LAc, MSTOM
Pain, Muscoloskeletal Pain and Injury, Depression, Anxiety, Women's Health, Digestive
Eagle Acupuncture
507 S Fitness Plaza Suite 100
Eagle, ID 83616-5984
https://www.eagleacupuncture.com
208-938-1277
eaglebabymaker@gmail.com
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Kristen Burris, L.Ac., M.S.TO.M. is the owner of Eagle Acupuncture Center in Eagle, Idaho. She has a four year Master's degree in Traditional Chinese Medicine practicing acupuncture and herbal medicine. She is an internationally recognized practitioner in the field of pain, rare diseases, medical mysteries, women's health, menopause, and infertility. Ms. Burris is a sought out expert who has had patients referred to her by Dr. Oz. She's been interviewed as a medical expert in: USA Today, MSNBC, Woman's Day, Shape, Natural Health, Better Homes and Garden and Parenting Magazine. She was the covergirl for HERLIFE magazine for her renowned success in infertility helping over 500 couples conceive. Ms. Burris was the first alumnus to be featured as a success in traditional Chinese medical (TCM) field by her alma mater, Pacific College of Oriental Medicine where she graduated and then taught graduate school. Ms. Burris was voted Top Doc in Eagle twice, Winner of National Association of Women Business Owners, and won Business Person of the Year at The Eagle Chamber. She and her husband have donated over $155,000.00 worth of free medical care to the treasure valley in the last 11 years.
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Prashanth Manjunath, MD
Pain medicine, Anesthesiology
Practice / Clinic 1
Idaho Pain Group
285 Vista Dr
Pocatello, ID 83202
https://www.binghammemorial.org/prashanth-manjunath-md/
Practice / Clinic 2
Idaho Pain Group
98 Poplar St.
Blackfoot, ID 83221
https://www.binghammemorial.org/prashanth-manjunath-md/
208-239-8023
pmanjunath@yahoo.com
Hospital affiliations:
- Bingham Memorial Hospital, Blackfoot, Idaho 83221
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Specializing in multidisciplinary, integrative model of chronic pain management including specialized interventional procedures, neuromodulation, Ketamine/Lidocaine infusion therapy and Botox injections for migraine prevention
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Brenda Jerald, DPT
Physical Therapy
Hayden Lake Physical Therapy and Aquatics
1088 W Prairie Ave
Coeur d'Alene, ID 83815
http://haydenlakept.com/
2087726609
brendaj@haydenlakept.com
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Since 1999, Hayden Lake Physical Therapy and Ironwood Drive Physical Therapy together have provided nothing less than outstanding service. Whether your recovery happens through either our aquatic or standard therapeutic procedures, we always strive to provide excellent services.
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Illinois
Ann Alton, PT, DPT
Physical Therapy
Practice / Clinic 1
Kirk Center for Healthy Living
16618 W 159th St
Suite 401 & 402
Lockport, IL 60441
https://kc4hl.com/
815-383-0529
ann@kc4hl.com
Type of clinic: Private
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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Outpatient hospital based clinic. Treats any/all diagnosis. Has Speech-language and occupational therapy as well.
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Nichole Harju, PT, DPT
Physical therapy specializing in EDS, hypermobility, pediatrics
Creative Rehab
1 South Greenleaf
Suite I
Gurnee, IL 60031
http://www.creativerehab.net
847-599-9171
nharju@creativerehab.net
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Creative Rehab is a privately owned physical therapy clinic that focuses on providing elite care for our patients. We do this by having only licensed physical therapists, having 1 hour treatment sessions and by addressing the cause of the pain instead of chasing symptoms. Our therapists include patient and family education in order to train our patients on how to manage pain between sessions. Creative Rehab also has a warm water therapy pool that helps patients strengthen with less pain. We have been in business for 21 years due to our strong word of mouth reputation and motivation to help our community return to their lives. Check out our Creative difference!
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Lilian Holm, PT, DPT
Doctor of Physical Therapy, specializing in hypermobility syndromes, chronic pain and orthopedics
Lilian Holm Wellness
1570 Oak Avenue, Ste 101
Evanston, IL, 60201
https://www.lilianholm.com
847-208-8063
lilianholmpt@gmail.com
https://lilianholmwellnessschedule.as.me/
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I have 26 years of experience in physical therapy. I have a single-practitioner outpatient practice that is unique in that I see patients one on one for 60-75 minutes. This enables me to assess and treat each patient as the unique individual that they are, with their unique deficits and strengths. I address hypermobile patients' needs broadly in order to achieve optimal outcomes, including sleep, stress management, dietary basics etc in addition to the needs for stabilization, coordination, strengthening etc, needed to prepare the hypermobile body to function without injury or pain. My approach also includes a strong emphasis on patient education. I also share information about hypermobility on social media on dedicated social media sites.
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Catherine Lewan, PT, DPT, C-IAYT
hypermobility/EDS, dysautonomia/POTS, pelvic floor dysfunction
Chicago Physical Therapists
3717 N Ravenswood
Chicago, IL 60640
http://www.catherinelewan.com/
(773) 770-3682
dr.cat@catherinelewan.com
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I am self-employed at a private practice that prioritizes expert, patient-focused and individualized care. I love my work and I'm grateful for the opportunity to help others who have EDS. Since I have hEDS, so you may notice I use thumb splints for performing manual therapy and I tend to get up quite slowly as I also have POTS. I have a lot of personal and professional experience using therapeutic exercise and manual therapy to improve chronic pain, fatigue, dizziness, joint stability, and quality of life. It often takes a village, so I enjoy helping my patients connect to other team members that can assist them in their journey. I love learning with my patients about what works best for them in getting them closer to their goals– because everyone is unique. Especially when you are a zebra.
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Megan Mills, PhD
Health Psychologist: Cancer, Pain, Adjustment to Illness
Megan Mills PhD
2800 N Sheridan Rd
Suite 108
Chicago, IL 60657
773-331-7690
meganmills1983@gmail.com
Hospital affiliations:
- Amita/Presence/St. Joseph Hospital, Chicago, IL
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I am a solo practitioner, working with medical patients exclusively. I currently have a patient load of 23, 8 of whom are diagnosed with hEDS. I've become more and more interested in the illness as I see people at different ages and with different symptoms (and severity of symptoms). Although I am not currently in a position to participate in research, I would like to keep up on research of EDS, both for the benefit of my clients and for my interest.
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Wendy Wagner, PT, MPT
Pediatric PT and EDS PT
Wendy4Therapy
3340 Empress Dr.
Naperville, IL 60564
http://www.wendy4therapy.com/
630-664-8513
wendy4therapy@gmail.com
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I am a PT and I have EDS myself. I have been a pediatric PT most of my career but am in the process of transitioning to only accepting patients with EDS. I am in the western suburbs of Chicago and will also be offering telehealth services soon for patients who do not feel well enough to travel. I am uniquely qualified to treat patients with EDS as I struggle with the same issues of pain, fatigue and loss of functional activity as my patients. I have the approval of Kevin Muldowney to execute his protocol and have worked with Susan Chalela (PT in Charleston) to learn tried and true techniques.
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Ally Walker, DPT
Women's Health
Athletico Physical Therapy
557 S State St
Chicago, IL 60605
https://www.athletico.com/locations/printers-row/
312-361-0261
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Athletico Printers Row is located downtown Chicago, conveniently located within steps of the CTA Red Line station and 2 blocks from a CTA Brown/Purple/Orange/Pink Line Station. I treat a variety of orthopedic conditions, including specialty training in female pelvic floor/women's health conditions, and have particular interest in hypermobility/EDS diagnoses.
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Dawn Olson, DN
Naprapathy
Alternative Pain Care
1749 S Naperville Rd. #207
Wheaton, IL 60189
http://www.alternativepaincare.info
773-501-5071
drdawndn@gmail.com
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At Alternative Pain Care we use the latest research and technology to identify the causes and solutions to many health challenges but especially musculoskeletal and structural dysfunctions in the body. As someone who is hypermobile myself, I have sought out the most gentle, least invasive, and most effective ways to treat spinal instabilities especially of the pelvis and sacroilliac joint and cervical spine. Naprapathy, Shiatsu, Cranial Sacral Therapy and Lymph Drainage Therapy are some of the manual therapies we specialize in.
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Jennifer Bambrough, DPT
hEDS, hypermobility, Dysautonomia, persistent pain, headaches, post concussive syndrome, dizziness, Parkinson's disease
Chattanooga TN
773-770-3682
jen@thedizzypt.com
Professional Boards and Affiliations:
- APTA
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At Chicago Physical Therapists we're passionate about providing you exceptional one on one care in a comfortable space. Our team of experienced physical therapists—practicing cutting-edge integrative treatment—is intent on providing you the best results. We believe in you! We work hard to help you reach your best self through our holistic, personalized approach to your treatment.
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Melissa Geraghty, Psy.D.
Clinical Health Psychologist
Phoenix Rising with Dr. G
www.phoenixrisingwithdrg.com
dr.m.geraghty@gmail.com
Professional Boards and Affiliations:
- Coalition For Headache And Migraine Patients (CHAMP)
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Dr. Geraghty's clinical expertise includes:
-Chronic Pain, Chronic Illness, Complex Medical, and Physical Disabilities
-Eating Disorders and Body Image
-Anxiety Disorders
-Depression
-Self-Injury
-Bereavement
Dr. Geraghty is an inaugural Board Member for The Coalition for Headache and Migraine Patients (CHAMP). She is also an Ambassador for the U.S. Pain Foundation. Dr. Geraghty has received recognition and awards for her clinical excellence and advocacy efforts in the chronic pain community. She also enjoys presenting workshops to healthcare professionals and the public at an international level.
As a person with chronic pain and multiple physical disabilities (including a rare neurological condition), Dr. Geraghty understands firsthand the difficulties that medical diagnoses bring to daily living. Dr. Geraghty was diagnosed with COVID-19 in early March 2020 and now has Long-Haul COVID. She is able to provide support to individuals impacted by COVID-19 due to her years of personal and clinical experience with complex medical conditions, including Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).
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Megan Lamphere, PT, DPT
Pelvic Health, Pregnancy, Female Athletes
Vitality Women's Physical Therapy and Wellness
533 S. Division St.
Unit B
Elmhurst, IL 60126
https://www.vitalitywomenspt.com/
331-215-4164
contact@vitalitywomenspt.com
Professional Boards and Affiliations:
- American Physical Therapy Association
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We're founded on the simple idea that a woman's body is constantly evolving and while those changes may feel like minor annoyances, they actually have a major impact on her life. Our goal is to empower women to be at their physical best, whether that's chasing three kids, training for the next race, or commanding the boardroom.
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Mary Kiolbasa, OT
EDS/hypermobility, Dysautonomia/POTS, chronic pain, cognition/vision
Northshore University Health System
920 Milwaukee
Lincolnshire, IL 60069
Mkiolbasa@northshore.org
847-383-2700
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Occupational Therapist specializing in neurologic and chronic conditions, such as EDS/ hypermobility, to manage conditions for daily participation
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Indiana
Brian Horner, PT, Cert DN, CODN
Physical Therapy, Joint pain, spine, orthopedics
Practice / Clinic 1
Fast Track Physical Therapy
9082 E. US Highway 36
Avon, IN 46123
https://www.fast-tracktherapy.com
Practice / Clinic 2
Fast Track Physical Therapy
5641 Crawfordsville Rd.
Indianapolis, IN 46224
http://www.fast-tracktherapy.com
317-209-1900
amie@fast-tracktherapy.com
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We are a private practice with two locations, specializing in orthopedics, chronic pain, spine, EDS, Migraines and TMD. We are grateful to be able to help our patients become pain free. All of our therapists are certified in multiple levels of Dry Needling, including Orofacial Dry Needling. We treat several EDS patients and Fast Track has been known for getting the results when others have not.
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Ryan Summitt, DPT
PT, DPT, OCS, CSCS
St. Vincent/Ascension
8550 Naab Road
Suite 100
Indianapolis, IN 46260
317-338-3364
ryan.summitt@ascension.org
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Our clinic is located next to St. Vincent/Ascension Hospital and near the office of Dr. Tinkle. We have advanced medical equipment and highly trained Physical Therapists, Occupational Therapists, and Speech Therapists to treat orthopedic, neurological, balance, and pelvic health disorders.
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Ryan Wood, PT, DPT, MHA, OCS
Board Certified Orthopedic Clinical Specialist
Forefront Therapy
101 NW 1st St, Suite 114
Evansville, IN 47708
United States
https://forefronttherapy.org/
812-402-0444
ryan@forefronttherapy.org
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Our company has specialized experience with working with individuals living along the hypermobile spectrum.
We take pride in treating individuals with a holistic approach looking at the whole person, not just a diagnosis, including the neuromusculoskeletal system, psychosocial factors, diet, nutrition, sleep, and more. We developed a specialized physical therapy program within the organization dedicated to the hypermobile spectrum focused on improving quality of life and empowering individuals with the knowledge and skill to take back as much control of their situations as possible.
Forefront is based off of 3 Core Pillars: One on One Quality Care, Education/Research, and Accessibility for all.
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Tonya Barringer , PT, DPT
Pelvic Health, Orthopedic
Forefront Therapy
101 NW 1st St, Suite 114
Evansville, IN 47708
United States
https://forefronttherapy.org/
812-402-0444
tonya@forefronttherapy.org
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Our company has specialized experience with working with individuals living along the hypermobile spectrum.
We take pride in treating individuals with a holistic approach looking at the whole person, not just a diagnosis, including the neuromusculoskeletal system, psychosocial factors, diet, nutrition, sleep, and more. We developed a specialized physical therapy program within the organization dedicated to the hypermobile spectrum focused on improving quality of life and empowering individuals with the knowledge and skill to take back as much control of their situations as possible.
Forefront is based off of 3 Core Pillars: One on One Quality Care, Education/Research, and Accessibility for all.
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Brian Grant, PT, DPT
Physical Therapy
Forefront Therapy
101 NW 1st St, Suite 114
Evansville, IN 47708
United States
https://forefronttherapy.org/
812-402-0444
brian@forefronttherapy.org
>> Show more information about this practice/clinic
Our company has specialized experience with working with individuals living along the hypermobile spectrum.
We take pride in treating individuals with a holistic approach looking at the whole person, not just a diagnosis, including the neuromusculoskeletal system, psychosocial factors, diet, nutrition, sleep, and more. We developed a specialized physical therapy program within the organization dedicated to the hypermobile spectrum focused on improving quality of life and empowering individuals with the knowledge and skill to take back as much control of their situations as possible.
Forefront is based off of 3 Core Pillars: One on One Quality Care, Education/Research, and Accessibility for all.
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Carol Hammerbeck, MD
Psychiatry
Hammerbeck Behavioral Medicine
2780 Jefferson Center Way
Unit 104
Jeffersonville, Indiana 47130
HammerbeckPsych@gmail.com
8122888622
https://Hammerbeckbehavioral.com
Professional Boards & Affiliations:
- American Board of Psychiatry and Neurology
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Currently I have an outpatient office open on Wednesdays seeing general psychiatry patients. I do not accept any insurance but am a non-participating provider with Medicare.
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Iowa
Danielle Brachman, DPT, OCS, FAAOMPT
Orthopedics
Physical Therapy Solutions
107 S. 11th St.
Suite 1
Manchester, IA 52057
https://www.ptsiowa.com/
563-927-1499
danielleb@ptsiowa.com
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Danielle was raised in Dubuque and graduated from Wahlert High School. She received her Bachelor's of Science Degree in Exercise Science with a minor in Biology from St. Ambrose in 2011. She went on to complete her Doctorate of Physical Therapy in 2012.
After graduation, she was employed in Denver, CO for 6 years, improving her skills in outpatient orthopedics. During this time, she earned the designation as a Board Certified Orthopedic Specialist (OCS). She then spent several years studying at Regis University in Denver, completing her Fellowship in Orthopedic Manual Physical Therapy (FAAOMPT) in 2018. She obtained her Level 2 Dry Needling Certificate through Kinetacore in 2015.
Danielle greatly enjoys being a Physical Therapist and the lasting relationships she creates with patients. She strongly believes in empowering patients through education. She treats all ages, from pediatrics through geriatrics, and enjoys returning patients to the activities they love.
When not in the clinic, Danielle enjoys spending time with her husband and son, as well as hiking, biking, and camping.
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Erich Ottervanger, DPT
DPT
Practice/Clinic 1:
West Des Moines Physical Therapy and Sports Rehabilitation
3701 EP True Pkwy, #300
West Des Moines, IA 50265
http://www.wdmpt.com
15152246761
contact@wdmpt.com
Practice/Clinic 2:
Pleasant Hill Physical Therapy
1280 Copper Creek Dr
Pleasant Hill, IA 50327-7000
http://www.pleasanthillpt.com
5156506111
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At West Des Moines Physical Therapy and Pleasant Hill Physical Therapy, we care for adults and children with conditions and injuries affecting the muscles, joints and nerves. We work with out patients 1:1 and, because we never overlap appointment times, you can always count on our full and focused attention. You'll be treated exclusively by a licensed doctor of physical therapy throughout your plan of care. This allows our therapists to really get to know the problems and limitations that are affecting you, and allows us time to understand, and create the best plan of care. We have extensive experience working with EDS, and joint hyper-mobility syndromes and work gently and carefully through issues to help our patients manage their symptoms and gain more control of their joints.
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Sam Huey, PT
Orthopedic Physical Therapy
Rock Valley Physical Therapy
1185 SE Alice's Rd
Waukee, IA 50263
http://www.rockvalleypt.com
5159877733
sam.huey@rockvalleypt.com
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I practice in an outpatient physical therapy clinic in Waukee, Iowa. I have 10 years of orthopedic experience and I have been working with a large population of patients with EDS over the past 4 years. In this time, I have learned the importance of taking an active approach to empower patients to manage their pain and better understand their condition. Manual therapy is utilized heavily in my clinic, but it is not the number one intervention with patients who have EDS or similar hypermobility issues. Exercise, education, and activity modifications are key, and manual therapy can be used as a pain modulator as needed.
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Kansas
Jennifer Cumming, PT, WCS, CLT
Physical therapy, Pelvic Floor Physical therapy, Lymphedema Therapist
Foundational Concepts
6701 W 121st St, Ste 300
Ste 300
Overland Park, KS 66209
http://www.foundationalconcepts.com
913-498-8492
info@foundationalconcepts.net
Professional Boards & Affiliations:
- Women's Health Certified Specialist with ABPTS
- Certified Lymphedema Therapist
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Foundational Concepts is a physical therapy clinic specializing in pelvic health in the Kansas City metro. We have been seeing patients with hypermobility since we opened in 2013. Sarah Dominguez and Jennifer Cumming have both been practicing pelvic health PT since 2001. We often are the first providers to educate our patients about hypermobility and help them to find other health care providers to round out their team. Due to the many manifestations of EDS and hypermobility on pelvic health, we are able to play an integral part in our patient's health and well-being. We see patients in a one-on-one setting in private rooms for an hour each session. This allows us the time to build a rapport with our patients and give them the education that they need to take care of their bodies and to advocate for their health.
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Kentucky
Elaine DeSario, OD, Diplomate, ABO
Optometry
Louisa Eye Care
112 South Vinson Ave.
Louisa, KY 41230
https://www.louisaeye.com/
606-638-4731
Louisaeyes@gmail.com
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Drs. DeSario and Bowling provide comprehenive eye care for the entire family. They diagnose and treat eye disease, perform contact lens fittings, and co-manage surgical cases with other local physicians. An optical boutique with a large frame assortment is also on-site for glasses prescriptions.
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Louisiana
Jacques Courseault, MD, CAQSM
Physical Medicine and Rehabilitation, Sports Medicine
Hypermobility and Ehlers-Danlos Clinic at Tulane Doctor
7030 Canal Blve
New Orleans, Louisiana 70124
https://www.hypermobilityclinic.org
504-988-0100
dgriffin2@tulane.edu
Hospital Affiliations:
- Tulane University
Professional Boards & Affiliations:
- American Board of Physical Medicine and Rehabilitation
- Certification of Additional Qualification in Sports Medicine
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The Hypermobility and Ehlers-Danlos Clinic at Tulane Doctors was developed to help you improve your quality of life. We have developed a multidisciplinary team including physicians, physical therapists and nutritionists to address many associated symptoms related to Hypermobility Spectrum Disorders. We also serve as your "hub" for keeping records and giving recommendations for new potential problems that may arise.
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Kathy Garvey, MS, RD, LD
Nutrition
Garvey Nutrition
3801 N. Causeway Blvd, Suite 303
Metairie, LA 70002
https://www.garveynutrition.com
504-453-3253
kathy@garveynutrition.com
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Kathy Garvey is a Registered Dietitian specializing in treating clients with Hypermobile Ehlers-Danlos syndrome. Kathy is passionate about helping clients optimize their health through evidence-based nutrition therapy, counseling, education and support.
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Maryland
Michael April, MD
PM&R
Pain and Injury Center of Greater Washington
6000 Executive Blvd.
#602
Rockville, MD 20852
http://www.end-suffering.com/
301-770-6301
frontdesk@gwpaincenter.com
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Outpatient clinic that specializes in acute and chronic pain and sports medicine. Currently 5-10% of the practice is patients with EDS. Work closely with Jan Dommerholt, who is well known in field. Utilize multimodal approach with medications, injections, acupuncture, PT, chiropractic, nutrition, and mind-body medicine. Clinic has M.D, nurse practitioner, chiropractor, nutritionist, and social worker.
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Claudiu Austin, MD, MPH
Doctors Community Hospital
1010 Wayne Ave
Suite 420
Silver Spring, MD 20910
240-499-4191, fax 999-511-6783
dr.austin@yahoo.com
Hospital affiliations:
- Washington Adventist Hospital
- Shady Grove Adventist Hospital
- Sinai Hospital Baltimore
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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Dr. Austin has been practicing internal medicine and hospitalist medicine, successfully combining the European and American approach to the most challenging EDS and Chiari patients.
Dr. Austin acquired a vast expertise in treating Ehlers-Danlos Syndrome patients, movement disorders, adult PANDAS, mast cell activation disease and severe autonomic dysfunction.
His previous interest in pharmacology, physiology, headache, autoimmunity, psychotropic and nootropic medication alowed him to design new algorithms of treatment in the intricated world of multi-system involvement of EDS, and apply them clinically with outstanding results.
His unusual knowledge of side effects and medication interactions, combined with a solid base of history of medicine and medical research made him a great addition to the EDS group in the Washington area.
Dr. Austin published on sepsis, pharmacology, EDS, and lectured in EDS, dystonia and PANDAS
He is Diplomate of the American Board of Internal Medicine, member of American Medical Association and American Society for Plasmapheresis
Dr. Austin was named America's Top Physician in Internal Medicine in 2012 and 2013.
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Jennifer Balducci, PT, MSPT, Cert MDT
Orthopedics
914 Bay Ridge Road
Suite 212
Annapolis, MD 21403
http://www.oneptfw.com
410-280-0914
one.ptwf@gmail.com
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One. is a physical therapist owned and operated wellness clinic in Annapolis, MD.
Jennifer Balducci, PT, MSPT, co-owner of One., herself with joint hypermobility syndrome, has dedicated her practice to the treatment of joint hypermobility, with a focus on Wellness, using a combination of educational, nutritional, self treatment, Class IV Cold Laser, manual therapy, and Pilates based approaches to give her clients the opporunity to manage their hypermobility and related pain disorders.
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Stephanie Bathurst, LCMFT
Sex Therapy, Relationship Therapy, Psychotherapy for pain management, anxiety, depression, trauma, adjustment disorders.
Bathurst Family Therapy, LLC.
21 Deep Powder Ct.
Woodstock, MD 21163-1110
https://www.bathurstfamilytherapy.com/
215-692-2461
BathurstFamilyTherapy@gmail.com
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Bathurst Family Therapy, LLC. is a private psychotherapy practice to combines Relationship Therapy, Sex Therapy and eclectic approaches for Individual Therapy services. Stephanie Bathurst is a Board Certified Clinical Sexologist and Licensed Marriage and Family Therapist whose true passion is engaging couples who have lost one another in the journey of life; helping them to identify maladaptive communication patterns, boundaries or general needs that may be impeding them from enjoying their time together. I work with heterosexual couples, lesbian and gay couples and multi-partner relationships. Sexual dissatisfaction, fulfillment and dysfunctions are also a professional interest, seeing as these worries often intersect with relational difficulties. I work well with clients of military and law enforcement backgrounds and their families, understanding the hardships and transitions that are associated with this lifestyle. I have experience working with chronic pain and adapting to chronic conditions of disability for functioning of daily living and relational fulfillment. My private practice is partly mobile to accommodate client's coping with physical disabilities.
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JR Bucklin, PT, CF-L1
Physical Therapy
Cornerstone Physical Therapy
5300 Westview Drive Suite 108
Frederick, Maryland 21703
United States
http://www.cornerstonept.net/
301-732-4754
info@cornerstonept.net
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Outpatient Physical Therapy designed to treat the whole person via the use of osteopathic based manual therapies and functional exercise/re-training.
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Lillian Byington, PT, DPT, OCS, CMPT
PT
Life Bridge Physical Therapy
1364 Martin Blvd Suite 5
Middle River, MD, 21220
https://www.novacare.com/community/baltimore-metro-northwest-maryland/center/?id=50023&ty=xt
410-686-3600
lbyington@novacare.com
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Small clinic with private treatment rooms and an open gym space. We offer manual therapy, dry needling, and exercises based on a slow progression to accommodate our patients individual needs. PT has 2+ years experience treating patients with EDS, POTS, MCAS, and other complex disorders
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Jan Dommerholt, PT, DPT, DAIPM
Physical Therapy
Practice / Clinic 1
Bethesda Physiocare
4405 East West Highway
Suite 403
Bethesda, MD
20814-4535
http://www.bethesdaphysiocare.com
info@bpcemail.com
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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Jan Dommerholt has over 20 years of experience in working with patients with EDS. His patients report that his diagnostic skills allow them to "connect the dots" and start making some sense of their condition. In addition to providing specialized physical therapy – often with a unique external – focus exergaming approach – our PTs also address most common pain issues, including headaches, neck/back pain, movement disorders, etc. We collaborate with several prominent EDS medical specialists in the greater Baltimore-Washington DC metropolitan area.
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Lauren Haines, PT, DPT, ATC
Physical Therapy
Pivot Physical Therapy – Hagerstown
17301 Valley Mall Rd
Inside the OneLife Fitness Center at the Valley Mall
Hagerstown, MD 21740
https://www.pivotphysicaltherapy.com/
240-850-2002
Lauren.Haines@pivoths.com
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We specialize in outpatient orthopedics and sports rehabilitation. Our clinicians are experienced in treating patients with hypermobility disorders, POTS, and MCAS. We offer an indoor heated salt water pool for aquatic therapy. We currently accept most insurances including Medicaid.
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S. Shar Hashemi, MD, FACS
Nerve Bone & Joint Institute Maryland
7500 Greenway Center Drive
Suite 520
Greenbelt, MD 20770
http://www.nerveboneandjoint.com/
301-220-2127
patients@nerveboneandjoint.com
Hospital affiliations:
- DCHUX
- George Washington University Hospital
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Multidisciplinary approach in evaluating patients with EDS and Hypermobility for peripheral nerve conditions.
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Fraser Henderson, MD
Specializing in craniocervical (CCI) , atlantoaxial (AAI) and spinal instability, occult tethered cord and Chiari malformation
The Metropolitan Neurosurgery Group
1010 Wayne Avenue
Suite 420
Silver Spring, MD 20910
http://www.metroneurogroup.org
301-557-9049
tteriniti@metroneurogroup.com
Hospital affiliations:
- DOCTORS COMMUNITY HOSPITAL
- HOLY CROSS HOSPITAL
- GREATER BALTIMORE MEDICAL CENTER
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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Our practice is dedicated to providing patients with the highest quality spine and neurosurgical care, offering patients non-surgical and surgical options for treatment. When surgery is indicated, we provide the most advanced, highest quality care available.
We take great pride in the individual care and genuine concern that we show each patient. Although brain and spinal abnormalities are very complex, we strive to build relationships with our patients as we determine the correct diagnosis and treatment options.
Whether you are a current patient, prospective patient, or concerned family member, please explore the information on this web site and feel free to either contact our office for more information or schedule an appointment.
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Kimberly Kandra
Pilates, Physical exercise
Kimmotion Pilates
1119 MD Route 3 N
Suite 201
Crofton, MD 21114
http://www.kimmotionpilates.com
410-459-7312
kimmotionpilates@gmail.com
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I am a private classical Pilates studio. I offer private and small group classes on the classical Pilates apparatus. My specialties lie in neuromuscular and autoimmune diseases. Pilates is a non impact method which improves joint stability, balance and strength without over-stretching and straining muscles. I teach a safe and effective way to learn movement patterns that will help to avoid injury.
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Nathan Mayberry, PT, DPT, OCS, CMTPT, CSCS
Orthopedic Specialists, Dry Needling, Pain Management, Myofascial Pain, Externally Focused Exercise,
Practice / Clinic 1
Mayberry Physiotherapy LLC
1119 MD 3 North
Suite 201
Gambrills, MD, 21054
410-693-0280
mayberryphysio@gmail.com
http://physiofitnesspt.com/
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Community clinic within a Pilates studio focusing on comprehensive rehab
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William (Rob) Satriano, PT, DPT, CMTPT, MLDT
Chronic Pain Management, Trigger Point Dry Needling, Myofascial Release, Rehabilitative Yoga and Pilates Training
Practice / Clinic 1
Bethesda Physiocare
4405 East West Highway #403
Bethesda, MD 20814
http://www.bethesdaphysiocare.com
Practice / Clinic 2
Rob Satriano Physiotherapy
1421 Clarkview Rd. #206
Baltimore, MD 21209
http://www.robsatriano.com
443-465-9364
rob@robsatriano.com
Type of clinic:
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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ob brings a unique perspective to discussions about physical therapy, exercise, health and wellness. During medical school at the University of Maryland, he began researching the myofascial system and its profound influence on movement and function. That led him outside the boundaries of traditional medicine. Today, his holistic approach incorporates a broad range of both conventional and alternative therapies.
He has treated people of all ages with orthopedic, neurologic and chronic pain/anxiety disorders. And worked with professional athletes, members of the United States Special Forces and Black Ops, and performing artists at the Kennedy Center and Hippodrome. Along the way, Rob has developed a reputation for thinking outside the box — which makes him a sought-after teacher, thinker and practitioner.
Above all, Rob believes in treating the whole patient — and that the heart of healing lies in an ability to listen, see and perceive more than the application of one particular technique or philosophy.
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Eric Singman, MD PhD
Neuro-ophthalmology
Wilmer General Eye Services @ Johns Hopkins Hospital
General Eye Services Division, Wilmer B-29
600 N. Wolfe St.
Baltimore, MD 21287
https://www.hopkinsmedicine.org/profiles/results/directory/profile/3740277/eric-singman
410-955-5080
esingma1@jhmi.edu
Hospital affiliations:
- Johns Hopkins Hospital
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I host the Vision after Brain Injury Clinic at the Wilmer Eye Institute. In that capacity, I see many patients with Ehlers Danlos Syndrome because it appears that these patients are more susceptible lasting effects of brain injury by virtue of the fact that they are more fragile.
Starting July 2018, we will also develop a vision clinic specifically devoted to patients with EDS and similar diseases. This clinic will be hosted by myself and Dr. Jefferson Doyle, a pediatric ophthalmologist who also has a PhD in the study of Marfan's Disease.
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Anne Wellington-Goldsmith, PT, MPT
Physical therapy
Arthritis and Rehabilitation Therapy Services / Arthritis and Rheumatism Associates, P.C.
2730 University Boulevard West
Suite 714
Wheaton, MD 20906
http://www.arapc.com/
301-942-2520
awellington@arapc.com
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I am the Executive Director of Rehabilitation for Arthritis and Rehabilitation Therapy Services (A.R.T.S.) which is a subdivision of Arthritis and Rheumatism Associates, P.C. We have six offices in Montgomery County, Washington D.C. and Frederick. We have 22 physicians, 14 physical therapists and one physical therapist assistant. Because A.R.T.S. is associated with a rheumatology practice, we get a lot of patients that have joint hypermobility and EDS. As a result, I have developed a comprehensive program for managing this, and have had great success with patients, and teaching them how to best manage their condition!
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Russell Rothenberg, MD
Rheumatology
Russell Rothenberg, MD, Chtd.
10215 Fernwood Road, Suite 401
Bethesda, MD 20817
United States
http://www.russellrothenbergmd.com/
301-571-CARE (2273)
Dr.R@RussellRothenbergMD.com
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My medical practice focuses on Primary Care Rheumatology and Internal Medicine and Rheumatology Consultations. I have a special interest in patients with Fibromyalgia Syndrome and musculoskeletal pain, Ehlers Danlos Syndrome and difficult to diagnose and treat Rheumatology and Internal Medicine patients. My practice approach offers comprehensive, patient friendly medical practice services. I really enjoy treating my patients with an emphasis on optimizing their health; which to me means minimizing disease and helping them reach their personal goals in life. I focus on preventive care to keep patients as healthy as possible. I strive to give each patient the time and attention needed to assess and understand their medical issues, answer questions and determine a treatment plan that is individualized for them. I'm not afraid of difficult cases. I enjoy the challenges of complicated and difficult to diagnose medical cases. I like taking the pieces of your medical puzzle and making sense of it. I love what I do and I really enjoy my patients. Most of my patients have been with me for many years. I try to be available to my patients and to empower them to be part of the medical team.
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Chelsea Whitaker, MS occupational therapy
Occupational Therapy on horseback, service dog training
Practice / Clinic 1
Taking The Lead, Inc.
21000 Slab Bridge Rd
Freeland, MD, 21053
http://www.takingthelead.org
443-690-1176
Info@takingthelead.org
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Ride horses and improve symptoms with occupational therapy!
I am an occupational therapist and a dog trainer who helped begin a non-profit animal-assisted therapy program using an 80 farm. I specialize in working with individuals affected by EDS, Autism, and balance and learning disabilities.
Siblings, Tim and Kelly (5 and 9) with Ehlers-Danlos Syndrome (hypermobility type) ride in Taking The Lead, Inc.'s Occupational Therapy on Horseback program. Her son and daughter go through various balance and joint strengthening exercises on the horse while maintaining proper joint alignment under the support of an occupational therapist and a team of balance assisants. All of our patients acquire a home exercise program from the therapist so that gains continue and translate at home.
The main benefits of participating in Occupational Therapy on Horseback for adults and children include improved balance, coordination, endurance, and an awareness of maintaining joint alignment.
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Alissa Zingman, MD MPH
Musculoskeletal Preventive Medicine
PRISM Spine and Joint
1010 Wayne Ave
Silver Spring, MD 20910
http://www.prismspineandjoint.com
240-600-0177
drzingman@prismsj.com
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Welcome to P.R.I.S.M. Spine and Joint, a new kind of musculoskeletal medicine practice. We know that an active lifestyle is the key to good health, and we help you achieve your goals by finding and treating the root cause of your pain or weakness. We focus on bringing the level of care received by professional athletes to patients with hypermobility. We rehabilitate with you and teach you to care for your body and prevent future injuries. The P.R.I.S.M. team takes a head-to-toe, non-operative approach to maximizing your recovery and performance.
We offer cutting edge Western and Eastern Medicine including:
- Non-operative Orthopaedic Care
- Corrective Integrated Neuro-Kinetics (CINK)
- Muscle Activation Techniques
- Dynamic Neuromuscular Stabilization
- Osteopathic/Chiropractic techniques
- Craniosacral techniques
- Acupuncture and Dry Needling
- Visceral Mobilization
- Pilates
- Pelvic Floor Physical Therapy
- Injections including steroids, PRP and Prolotherapy
- Pediatric Services
Your plan is customized based on your needs, endurance, and availability and can include IV fluids if needed. Visit our website for more information.
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Kenneth Fish, DO, D.C.
DO (China Medical College, Taichung Taiwan) , D.C. (N.Y. 2000)
Wellsprings Chiropractic
937 Russell Avenue
Suite B
Gaithersburg, MD 20879
website
301-519-1881
wellspringsclinic@yahoo.com
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My practice is focused on manual and rehabilitative therapies, primarily OMT. Treatments usually include gentle deep muscle work, manual manipulative therapy, Pilates based rehabilitative exercise, and other physical therapies. In treating EDS and hypermobility patients the approach is first to relieve pain, then to work towards stability and neuromuscular rehabilitation. It is my belief that patients should be shown how to care for their symptoms and joint issues to the greatest extent possible so that they can live independently.
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Elizabeth Tousley, Personal trainer, movement specialist, RN
Hypermoblity syndrome, EDS, chronic pain, arthritis, movement issues
Revitalize Motion
12408 Bobbink Ct
POTOMAC, MD 20854
http://www.revitalizemotion.net
240-210-6242
estousley@gmail.com
Professional Boards and Affiliations:
- Registered Nurse
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I have been working with people with hypermobility and Ehlers-Danlos Syndrome for over 15 years. I have found that the combination of Neurokinetic therapy to unravel the dysfunctional movement patterns followed by Ki-Hara resisted stretching to strengthen both concentrically and eccentrically is very effective for this particular population. These techniques are easily adapted to meet each individual's needs. Every body is unique and needs to be treated as such! I particularly enjoy the challenge of working with people with complex issues such as hypermobility syndrome. I want to help more people get out of pain and be able to enjoy an active lifestyle.
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Michael Epstein, MD
Gastroenterology, Internal Medicine
Digestive Disorders Associates
621 ridgely ave suite 201
Annapolis, Maryland 21401
http://www.dda.net
410-224-4887
michael.epstein@dda.net
Professional Boards and Affiliations:
- Internal Medicine
- Gastroenterology
Hospital Affiliations:
- Anne Arundel Medical Center
- Doctors Community Hospital
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We have been in practice since 1990. Recently I have diagnosed several individuals with EDS and HCS, After researching the topic I have begun to put together a group of physicians who are interested in treating this spectrum of disorders and giving proper care. We are still learning but very interested in helping these patients through diagnosis and education. This began after I found that there was not a great deal of help or physicians available to care for the patients with this illness including the GI symptoms and POTS and MCAS and nutritional problems.
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Reshma Rathod, PT
Physical Therapy, Dry Needling
Restore Motion
5410 Edson Lane
Suite 350
Rockville, MD 20852
https://www.restoremotion.com
301-881-9313
info@restoremotion.com
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We are a physical specializing in musculoskeletal pain including pelvic floor dysfunction for adults and pediatrics of all levels of activity.
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Stephanie Bloom, PT
Manual Therapy, EDS, Hypermobility
Restore Motion
5410 Edson Lane
Suite 350
Rockville, MD 20852
https://www.restoremotion.com
301-881-9313
stephanie@restoremotion.com
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Restore Motion is a physical therapy clinic specializing in treating the whole person holistically to help them acheive their best function. We utilize many different manual therapies including muscle energy, myofascial release, dry-needling, visceral mobilization, neural manipulation, as well as joint and soft tissue mobilization to help each individual move freely. We also focus on Pilates based exercises to improve core trunk stability which is essential to balance the body with hypermobility.
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Kristina Hsieh, DPT
Pelvic Floor
Restore Motion
5410 Edson Lane
Suite 350
Rockville, MD 20852
https://www.restoremotion.com
301-881-9313
kristina@restoremotion.com
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RESTORE MOTION was founded to support the philosophy of "Excellence in care, excellence in outcomes" and the goal of healing the whole person. Over a decade later, we are gratified by the success we have achieved and the difference we have made – both in our client's lives and in our physical therapy profession. Our founders have sought out talented, forward-thinking professionals who share our philosophies and goals to join the RESTORE MOTION team. Together, we have been happily and systematically improving the quality of life for thousands of clients.
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Jennifer Christophel, LMT, MAT, NCPT
Licensed Massage Therapist
The Balanced Body Studio & Wellness Center
1114 Edson Lane
Rockville, MD 20852
https://www.balancedbodystudio.com
8142426418
Balancedbodystudio@me.com
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Specializing in EDS/Hypermobility disorders. Offering services in Massage Therapy, Pilates, Personal Training, Corrective Exercise, Muscle Activation Techniques, Functional Movement Screening and Techniques and NeuroKinetic Therapy.
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Ariel Ross, PT, DPT
Physical Therapy
Rooted Physio & Performance
7571 Weather Worn Way
Columbia, MD 21046
https://www.rootedphysioperformance.com
4436714116
Info@rootedphysioperformance.com
Professional Boards & Affiliations:
- Licensed Physical Therapist
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At Rooted Physio & Performance, we strive to get you back to the activities you love with less pain. We are a mobile physical therapy, yoga, and performance training company. We provide in-home physical therapy services and are in out of network provider. We are based in Columbia, MD and travel within a 30 minute radius of us. We treat each patient individually and holistically with the use of mindfulness practice to help address chronic pain. We are also manual therapy enthusiasts and offer pelvic floor PT.
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Patricia Hays, PT, DPT
Pelvic Floor, Manual Therapy, Hypermobility
Indigo Physiotherapy
600 Wyndhurst Ave. Suite 102
Baltimore, Maryland 21210
trish@indigophysio.com
4106013991
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We are a manual therapy practice specializing in the treatment of pelvic floor dysfunction. In addition, we specialize in treating joint hypermobility disorders as it relates to orthopedic conditions, pelvic floor conditions and general wellness and function. We utilize a combination of modalities including muscle energy technique, joint mobilization, cranio-sacral therapy, visceral mobilization, neuromuscular reeducation and therapeutic exercise in order to facilitate patient healing in a holistic manner. On staff, we have 3 physical therapists, 2 massage therapists and a cranio-sacral therapist. In addition, our yoga and movement specialists have experience in working with and addressing the unique needs of our hypermobile clients.
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Madeline Goldberg, PT, DPT
Physical Therapy, Pilates
One. Physical Therapy, Fitness, and Wellness
914 Bay Ridge Road
Suite 212
Annapolis, Maryland 21403
atthecorept@gmail.com
410-280-0914
Professional Boards & Affiliations:
- Board Certified Physical Therapist
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One. Is a small, private, women owned and operated physical therapy wellness practice in Annapolis.
With our science, researched based, individualized, tailored treatment plans, designed to get at the root cause of your injury, not just to treat your symptoms, you are our entire focus during our private one on one sessions.
One. is dedicated to bringing together the best and brightest physical therapists, alternative therapists and exercise specialists ⎯ all in one location ⎯ enabling you to receive total care for all your wellness and fitness needs.
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Massachusetts
Laura Kragie, MD
Translational Medicine
EndoHealth MD
464 Common St #125
Belmont, MA 02478
http://www.laurakragiemd.com/
(978) 806-4053
endohealth@gmail.com
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Dr. Kragie is trained in multiple specialities. In addition to Internal Medicine, she knows Endocrinology, Neuroscience, Cardiology, Nephrology, Immunology, Molecular Medicine/Genetics, Clinical Pharmacology and Addiction Medicine. She is adept and current with the cutting edge of medicine, usually 10-20 years ahead of the standard of practice.
At this time (it may change in the future), she is only providing telemedicine remote patient consultations via Skype or Google Hangout. She will not give out prescriptions but will recommend medications and therapies that can be shared with the patient's healthcare team. Most important, all information is strictly confidential – nothing is shared with corporations or government agencies. The patient has full control over who sees their data and reports and to whom Dr. Kragie may discuss the patient's care.
"I dedicated my life to learning, teaching and researching medicine. My path has been unique, winding through laboratories as well as clinics and wards. Nowadays, I am called a "Translational Medicine" doctor because I 'translate' new discoveries in order to bring them to the patient's bedside."
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Jeff Milunsky, MD
Clinical Genetics, Molecular Genetics
Center for Human Genetics
840 Memorial Drive
Suite 101
Cambridge, MA 02139
http://www.chginc.org
617-492-5106
jmilunsky@chginc.org
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Dr. Jeff Milunsky specializes in the evaluation, diagnosis, and management of genetic connective tissue disorders including EDS. He evaluates patients of all ages. He is also an expert in genetic testing variant interpretation. A summary of the evaluation along with management recommendations are provided to the referring provider with a copy to each patient.
When contacting the clinic, always ask to be placed on the cancellation list.
All major insurance is accepted.
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Laurie Bilyeu, RD
Nutrition
Connection Nutrition
171 Barnard Rd
Shelburne, MA 01370
http://www.connectionnutrition.org
617-645-3147
lkbilyeu@gmail.com
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Nutrition counseling via telehealth to help address complications of EDS, POTS, MCAS, Gastroparesis and others.
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Aubrey Milunsky, MD, D.Sc
Clinical Genetics, Internal Medicine, Pediatrics
Center for Human Genetics
840 Memorial Drive, Ste 101,
Cambridge, Massachusetts 02139
http://www.chginc.org
617-492-7083
amilunsky@chginc.org
Professional Boards & Affiliations:
- American Board of Medical Genetics
- American Board of Pediatrics
- Royal College of Physicians [Internal Medicine and Pediatrics]
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Decades of experience in medical genetics. Previously Professor of Human Genetics, Pediatrics, OB/Gyn at BU School of Medicine, now at Tufts University School of Medicine. Author or Editor of 27 books. Founder and Co-Director of the Center for Human Genetics. BU named the Aubrey Milunsky Chair in Human Genetics.
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Alyssa Bissonnette, PT, DPT
Physical Therapy
Bay State PT-Needham
145 Rosemary Street, Building K
Needham, MA 02494
http://baysatept.com/Needham
339-201-3009
needham@baystatept.com
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Outpatient stand alone clinic with no specific hospital affiliations. Experience with treating HSD/EDS for more than 8 years. Clinic accepts all major health insurances including masshealth. Open 8-8 Monday-Thursday and 8-6pm on Fridays.
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Laura Peterson, LMT, MPA
Manual Therapy, Myofascial, NeuroMuscular, Lomi Lomi
Integrative Medical Massage
708 Route 134
Suite 5
South Debbis, MA 02664
https://mermaidmassage.wixsite.com/capecodmassage
7742125725
laurampeterson@comcast.net
Professional Boards & Affiliations:
- ABMP, Commonwealth of MA Massage Therapy
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Small private massage practice specializing in medical massages.
Located on Cape Cod since 2009, business practice is licensed and insured.
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Michigan
Lawrence Prokop, DO
Physical Medicine & Rehabilitation
MSU Musculoskeletal Rehabilitation
2815 S. Pennsylvania Ave.
Suite 2
Lansing, MI 48910
517-975-1450
prokop@msu.edu
Hospital affiliations:
- McLaren Greater Lansing, Lansing MI 48911
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My clinic specializes in musculoskeletal and neurologic pain and mobility deficits.
We have treated patients with EDS to decrease the hypermobility of the joints with prolotherapy.
We utilize therapeutic exercise and Osteopathic Manipulative Medicine to improve muscle balance and movement.
We have seen significant improvement in the chronic hypermobility, pain and mobility deficits these patients have by treating them with these techniques.
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Adam Rush, MD
Physical Medicine & Rehabilitation, Pediatrics, Pediatric Rehabilitation Medicine, Pain Medicine
Grand River Rehabilitation LLC
412 Plymouth Ave NE
Grand Rapids, MI 49505
http://grandriverrehab.com
6167802324
info@grandriverrehab.com
Hospital Affiliations:
- Spectrum Health
- Trinity Health
- Mary Free Bed Rehabilitation Hospital
Professional Boards & Affiliations:
- ABPMR
- ABP
- ABPM
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Grand River Rehabilitation provides care over the lifespan to persons with physical, developmental, cognitive, and neurobehavioral disabilities
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Minnesota
Shanda Dorff, MD
Family Medicine
Complex Cares, LLC
4700 Lexington Ave N
Shoreview, MN 55126
http://www.ComplexCaresMN.com
651-756-9596
Info@ComplexCaresMN.com
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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I offer many cares and evaluations remotely via telemedicine and may do house calls if needed for patients not able to travel/visit the clinic. I perform initial evaluations, provide long term cares and management of EDS as well as other associated conditions (including but not limited to mast cell diseases, dysautonomia, POTS, SIBO, etc). I opened my own practice after discovering the limited availability/access to cares for these conditions which I have adored learning and working with for many years. I especially love the complexity and challenge followed by seeing the great transformation in patients when able to get things under control.
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Elizabeth Gilles, MD
Pediatric Neurology
Child Neurology Solutions, PLLC
360 Sherman Street
Suite #399
Saint Paul, MN 55102
http://ChildNeurologySolutions.com
651-356-6080
office@neurosolns.com
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I am a child neurologist who specializes in working with children and young adults (into 20's) with complex neurologic and medical issues. I diagnose and treat patients with EDS.
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Kathleen Hopkins, DO
Board certified in Family Practice, Certified Functional Medicine Practitioner
Olos Integrative and Functional Medicine
8545 Ann Marie Trail
Inver Grove Heights, MN 55077
drkathopkins.com
612-412-5130
olos@drkathopkins.com
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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Please see website for details. I have a significant portion of my patient population that suffers from the triad of POTS, EDS and MCAS.
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Anna McConville, PT,DPT, PNE, CSTHTTP
Physical Therapy
Replenish Wellbeing
4014 Russell Ave N
Minneapolis, MN 55412
http://www.Replenishrestore.com
612-394-6658
anna@replenishrestore.com
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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Anna McConville PT, DPT, CS, PNE owns a small Wellness Clinic specializing in Chronic Pain, Ehlers Danlos and stress related conditions. Anna, who has Ehlers Danlos herself, has out necessity, discovered options that have enhanced her life and minimized pain. She is certified in Craniosacral and Viseral therapy, Pilates, Heartmath, Pain Neuroscience and Movement Therapies. She's combines one to one visits with tele-health care for those that aren't able to come to clinic and offers shared group visits in person or online to decrease costs and provide the benefits of group learning. She utilizes The Muldowney method for care as well as specific programs that uniquely benefit each client.
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Susan Sencer, MD
Hematology, Oncology, POTS, Hypermobility
Cancer and Blood Disorders Program, Children's Minnesota
2530 Chicago Ave S
Minneapolis, MN 55404
http://www.childrensmn.org
612-813-5940
susan.sencer@childrensmn.org
Hospital affiliations:
- Children's Minnesota
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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I am primarily an oncologist and hematologist so care for individuals with EDS because of the increased bleeding issues. I became more invested and engaged in the field when my child developed POTS, which I learned was related to his hyper mobility.
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Anna McConville, PT, DPT, PNE, CSTHTTP
Physical Therapy
Replenish Wellbeing
4014 Russell Ave N
Minneapolis, MN 55412
United States
http://www.replenishrestore.com/
6128450707
anna@replenishrestore.com
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Anna McConville PT, DPT, CS, PNE owns a small Wellness Clinic specializing in Chronic Pain, Ehlers Danlos and stress related conditions. Anna, who has Ehlers Danlos herself, has out necessity, discovered options that have enhanced her life and minimized pain. She is certified in Craniosacral and Viseral therapy, Pilates, Heartmath, Pain Neuroscience and Movement Therapies. She's combines one to one visits with tele-health care for those that aren't able to come to clinic and offers shared group visits in person or online to decrease costs and provide the benefits of group learning. She utilizes The Muldowney method for care as well as specific programs that uniquely benefit each client.
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Rita White, DPT
Physical Therapy
Intrinsic Physical Therapy
4450 Nicollet Ave S.
Minneapolis, MN 55419
http://www.intrinsic-pt.com/
612-440-8455
ritawhite@intrinsics-pt.com
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I opened Intrinsic Physical Therapy in order to better serve those with EDS and associated syndromes such as POTS and MCAS. I provide customized, integrative physical therapy to address all facets of chronic illness with specialities in chronic pain management and pelvic floor physical therapy. I utilize pain neuroscience education, manual therapy including visceral manipulation, and stabilization protocols as well as health coaching to provide a holistic approach to healing. I have the triad of hEDS, MCAS, and POTS myself and my goal is to provide a more compassionate and understanding rehabilitation experience for those also experiencing these diagnoses.
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Aubrey Milunsky, MD, D.Sc., FRCP, FACMG, DCH
Medical Genetics, Internal Medicine, and Pediatrics {Triple Boards}
Center for Human Genetics
840 Memorial Drive, Ste 101
Cambridge, MA 021395
http://www.chginc.org
617-492-7083
amilunsky@chginc.org
Professional Boards and Affiliations:
- American Board of Medical Genetics
- American Board of Pediatrics
- Royal College of Physicians, England (Internal Medicine)
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Founder and now Co-Director of the Center for Human Genetics which has provided genetic services for 38 years. Clinical genetic diagnostic evaluations, genetic counselling, prenatal diagnosis and laboratory testing of many different single gene and chromosomal disorders, as well as research , are the primary goals of the Center. We especially see patients seeking diagnosis for a suspected connected connective tissue disorder such as the Ehlers-Danlos syndrome. Our laboratories, accredited by the College of American Pathology, offer a special diagnostic panel of genes focused on the Ehlers-Danlos syndrome, Marfan syndrome, Aneurysms, osteogenesis imperfecta, and other disorders. We see hundreds of patients each year, especially for diagnosis and management of the connective tissue disorders. Patients come for consultations from all New England states, and many more distant states. In addition to hundreds of peer-reviewed scientific papers we have published in prestigious journals, we write & edit the world's major reference book entitled Genetic Disorders and the Fetus: Diagnosis, Prevention and Treatment, the 8th edition , approximating 1400 pages, to be published in March 2021.
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Jessica Ovans, PT
Pediatrics, hemophilia, hypermobility
Childrens Minnesota
2530 Chicago Ave S
Minneapolis, Minnesota 55404
https://www.childrensmn.org/
612-813-5940
Jessica.ovans@childrensmn.org
Professional Boards and Affiliations:
- Minnesota physical therapy board
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I collaborate with providers to develop a plan for you. You will receive a thorough assessment, education and plan. I can work with local your PT with a functional emphasis, provide care at childrens minneapolis, or provide telehealth.
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Kayla Calhoun, DPT, CSCS
Performing Arts Athletes, Pelvic Health, Chronic Pain
Courage Kenny Sports and Physical Therapy
8811 92nd St. S.
Suite 101
Cottage Grove, MN 55106
https://account.allinahealth.org/locations/866
6512413777
kayla.calhoun@allina.com
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I specialize in Ehlers Danlos Syndrome/hypermobility, performing arts athletes (specifically figure skaters), chronic pain, pelvic health including incontinence and pelvic pain, and spine. Our bodies are all interconnected and these specialty areas help me to treat the whole person. Part of treatment is getting treating the whole person with empathic and compassionate care.
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Alysse Cruz, MD
Family Medicine
Allina Blaine Clinic
10705 Town Square Dr NE
Suite 100
Blaine, MN 55449
https://account.allinahealth.org/locations/48
763-236-5400
Hospital Affiliations:
- Abbott NorthWestern Hospital
- Unity Hospital
- Unity Hospital – Mercy Campus
Professional Boards and Affiliations:
- ABFM
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I provide care for full-spectrum care to all ages and conditions along with general in clinic procedures. As a person with hEDS myself, I continue to seek the most up to date research for diagnosis and to provide care for zebras in all aspects of their lives.
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Libby Larson Judy, DC
Chiropractic, Manual therapies, Dryneedling/Acupuncture, Personal Injury
Touch of Health Wellness Center
10417 Excelsior Blvd, Suite 3
Hopkins, MN 55343
http://www.touchofhealthwellness.com
9529228895
drlklarson@gmail.com
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Dr. Larson has been in practice since 2008, opening her own practice in 2010. She started working with Dr. Shanda Dorff, MD in 2012. That was her first exposure to EDS. Shortly after starting to work with Dr. Dorff, Dr. Larson's adopted sister was diagnosed with EDS after lifelong chronic pain and health complications. Her sister had been one of the driving factors in going into chiropractic in the first place. From then on, she started learning more and more about EDS to be able to better care for her sister and others that Dr. Dorff referred to her. Over the last several years, a large portion of her practice has been dedicated to offering care to Zebras that they are unable to get with other chiropractors due to general lack of knowledge of EDS within the chiropractic and medical communities.
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David Tilstra, MD, MBA
Medical Genetics
CentraCare
1900 CentraCare Circle
St. Cloud, MN 56303
tilstrad@centracare.com
3206543654
Hospital Affiliations:
- St. Cloud Hospital
Professional Boards & Affiliations:
- American Board of Medical Genetics
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CentraCare Genetics clinic provides services to adults and children with genetic disorders.
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Amber Lieser, APRN, CNP
APRN, CNP
CentraCare Genetics Clinic
1900 Centracare Cir
St.Cloud, Minnesota 56303
https://www.centracare.com/locations/centracare-plaza-clinic-genetics/
3202522422 Ex73685
Amber.Lieser@centracare.com
Hospital Affiliations:
- CentraCare
Professional Boards & Affiliations:
- American Association of Nurse Practitioners
- American Nurses Credentialing Center
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CentraCare Health Plaza provides comprehensive, personalized Primary Care and state-of-the-art Specialty Care.
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Missouri
Jennifer Cumming, PT, WCS, CLT
Physical Therapy, Pelvic Floor Physical Therapy, Lymphedema Therapist
Foundational Concepts
601 E 63rd St
Ste 230
Kansas City, Missouri 64112
http://www.foundationalconcepts.com
816-569-2802
info@foundationalconcepts.net
Professional Boards & Affiliations:
- Women's Health Certified Specialist with ABPTS
- Certified Lymphedema therapist
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Foundational Concepts is a physical therapy clinic specializing in pelvic health in the Kansas City metro. We have been seeing patients with hypermobility since we opened in 2013. Sarah Dominguez and Jennifer Cumming have both been practicing pelvic health PT since 2001. We often are the first providers to educate our patients about hypermobility and help them to find other health care providers to round out their team. Due to the many manifestations of EDS and hypermobility on pelvic health, we are able to play an integral part in our patient's health and well-being. We see patients in a one-on-one setting in private rooms for an hour each session. This allows us the time to build a rapport with our patients and give them the education that they need to take care of their bodies and to advocate for their health.
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Sarah Borisky, RDN LDN
Registered Dietitian Nutritionist
Nourished with Sarah, LLC
326 SE Douglas St., Suite B,
Lee's Summit, MO 64063
sarah@nourishedwithsarah.com
(816) 524-5432 x 83
Professional Boards & Affiliations:
- Kansas Academy of Nutrition and Dietetics
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Registered Dietitian Nutritionist at ReNourish located in Lee's Summit, Missouri (USA). Providing medical nutrition therapy and nutrition counseling for those with eating disorders or disordered eating, and those with chronic illness or other nutrition concerns. Practice philosophy is from a Health-At-Every-Size, weight-inclusive approach. Telehealth is offered as well as in-office appointments. Licensed in Missouri and Kansas (USA).
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Montana
Kate Skinner, DPT
chronic pain, hypermobility, Ehlers Danlos, abdominal adhesions, visceral manipulation, back pain, neck pain
Great Divide Physical Therapy
2819 Great Northern Loop Ste 300
Missoula
Missoula, MT 59808
http://www.greatdividept.com
406-317-1121
kate@greatdividept.com
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Great Divide Physical Therapy was started to focus on clients with chronic pain and complex conditions who have not succeeded elsewhere. We have extensive training in working with chronic pain, autoimmune disorders, hypermobility, spinal dysfunction, and abdominal adhesions and pain dysfunction that all impact someone's ability to move and quality of life. We work from a wholistic perpective treating the whole person and their specific circumstances as well as looking at how their systems function together. We work in collaboration with other providers and specialities to ensure our clients receive high quality care. My personal journey with hypermobility has given me a unique perspective on both how to treat this condition and how the medical community works with this condition. I am passionate about changing this dynamic to improve an individual's experience in healthcare and provide options for clients to not only improve but thrive.
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Sarah Stewart, MD
Family Medicine
St. Vincent Healthcare North Shiloh Family Medicine
2223 Mission Way
Billings, MT 59102
406-237-8989
sarah.m.stewart@sclhealth.org
Hospital affiliations:
- St. Vincent Healthcare
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Our practice is a Family Medicine clinic comprised of 3 physicians and 2 physician assistants. I have a personal interest in EDS and generalized hyper-mobility. I am working towards providing guidance and help for patients with hyper-mobility spectrum diseases.
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Heather Schwab, PT
hypermobility, chronic pain
St. Johns United Outpatient Therapy
2223 Mission Way
Billings, MT 59102
hschwab@sjlm.org
406-655-5246
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We are an outpatient clinic. I have been a PT since 2001 and have hypermobility myself. Myself as well as my PTA co-worker have been involved in ongoing EDS Echo webinars for a couple years now. We get many referrals for EDS patients.
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Nevada
Scott Glickman, DO FACOS
Neurosurgery
Center for Neurosurgery – Las Vegas
3012 S Durango Dr
Las Vegas, NV 89117
http://www.cnslv.com
702-929-8242
cnslv.contact@gmail.com
Hospital affiliations:
- Mountainview Hospital
- Centennial Hills Hospital
- Valley Hospital Medical Center
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CNSLV is a full service neurosurgery practice located in Las Vegas, Nevada dedicated to the care of complex neurosurgical problems of the brain and spine. Patients are evaluated by physicians and a plan for treatment formulated involving medical and surgical avenues to optimally treat their problem. A significant portion of the patients treated have had prior operations requiring revision. Our practice addresses patients with spinal biomechanical disorders including craniocervical junction and lumbopelvic instability, intracranial pathologies, pain eliciting conditions, acute and post-traumatic injuries, tumors of the brain and spinal column and cord, problems with cerebrospinal fluid flow and homeostasis, and movement disorders.
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New Hampshire
Latasha Konopka, LMT
Clinical Massage Therapy
Tangled Limbs, Clinical Massage for Children and Adolescents
5 Northern Blvd
Box 1605
Amherst, NH 03031
http://www.tangledlimbs.net
603-345-0400
TangledLimbsTherapy@gmail.com
Professional Boards & Affiliations:
- AMTA
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Tangled Limbs llc is a small private office. My passion is to support the well-being of children and adolescents feeling burdened by PTSD/CPTSD, depression, ADHD, ASD, sensory dysfunction, touch aversion, headaches, insomnia, RLS; and chronic pain, particularly pain associated with postural deviations and hypermobility disorders like Ehlers Danlos Syndrome. I consider my work supplemental to the therapies of other health professionals; and with a tailored treatment plan, I believe it improves the lives of an under-served population. I utilize Neuromuscular Therapy, Sports, Trigger Point, Myofascial Release, Lymphatic, and Reflexology in an integrated modality that engages the body's own self-healing processes. To achieve a successful outcome, I provide every client with individualized assessments, targeted and nurturing treatments, home-maintenance guidance, collaboration with a primary care provider or other healthcare professionals, and/or referrals to other qualified practitioners as needed. I would like to reach more of the under-served young souls with EDS in my area because my personal experience with Hypermobility Disorder empassions me to pay forward.
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New Jersey
Richard Anderson, MD
Neurological Surgery
Practice / Clinic 1
Department of Neurosurgery, Columbia University
710 West 168th Street
New York, NY 10032
http://www.columbianeurosurgery.org
Practice / Clinic 2
Neurosurgeons of New Jersey
1200 East Ridgewood Ave
2nd floor
Ridgewood, NJ 07450
http://www.neurosurgeonsofnewjersey.org
212-305-0219
rca24@columbia.edu
Hospital affiliations:
- New York Presbyterian Hospital, Columbia University
- Morgan Stanley Children's Hospital of New York
- St. Joseph's Children's Hospital
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Dr. Richard C.E. Anderson is one of the leading pediatric neurosurgeons in the tri-state region. He specializes in the surgical treatment of pediatric brain and spinal tumors, complex spinal disorders (including tethered spinal cords, scoliosis, and instability), spasticity, craniosynostosis, Chiari I malformation, vascular disorders (including arteriovenous malformations, cavernous malformations, and Moyamoya disease), hydrocephalus, and general pediatric neurosurgery. Dr. Anderson extensively tests and utilizes the latest proven techniques in pediatric neurosurgery, including computer-guided surgical navigation, minimally invasive endoscopy, and microsurgery. Dr. Anderson's clinical research efforts focus on surgical techniques and biomechanics of the pediatric cervical spine. He has published over 150 neurosurgical papers and book chapters for the Journal of Neurosurgery: Pediatrics, Neurosurgery, Clinical Immunology, the Journal of Immunology, PLOS ONE, BMC Cancer, and others. He participates actively in organized pediatric neurosurgery efforts and is currently on the executive committee of the AANS/CNS Joint Section on Pediatric Neurosurgery.
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Sara Ferruzza, DPT, CSCS
Physical therapy, rehab medicine, strength and conditioning, performance PT, pediatrics
Perfect Ten Physical Therapy
27 Law Drive
Upstairs Unit
Fairfield, NJ 07004
http://www.perfecttenpt.com
973-556-8465
info@perfecttenpt.com
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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Perfect Ten PT is a private practice clinic. We work with patients one on one to maximize function through movement training and manual therapy. We utilize principles of dynamic neuromuscular stabilization to improve motor control in patients with hyper mobility and help move them along the spectrum from rehab to performance. We help patients create individualized treatment plans for both in the clinic at home and tailor their treatment to their goals and needs.
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Bonnie Nasar, RD
Nutrition, Dietetics, EDS, POTS, Mast Cell Diseases
Nasar Nutrition
301 Professional View Drive
Freehold, NJ 07728
https://nasarnutrition.com
732-481-2632
NasarNutrition@gmail.com
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I am a registered dietitian nutritionist with a private practice specializing in EDS, POTS, and Mast Cell Diseases. I have a local office in NJ and also accommodate out of state patients via a HIPAA compliant online platform.
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Jennifer Penston, MS, PT
Physical Therapy, Pediatric Clinical Specialist, EDS, Hypermobility Spectrum Disorders
Children's Hospital of Philadelphia
Specialty Care Center
101 Plainsboro Rd
Plainsboro, NJ, 08536
https://www.chop.edu/centers-programs/physical-therapy
(215)590-5819
penstonj@email.chop.edu
Hospital affiliations:
- Children's Hospital of Philadelphia
- Hospital of the University of Pennsylvania
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We are a specialist clinic for connective tissue disorders including but not limited to EDS and Hypermobility Spectrum Disorders. All therapists in this clinic are trained specifically in CT disorders, examination, and treatment strategies. We consult with pediatric patients aged 3-19 with diagnosed or suspected connective tissue disorders and offer evidence based recommendations and joint protection strategies. We also instruct patients and families in age appropriate, individualized home exercise programs with an emphasis on self awareness and self management of this life long condition. Where appropriate we will offer individual treatment sessions or consult with local therapists to ensure our patients who live further away receive appropriate management.
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Bao Chau Tran, MD
Anesthesia, Pain, Functional Medicine, Regenerative Medicine, Anti-Aging, BHRT
Clinic 1
BCT Medical Associates
285 Durham Ave
SUITE 1A Bld 6
South Plainfield, New Jersey 07080
United States
Clinic 2
BCT Medical Associates
195 US Hwy 46 W
Ste 14 2nd Fl
Totowa, New Jersey 07511
United States
http://www.bctmedical.com/
7323380228
btran@bctmedical.com
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At BCT Medical, our patients get access to the latest in evolution of comprehensive and integrative concierge pain and functional medicine solutions. We can infuse your pain care with personalized wellness, anti-aging, and performance programs where we teach you to take control of your health and fine tune your physiology.
We have been successful also in treating EDS patients because of the muli-modal pain approach and the individual wellness programs we build for each patient. We will guide you through our concierge pain and perioperative services where we address your questions and concerns about your pain procedure, anesthesia, and post operative needs. On complex pain cases, we co-consult with other specialties so patients get a multispecialty, multi physician, combined and enhanced technique solutions to address pain in many areas of the body.
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Nicholas DePace, MD, F.A.C.C
Cardiology, Autonomic Dysfunction, POTS
Franklin Cardiovascular Associates, PA – Autonomic Dysfunction and POTS Center
1100 Liberty Place
Lakeside Business Park
Sicklerville, New Jersey 08081
https://franklincardiovascular.com
(856) 589-6034
Rsantiago@franklincardio.com
Hospital Affiliations:
- Thomas Jefferson Healthcare System New Jersey
- Pennsylvania Hospital/University of Pennsylvania Healthcare System
Professional Boards & Affiliations:
- Internal Medicine (ABMI)
- Cardiology (ABMI)
- Echocardiology (NBE)
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Dr. Nicholas DePace MD, F.A.C.C.is a noninvasive cardiologist who specializes in valvular heart disease management and coronary artery disease prevention and reversal (regression). He also specializes in the treatment of autonomic dysfunction, Ehlers-Danlos Syndrome and Chronic Fatigue Syndrome.. He has been practicing cardiology since 1983 and has published leading articles in the field along with co-authoring the book, The Heart Repair Manual. Dr. DePace tries to treat his patients holistically, naturally, and medically and when possible, tries to avoid bypass and other invasive procedures.
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Valerie Iovine, PT, DPT
Physical Therapy – Ehlers-Danlos Syndromes, Hypermobility Spectrum Disorders, POTs, Chronic Pain
Strive Physical Therapy and Sports Rehabilitation
500 Lippincott Dr
Marlton, NJ 08053
https://www.strivephysicaltherapy.com/marlton/
(856) 334-4100
viovine@strivephysicaltherapy.com
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Valerie is a physical therapist located in the Marlton office with Strive Physical Therapy. Valerie specializes in the conservative care of connective tissue disorders like Ehlers-Danlos and other hypermobility spectrum disorders as well as dysautonomias like Postural Orthostatic Tachycardia Syndrome. With high remarks on her empathy, she remains up to date on the scientific literature and development in the EDS and POTs communities. After completing a number of the Ehlers Danlos Society's ECHO course series, she continues to volunteer to facilitate the courses. Recognizing that each patient is in a different place in their journey of management, call for an EDS initial evaluation with Valerie at Strive.
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Arnold Pallay, MD
Medical Genetics
Atlantic Health
101 Madison Avenue
Suite 107
Morristown, New Jersey 07960
https://www.atlantichealth.org/conditions-treatments/genetic-services/personalized-genomic-medicine.html
9739717634
Arnold.pallay@atlantichealth.org
Hospital Affiliations:
- Morristown Medical Center
- Chilton Medical Center
Professional Boards & Affiliations:
- ABFM
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We are a full service Genetics group with numerous cases of EDS and other hereditary connective tissue patients in our care.
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Brianne Etter, PT, DPT
PT, DPT
Holy Name
514 Kinderkamack Rd
Oradell, NJ 07649
Better@holyname.org
2012651076
http://www.holyname.org
Hospital Affiliations:
- Holy Name
Professional Boards & Affiliations:
- FSBPT
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An outpatient clinic specializing in orthopedic, neurologic, and vestibular disorders. We offer Physical, occupational, and speech therapy.
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New Mexico
W. Gregory Rose, Owner
Cosmetic Dentistry, Invisalign, Teeth Whitening, Composite Bonding, Crowns, Bridges, Veneers, Implants, Dentures, TMJ / TMD, Sleep Medicine
W. Gregory Rose DDS, PA
4550 Eubank Blvd NE Suite 201
Albuquerque, NM 87111
https://www.wgregoryrosedds.com/
505-296-5544
wgrosedds@aol.com
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Established in 1973, W. Gregory Rose DDS, PA provides advanced cosmetic dentistry in Albuquerque. We are committed to improving the health and aesthetics of your smile. Our state-of-the-art cosmetic dental practice specializes in smile makeovers to give you a smile you've always wanted. Cosmetic dentistry in Albuquerque not only improves aesthetics, but it can also achieve facial balance and improve bite function. We offer the latest techniques and technology available in many areas of advance cosmetic dentistry and sleep medicine.
We recognize that each case is unique, and we customize your treatment to ensure we are meeting all of your needs. For more details, call (505) 296-5544 or visit https://www.wgregoryrosedds.com/
Invisalign in Albuquerque NM
Invisalign treatment in Albuquerque NM is the clear way to straighten teeth without braces, using aligners. Aligners are removable and virtually invisible, which means you can straighten your teeth without anyone knowing; and you can still eat and drink what you want. Also, you can brush and floss normally to maintain healthy gums and teeth; and there are no wires, metal or brackets to cause mouth abrasions.
Teeth Whitenin
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Catherine Seat, DC, MS
Chiropractic, Functional Medicine, Nutrition.
Nutrition & Health Center/ Functional You
10801 Lomas Blvd NE
Ste. 100
Albuquerque, NM 87112
http://www.functionalyou.org
(505)888-6138
dr.cseat@gmail.com
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From a Chiropractic stand point, I use gentle techniques that do not incorporate high velocity low amplitude adjusting, as this can cause damage to someone with EDS. This includes using a Leander flexion-distraction table that incorporates an up and down motion starting from the waist down. This allows me to go up and down the spine using the vertebrae as levers that allow a gentle stretch in the area of focus. In addition to the Leander table, I use an Activator, which is an instrument assisted adjusting technique. This device that allows me to deliver a small impulse to an area of focus, such as with the vertebrae in the spine or a tight muscle, with the goal of restoring motion to that area.
From a Functional Medicine perspective, I treat by looking for the root cause of conditions. This includes reviewing the amount of stress, followed by organs and organ systems they are having problems with. Upon working with the patient, I research what nutritional support they may need by reviewing lab work, reading peer reviewed articles, and delving into basic anatomy and physiology. The treatment includes a personalized diet plan with supplements that are specific to each patient.
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New York
Lawrence Afrin, MD
Hematology, Oncology, Mast Cell Disease
Armonk Integrative Medicine
99 Business Park Drive
Armonk, NY 10504
914-730-7390
info@armonkmed.com
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My practice focuses principally in diagnosis and treatment of mast cell activation disease.
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Scott Bienenfeld, MD
Psychiatry, Addiction Medicine
The Recovery Spot
67 Irving Place
FL2
New York, NY 10003
http://www.recoveryspotny.com
917-446-6829
drscottb@recoveryspotny.com
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Our practice at The Recovery Spot is dedicated to treating patient dealing with psychiatric issues, addiction and chronic pain/medical problems. We provide a comprehensive approach to each patient and offer compassionate, state-of-the-art care.
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Ryan Blanch, JD, ESQ
Patient Advocacy, Doctor Referral
Blanch PC
261 Madison Avenue
12th Floor
New York 10016
United States
https://www.theblanchlawfirm.com/
2127363990
rblanch@blanchpc.com
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When our founder's family member was finally diagnosed with Ehlers Danlos, our firm made a commitment to advocate for patient rights and to help locate the right medical professionals for patients all over the U.S.
All of our services are Pro Bono. We do not charge.
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Svetlana Blitshteyn, MD
Neurology, Autonomic Disorders, Headache, Neuropathy
Dysautonomia Clinic and Amherst Neurology
PO Box 441
Getzville, NY 14068
http://dysautonomiaclinic.com
716-531-4598
admin@amherstneurology.com
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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Dysautonomia Clinic, founded by Dr. Svetlana Blitshteyn, offers comprehensive patient care to patients with POTS, NCS, OH, neuropathy, chronic headache, chronic fatigue syndrome, fibromyalgia and other related conditions to patients world-wide. We have a large patient population with Ehlers-Danlos Syndrome. We offer phone and video consultations to patients, as well as opportunities to participate in research studies, psychotherapy, nutrition consulting, health and wellness coaching and medical legal consulting services.
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Paolo Bolognese, MD
Chiari and EDS Neurosurgical Center
1991 Marcus Avenue
Suite 108
Lake Success, NY 11042
http://www.chiarinsc.com/index.php
(516) 321-2586
pbolognese@nspc.com
Hospital affiliations:
- South Nassau Communities Hospital
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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Our Physicians are Dr. Kula and Dr. Bolognese.
Along with Dr. Milhorat (now retired), we were the first Neuro specialists in the world identifying and treating Craniocervical Instability in EDS patients, more than 15 years ago.
We have performed almost 800 Craniocervical Fusions since then, more than 250 of which with the new Condylar Fixation technique..
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Jenna Cangiano, DPT
Orthopedic and neuromuscular conditions
I Heart Physical Therapy
131 West 33rd Street
14th Floor
New York, New York 10001
http://www.iheartpt.co/
212-695-0044
drjcangiano@gmail.com
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We work to help patients reduce pain and improve or restore mobility – in many cases without expensive surgery and often reducing the need for long-term use of prescription medications. We teach patients how to prevent or manage their condition so that they will achieve long-term health benefits. We examine each individual and develop a plan, using treatment techniques to promote the ability to move, reduce pain, restore function, and prevent disability. Our focus is to work with individuals to prevent the loss of mobility before it occurs by developing fitness- and wellness-oriented programs for healthier and more active lifestyles.
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Dr. Shenita Etwaroo, PhD. MS. MD
Anesthesiology
Dr. Shenita Etwaroo, MD
1468 Madison Ave
New York, NY 10029
http://www.mountsinai.org
929-200-0062
shenita2508@aol.com
Hospital affiliations:
- Duke Medical Center
- Mount Sinai Hospital
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Anesthesiology Practice
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Suhadee (Su) Henriquez, LCSW
Cognitive Behavioral Therapy (CBT), Dialectical Behavioral Therapy (DBT), Prolonged Exposure (PE), Acceptance and Commitment Therapy (ACT)
Multicultural CBT-DBT LLC/ The Flying Psychotherapist
67 Irving Place 2nd Floor
New York, NY 10003
http://www.multiculturalcbt.com
774-722-8328
theflyingpsychotherapist@gmail.com
Type of clinic: Private
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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Bilingual multi-state Licensed Clinical Social Worker/ Psychotherapist and Airline Flight Attendant with over 23 years of global flying experience encountering and interacting with a large diversity of cultures and populations. I also have EDS and I am specialized in helping individuals with fear of flying, Chronic pain and EDS, anxiety disorders, mood disorders, and personality disorders, including Borderline Personality Disorder (BPD).In addition, she has extensive expertise in helping those struggling with relationship difficulties, perfectionism, procrastination, chronic pain, disordered eating, substance abuse, hospice end of life of humans and pets, and suicidal and non-suicidal self-injurious behaviors. She has vast experience in working with individuals from a multicultural background as well as the lesbian, gay, bisexual, and transgender (LGBT) community.
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Staci Hoover, MSW, LCSW
Adjustment, Grief, Caregiver Stress, Depression, Anxiety, PTSD, EDS, Mast Cell Activation, Dysautonomia (POTS), Multiple Chemical Sensitivity, Chronic Inflammatory Demyelinating Polyneuropathy, Primary Immune Deficiency, Autoimmune Phenomena,
Staci Hoover LCSW
Teletherapy Practice
(No physical location)
HIPPA Compliant Video Sessions, NY 10591
https://www.selfcareisnotselfish.net/
845-418-5412
Selfcareisnotselfish@gmail.com
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As as person living with EDS (and some of its co-morbidities), I have experienced the uncertainty, stress, grief and constant struggle for balance inherent in living with chronic health challenges. As I shared my symptoms and concerns with my care team, they'd share bits of other patients' stories with me and it quickly became apparent that we, the folks impacted by these chronic illnesses, share more than our diagnoses; We need to share the stories we have lived. We need to know those stories don't end with our diagnosis. We need to feel empowered to write our next chapter.
In order to make this a reality, I began my private practice in 2015 in order to meet the unique needs of clients and families who seek to live well with EDS and co-morbid syndromes. Using teletherapy, I employ an eclectic approach which borrows from narrative therapy, a strength-based approach, elements of Cognitive Behavioral Therapy (CBT), some Polyvagal Theory, psycho-education, solution-focused interventions and a good bit of playfulness, in order to support folks in meeting the needs their bodies require, so they may live the lives they desire.
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Michael Lattanzio, DPT
Physical Therapy
JAG-ONE Eltingville
4079 Richmond Avenue
Staten Island, NY, 10312
http://www.JAGONEPT.com
718-984-8400
Mlattanzio@jagonept.com
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Outpatient orthopedic practice in Staten Island, moving to a brand new facility in January 2020. I currently have 3 ED patients on program and am extremely intrigued and happy to work with people who suffer from it, easing their pain and improving their function.
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Anne Maitland, MD, PhD
Allergy, Immunology
Comprehensive Allergy & Asthma Care
200 South Broadway Ste 200
Tarrytown, NY 10709
http://www.drannemaitland.net/
914-631-3283
anne.maitland@mssm.edu
Hospital affiliations:
- Icahn School of Medicine at Mt. Sinai
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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I have a private practice, Comprehensive Allergy & Asthma Care, which focuses on a more holistic diagnostic and therapeutic approach to inflammation, due to hypersensitivity, such as Mast Cell Activation disorders, as well as Primary Immune Deficiency. Dysregulation of the immune system can cause problems in any organ system. Yet it is signs and symptoms of the skin, gut and respiratory tract that typically cause patients to seek an allergy/immunology consultation: sinus problems, recurrent respiratory infections, skin disorders (urticaria/hives; swelling/angioedema; flushing/redness of the skin; and eczema), breathing difficulties (asthma, ie), food sensitivities/chronic gastro-intestinal distress. The team includes myself, a nurse practitioner with expertise in the neurology arena, and a physician assistant with over a decade of dermatology experience. We also recognize the need to partner with other specialties, to help gather clues and design a therapeutic plan. The latter may include the use of nutrition, traditional Chinese medicine, biologics (including the original biologic-supplemental gammaglobulin.
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Norman Marcus, MD
Pain Medicine
Norman Marcus Pain Institute
30 E. 40th Street
Ste 1100
New York, NY 10016
http://www.normanmarcuspaininstitute.com
212-532-7999
support@nmpi.com
Hospital affiliations:
- Weill-Cornell Medicine
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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Dr. Marcus is a member of the Pain Management Section of the EDS Consortium. He started the first pain center in New York City at Montefiore Hospital in 1977 and went on to direct multidisciplinary pain centers at Lenox Hill Hospital in NYC and Princess Margaret Hospital in Windsor, UK. He was trained in the evaluation and treatment of soft tissue pain by Hans Kraus, MD, President JFK's physician for his back pain, who replaced Janet Travell when her treatments failed. Currently, the Director of Clinical Muscle Pain Research at Weill-Cornell Medicine, his practice deals with all aspects of chronic pain. He has invented an electric instrument that can identify specific muscles causing pain and stiffness so common in EDS patients. During the initial evaluation, each patient is tested for all possible sensitized muscles to facilitate a detailed treatment plan. Comprehensive treatment may include use of photobiomodulation, muscle tendon injections, physical therapy, treatment of symptoms of Mast Cell Activation Disorder, and use of a variety of analgesic medications.
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Angela Oddone, LCSW
psychotherapy, counseling, clinical social work, case management
Angela M. Oddone LCSW
215 Alexander Street
Suite 200
Rochester, NY 14607
http://www.angelaoddone.com
585-360-2900
angelamoddonemswlcsw@gmail.com
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EDS-knowledgeable, resiliency-oriented, strengths-based psychotherapist, counselor, coach, consultant, and case manager providing guidance and support for people who live with complex chronic conditions, pain and/or disability, particularly due to rare conditions, especially EDS/HSD. Includes support navigating the healthcare system, particularly one that is data/metrics driven and, as such, often fails to adequately or safely serve people with rare conditions such as EDS. Also includes support for families, friends and caregivers and other relationships that affect the quality of life for people living with EDS/HSD such as employers, co-workers, healthcare providers, etc.
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Bernadette Riley, DO, FACOFP
Family Medicine and Osteopathic Manipulative Treatment
Director of Ehlers-Danlos Syndrome /Hypermobility Treatment Center at NYIT
NYIT College of Osteopathic Medicine Ehlers-Danlos Syndrome Treatment Center
Riland Health Care Center
Old Westbury, NY 11568
https://www.nyit.edu/medicine/ehlers_danlos_syndrome_treatment_center
516-686-3894
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Our integrated team works together across specialties to offer a variety of services to help evaluate and design individualized treatment programs, including:
- Primary care
- Neurological examination
- Osteopathic manipulation
- Occupational therapy
- Physical therapy
- Speech therapy
- Clinical psychology
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Leslie Russek, PT, DPT, PhD, Orthopaedic Specialist
Physical Therapy
St. Lawrence Health System
49 Lawrence Avenue
Potsdam, NY 13676
https://www.stlawrencehealthsystem.org/services/physical-rehabilitation
315-261-5460
Lrussek@clarkson.edu
Hospital affiliations:
- Canton-Potsdam Hospital
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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Dr. Russek treats patients part-time, specializing in Hypermobility Spectrum Disorders, Fibromyalgia, and chronic pain.
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Joy Samanich, MD
Clinical Medical Genetics
Genetic Medicine of Westchester and Fairfield
1 Hunter Avenue
Suite A
Armonk, NY, 10504
http://genmedofnyct.com
914-236-0336
info@genmedofnyct.com
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I am a clinical medical geneticist, initially trained in pediatrics and then with fellowship training in genetics. I have a private practice located in Armonk, NY, approximately 1 hour north of midtown Manhattan. In my practice, I see children and adults with a range of concerns from developmental delays and autism to multiple medical conditions. I see patients with known genetic disorders, or those whose diagnosis remains unclear. I have seen several patients recently for the concerns of hypermobility and chronic pain related to this, and am interested in working further with this population both for diagnosis and in effecting better treatment for them.
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Gene Shenker, DPT
Physical Therapy
Gramercy Physical Therapy PC
247 3rd Avenue
Suite:LL2
New York, NY 10010
http://www.gptny.com
212-598-5913
Gramercypt247@gmail.com
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Our unique mission is to provide an individually extensive treatment that concentrates on goal oriented efficiency and comfort. We also highly emphasize thorough manual hands-on therapies and utilize a broad array of therapeutic, cutting edge techniques, as well as teaching clients easy-to-implement, effective therapeutic exercises. We provide one-on-one treatments, put emphasis on manual therapy, and provide majority of the treatments in private rooms
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Tiffany Lin, MD
Anesthesiology, Pain Management
Weill Cornell Medicine Pain Management
2315 Broadway
2nd Floor
New York, New York 10024
https://weillcornell.org/services/pain-management
648-962-7246
til9042@med.cornell.edu
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Dr. Tiffany Lin has a special interest and expertise in Ehlers-Danlos Syndrome. Her training includes residency in Anesthesiology at the University of Chicago Medical Center and fellowship in the Tri-Institutional Pain Medicine Fellowship at NewYork-Presbyterian/Weill Cornell Medical Center, Memorial Sloan Kettering Cancer Center, and Hospital of Special Surgery. She believes in multidisciplinary and individualized approach to the treatment of chronic pain. With that in mind, she incorporates the latest research, the most advanced equipment, and innovative therapies to diagnose pain and develop customized pain management plans for each patient.
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Chaim Mandelbaum, MD
Pain Specialist
Comprehensive Pain Management
75 Maiden Lane
New York, New York 10038
https://cpmnyc.com
212-995-6495
comprehensivepainny@gmail.com
Hospital affiliations:
- Mt SINAI
- Beth Isreal
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We treat EDS and all spinal diseases. Please see our website.
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Roni Sharon, M.D.
Chief Physician
ARTEMIS NY
248 3rd Ave
New York, NY 10010
https://www.artemisnymedical.com/
914-200-4160
doctor@artemisnymedical.com
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Dr. Sharon, is a board certified Neurologist and headache and facial pain specialist. His main interest is chronic pain conditions and improving the quality of patients' lives.
He is licensed in NY and has a private practice. He studied medicine at Sackler School of Medicine in Tel Aviv, Israel. He did a residency training at Mount Sinai Beth Israel in New York in Neurology. He then did a fellowship at Harvard Medical School's Brigham and Women's Hospital.
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Richard Adamski, MD.
Rheumatology
Northwell Physician Partners – Multi-specialty at Patchogue, Northwell Health – Rheumatology at Bay Shore
205 S Ocean Avenue
Patchogue, New York 11772
631-815-3300
radamski12@northwell.edu
Hospital Affiliation:
- Northwell South Shore University Hospital
Professional Boards and Affiliation:
- American College of Rheumatology
- ABIM
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Multi-specialty Practice including Rheumatology, orthopedics, cardiology, pulmonology, nephrology.
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Laurel Steinberg, ph.D.
Migraine Headache Prevention, and Counseling for Sex-Dating-Relationship Issues, Anxiety, Health Anxiety and Work Stress
Practice/Clinic 1
Center for Integrative Headache Prevention
225 East 47th Street
Suite 1B
New York, NY 10017
US Minor Outlying Islands
https://www.preventmyheadaches.com
Practice/Clinic 2
Center for Relationship Repair
17 Capi Lane
Port Washington, NY 11050
https://www.laurensteinberg.com
9175740825
drlaurensteinberg@gmail.com
Professional Boards and Affiliations:
- American Board of Sexology
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Hello — it's a pleasure to meet you! My name is Dr. Steinberg and I am a highly trained therapist working in private practice for the past 12+ years. I offer specialized treatment for migraine headaches (I am completely symptom free for 23+ years, and learned the method of migraine prevention while a student at Johns Hopkins University), sex-dating-and relationship issues and health anxiety. I have hEDS, which I inherited from my mother's side of the family. It is a great honor and privilege to work with EDS patients to partner with them to enjoy a fully, happy and healthy lifestyle. If migraine headaches are a problem for you, look no further — migraine prevention via practicing my program, "The Headache Preventive Lifestyle," is simple to learn, fun and works remarkably quickly. There is no need to suffer any longer! Help has arrived.
I offer sessions via telephone, Zoom, and when not in a pandemic, in ultra-private offices in Midtown, Manhattan and in Port Washington (Long Island) as well.
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Jena Blackwood, DPT
Hypermobility syndrome, EDS, CCI, body awareness
Jena Blackwood – P.T., D.P.T, P.L.L.C.
32 Union Square East
612
New York, New York 10003
https://jenablackwood.com
9175659812
jena@jenablackwood.com
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As a long-time mindfulness-based practice, meditation devotee, and life-long learner, I am currently in the beginning stages of achieving my ultimate scholarship goal: obtaining a Ph.D. in Rehabilitation Science to study complementary medicine and mindfulness-based movement in conjunction with physical therapy outcomes in chronic pain and chronic neurologically impacted patients.
My clinical interests span multiple areas focusing on connective tissue disorders such as Ehlers-Danlos syndrome, neurological and pain conditions, pelvic health, general orthopedics. I currently work with private patients and clients in New York City. I firmly believe it is paramount to work with each person as a whole individual so as to maximize their therapeutic outcomes and my treatment tools include pilates, breathing awareness, PNF, craniosacral therapy, counterstrain release, and body awareness training.
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Kathryn Bacigalupo, PT, DPT
DPT
PhysioElements
1615 Northern Blvd
Suite 202
Manhasset, NY 11030
https://www.physioelementsny.com/
1-516-365-3455
kate@PHYSIOELEMENTSNY.COM
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At PhysioElements, we care about each clients individual goals and ability to perform the life activities and tasks that are meaningful to each patient. We believe that in order to achieve optimal fluidity and balance in movements, all systems (neural, myofascial, visceral, articular) must function in harmony. We assess the whole body by using the Integrated Systems Model approach, and a multimodal treatment plan is then designed, unique to each person and their particular challenges. We are trained in Pilates and utilize a function based approach to movement. Some of our subspecialties include HSD/EDS, scoliosis, and pelvic floor.
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Jennifer Wolfe, LCSW-R
Psychotherapy to address chronic pain and illness, addictions
Jennifer Wolfe, LCSW-R
316 E 5TH ST
apt 2
BROOKLYN, NY 11218
https://www.jenniferwolfelcsw.com/index.html
917.686.4330
jennwolfe@gmail.com
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Serving residents of New York state via video and telephone, my psychotherapy practice focuses on individuals and couples, ranging in age from young adults (18 and up), adults, and elderly. I strive to create a safe environment in which to explore life stressors, patterns of relating with others, and how past experiences impact the present.
Areas of professional practice include:
• Mood disorders such as anxiety, depression, and bipolar
• Alcohol and drug use, harm reduction
• Relationships, separation and divorce
• Sexual issues and concerns
• LGBTQ
• Chronic pain and illness, including HIV, autoimmune disorders, fibromyalgia, Ehlers-Danlos Syndrome
• Grief and loss
• Women's reproductive health
• Career issues
• Financial concerns
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Lori Moussapour, MSW
Chronic Illness/Pain, LGBTQ+ Allied, Couples, Parenting, Life Transitions, Life Balance, Anxiety, ADD, Grief, Emerging Adulthood/Launching, Self-esteem, Loneliness, Managing stress/challenges
To Empower U
1 Chatsworth Avenue, #575
Larchmont,, New York 10538
https://ToEmpowerU.com
914-488-4673
Lori@Toempoweru.com
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My services, including counseling, psychotherapy or coaching, take place virtually or in NYC, and are delivered with compassion and respect. I draw from the most effective framework(s) and experiences to provide the therapy, support, education and inspiration needed to make change and live empowered! My coaching work is mostly drawn from my experience as a Master Trainer and Coach for Yale's Center for Emotional Intelligence in their Ruler Program, in Social and Emotional Literacy Coaching. My psychotherapy practice is grounded in an integrative and relational framework, but I use advanced training in an array of approaches to serve my clients' unique and varied needs. Some of these include: Cognitive Behavioral Therapy, Mindfulness, Social and Emotional Literacy Coaching, Emotionally Focused Therapy, Food Allergy Informed Counseling, etc…I am particularly interested in and have developed a speciality in working with those living with chronic illness or pain (I.e. Ehlers Danlos, Food Allergies, IBDs, etc…)
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Mazen Natour, DMD
Dentist, Prosthodontist, Implant Surgery
Mazen Natour DMD PLLC
30 Central Park South
Suite #10D
New York, NY 10019
https://natourdmd.com/
212-518-6494
frontdesk@natourdmd.com
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The office of Dr. Mazen Natour is a boutique dental office. We offer comprehensive dental care, from routine cleanings and checkups, to complex surgeries, full mouth rehabilitations, and cosmetic smile makeovers. Our top concern is your comfort and the long-term success of your treatment.
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North Carolina
Joel Cabrera, PT, MTC, CSCS
Manual Therapy, Dry Needling, TMJ, Orthopedics, Strengthening, Stability
Myo Durham Fitness and Physical Therapy
105 Hood Street, Ste 4
Durham, NC, 27701
http://www.myodurham.com
919-886-0976
info@myodurham.com
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Myo Durham is a private Physical Therapy practice in the heart of downtown Durham. Myo Durham focuses on one-on-one treatment for patients with complex spinal disorders, TMJ disorders, and general musculoskeletal pain. Joel Cabrera, PT, has 15 years of experience in outpatient physical therapy with advanced certifications in manual therapy and chronic pain treatment. Myo Durham Fitness and Physical Therapy also provides strength and conditioning classes for the surrounding community.
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Libby Hinsley, PT, C-IAYT
Physical Therapy, Yoga Therapy
Libby Hinsley Physical Therapy and Yoga Therapy
183 Bartlett Street, Suite 110
Asheville, NC 28801
http://www..Libbyhinsley.com
828-273-6816
Libbyhinsley@gmail.com
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I am a Physical Therapist and Yoga Therapist in private practice. I specialize in variety of musculoskeletal complaints including persistent pain, hypermobility spectrum disorders, and hEDS.
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Meghan Mizrachi, DPT
Physical Therapy
Novant Health Rehabilitation South Park
6324 Fairview Road
Charlotte, NC 28210
http://www.novanthealth.org
203-494-2747
mlmizrachi@novanthealth.org
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We offer one on one PT session for 45 minutes. We follow the Muldowney protocol. Presently, about 50% of my clients have hypermobile EDS.
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Matthew Snyder, PsyD, LPCS
Mental Health
Matthew T Snyder, LPCS
1915 George St
Hendersonville, North Carolina 28792
http://www.fullcirclewnc.org/
828-222-0401
matt@fullcirclewnc.org
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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We are a holistic mental and emotional health center that emphasizes high quality, experienced clinical care and community based connection and activity.
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Grace Tang, PT, DPT, OCS, CCTT
orthopedic, chronic pain, temporomandibular disorders
Strive Physical Therapy & Fitness
5103 Grace Park Drive
Morrisville, NC 27560
https://www.striveptfit.com/
919-467-4558
info@striveptfit.com
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Strive Physical Therapy & Fitness is a manual therapy focused practice, with one on one care. Patients will see the same therapist throughout the course of treatment. We treat many chronic pain conditions, including hypermobility syndromes, headaches, and temporomandibular syndromes.
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Cassandra Hornbuckle, DO
OB/GYN
Granville Primary Care and Ob/GYN
110 Professional Park Drive
Oxford, North Carolina 27587
https://ghshospital.org
9196936541
chornbuckle@granvillemedical.org
Hospital Affiliations:
- Granville Medical Center
Professional Boards & Affiliations:
- ACOOG Board Certified
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I am part of a multispecialty clinic in rural North Carolina. I am familiar with EDS and HSD for a number of reasons, both personal and academic, and as such began noticing an influx of patients after noting this disorder in a referral sent to me. I now have a population of these patients that have sought me out for care in the setting of what seems to be very little knowledge of this disorder in this region. I have established a network of physicians familiar with this however this is ever changing and expanding as my patient population with this spectrum of disorders grows.
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Jessica Altemara, IBCLC
Lactation, Breastfeeding, Tongue Tie
Bliss At The Breast
510 Yorktown Dr
Chapel Hill, NC 27516
http://www.blissatthebreast.com
9192607202
Jessica.altemara@gmail.com
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I am a lactation consultant in private practice in the Triangle area of NC. I have a passion for individualized care that is holistic and trauma informed.
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North Dakota
Sara Kenney, PsyD
Psychotherapy
Sanford Health
414 N 7th Street
Bismarck, ND 58501
Bsmpainpsych@SanfordHealth.org
701-323-6815
Hospital Affiliations:
- Sanford Health
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Psychologist in a comprehensive pain clinic
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Ohio
Melodie Blacklidge, MD
General Pediatrician Specializing in Hypermobile Ehlers Danlos Syndrome and Hypermobility Spectrum Disorders
Hypermobility Clinic/Division of Human Genetics
Cincinnati Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229
https://www.cincinnatichildrens.org
513-636-4760
Skeletaldysplasiacenter@cchmc.org
Hospital affiliations:
- Cincinnati Children's Hospital Medical Center
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Dr. Blacklidge is a General Pediatrician who works with Genetic Counselors, nurse practitioner Allison Mack, and the specialists of Cincinnati Children's Hospital Medical Center to provide diagnostic services and management for Hypermobile EDS for patients age 6 to 22 years of age.
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Cam Health, JD, Esq.
Specialist location and referral, patient advocates, Mast cell, EDS
Health Law Group PLLC
20 S Third Street, Suite 210
Columbus, OH 43215
https://healthlawpllc.com/
844-239-1234
cam@healthlawpllc.com
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Health Law PLLC focuses on medical / health care representation and patient advocacy for rare diseases. We focus on EDS and EDS related conditions.
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Jennifer Conner, MD
Family medicine
Findlay Family Practice
1725 Western Ave, Suite A
Findlay, OH 45840
419-423-4994
Ffp1725@yahoo.com
Hospital affiliations:
- Blanchard Valley Hospital
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I have both personal and professional experience with EDS, and consider my job to "quarterback" for the EDS patient!
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Subinoy Das, MD
Sinus disease, otolaryngology-head and neck surgery
US Institute for Advanced Sinus Care and Research
974 Bethel Road
Suite E
Columbus, Ohio 43214
http://www.usasinus.org/
614-538-2424 x1151
Info@usasinus.org
Hospital affiliations:
- Riverside Memorial Hospital
- Dublin Methodist Hospital
- Nationwide Children's Hospital
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I am a sinus disease expert that also suffers from Ehlers Danlos Syndrome. Sinus sufferers with EDS are often mismanaged because steroids are typically harmful for EDS patients. I enjoy caring for EDS patients because of my personal experience with the disease.
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Lindsay Hastings, LMT, Certified BowenWork Practitioner
LMT, Certified BowenWork Practitioner
Practice / Clinic 1:
Phoenix BodyWork & Apothecary
4434 Carver Woods Dr
Suite 300
Blue Ash, Ohio 45242
Practice / Clinic 2:
Phoenix BodyWork & Apothecary
31 E Mulberry St
Lebanon, Ohio 45036
513-507-7342
Phoenixmedicalmassage@yahoo.com
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Body work that is clinical, gentle and non invasive. BowenWork specifically works with connective tissue imbalances; it relaxes spasmodic areas yet tones the muscles that are too weak or unstable. BowenWork tones and "matures" the nervous system.
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Michael Joseph, MD
Paediatric Pain and Symptom Managment
Center for Pediatric and Adolescent Pain Care
5080 Bradenton Ave Ste C
Dublin, OH 43017
http://www.pediatricpaincare.com
614-889-6422
michael.joseph@pediatricpaincare.com
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Integrated multidisciplinary clinic focused on the care of functional pain and symptoms that have been difficult to treat in the standard medical model.
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Andrea Julian, CPT-FT
Medical massage, Visceral massage, Functional Movement, Chiropractics, Yoga
Joga Somatic Arts
1725 Woodman Dr. Suite E
Kettering, OH 45420
http://www.jogasomaticarts.com
(937) 416-7814
ajuliantraining@gmail.com
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Joga Somatic Arts offers, massage, chiropractic adjustments, Yoga and fitness classes and private sessions for those with EDS or HSD. Jo and Andrea have devoted their time and research to hypermobility and linking movement patterns and nutrition to specific pains, strains and complications so that they may better help themselves and their clients. Joga Somatic Arts also offers gentle Chiropractics, safe for those with Hypermobility. Joga is owned and operated by several hEDS patients.
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Jennifer Lobert, MD
Rheumatology; Internal Medicine
Jennifer Lobert MD LLC / Comprehensive Musculoskeletal Care
9403 Kenwood Road
Suite D105
Blue Ash, OH 45242
http://www.lobertcmc.com
513-318-1695
drlobert@lobert.com
Hospital affiliations:
- The Christ Hospital
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We are a membership practice specializing in treating patients with complex pain conditions.
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Joshua Stephens, DO
Internal Medicine
Practice / Clinic 1
Queen City Physicians University Station
1775 Lexington Avenue
Suite 150
Cincinnati, OH 45212
https://www.trihealth.com/hospitals-and-practices/queen-city-physicians/locations/university-station/
-ractice / Clinic 2
Queen City Physicians Hyde Park
2753 Erie Avenue
Cincinnati, Ohio 45208
https://www.trihealth.com/Hospitals-and-Practices/Queen-City-Physicians/Locations/Hyde-Park-Internal-Medicine/
513-246-8000
joshua_stephens@gmail.com
Hospital affiliations:
- Good Samaritan Hospital
- Bethesda North Hospital
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Dr. Stephens treats adult patients, 16 years and older, for a wide range of acute and chronic medical conditions. He is a preferred primary care provider in managing the care of Ehlers Danlos Syndrome patients and their associated diagnosis as a part of the TriHealth multidisciplinary connective tissue disorder clinic. Dr. Stephens also has a special interest in the evaluation and treatment of environmental allergies. Additionally, he is a trained osteopathic physician, providing osteopathic treatment as an adjunct to medical therapies.
Intrigued by the continually evolving field of medicine, he likes finding simple and effective ways to prevent, detect, and treat diseases. Through open communication, Dr. Stephens wants to help patients make healthy choices and tailor care to meet each patient's lifestyle and health goals.
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Carly Rose, OD, FAAO
Dry Eye, Pediatrics
Eyecare on the Square
6833 Wooster Pike
Cincinnati, Ohio, 45227
http://eyecareonthesquare.com
513769330
info@eyecareonthesquare.com
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Full scope private practice optometry office in Cincinnati, Ohio
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Oregon
Paul Ebensteiner, DC
DC, ND, LAc, LMT
Chiropractic
The Wellness Center
3150 SE Belmont ST
Portland OR 97214
503-389-5545
cpaulrun@gmail.com
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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Integrative natural health and injury rehabilitation.
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Michael Gentile, DPM
Foot and Ankle Medicine and Surgery
Portland Foot and Ankle Institute
12672 NW Barnes RD
Suite 100
Portland, OR 97229
http://www.pdxfai.com
503-336-0169
pdxfai@gmail.com
Hospital affiliations:
- Providence St. Vincent Medical Center
- Cornell Surgery Center
- Legacy Good Samaritan
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Portland Foot and Ankle Institute is a center of excellence for leg, foot, and ankle medicine and surgery in Portland, OR. Dr. Gentile is dual board certified by the American Board of Foot and Ankle Surgery in foot and rearfoot/ankle reconstructive surgery. Along with his surgical fellow and board certified orthotist, the Institute provides a unique team approach to patients with leg, foot, and ankle problems complicated by hyper-mobility and hyper-laxity. The team has years of experience in treating this unique subset of patients both surgically and non-surgically.
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Alena Guggenheim, ND
Assistant Professor of Anesthesiology and Perioperative Medicine, Naturopathic Medicine
Comprehensive Pain Center Oregon Health and Science University
3303 SW Bond Ave
Portland, OR 97239
https://www.ohsu.edu/pain-center
503-494-7246
none@oshu.edu
Hospital affiliations:
- Oregon Health and Science University
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Dr. Guggenheim specializes in the care of children and adults with chronic pain and joint hypermobility disorders. She enjoys working with patients with Ehlers-Danlos Syndrome and associated complex symptoms. She likes to help patients navigate health care options and empowering them to make informed decisions.
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Cory Tichauer, ND
Lyme Disease, Mold & Environmental Illness, Immune Dysfunction & MCAS
Bear Creek Naturapathic Clinic
2612 E. Barnett Rd
Medford, OR 97504
https://www.bearcreekclinic.com
541-770-5563
info@bearcreekclinic.com
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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Bear Creek Naturopathic Clinic functions both as a primary care clinic and a center to address chronic health concerns. With multiple physicians and specialties, each doctor provides unique and specialized care to address the individual needs of each patient. Dr. Tichauer focuses on understanding the interplay of infectious illness, immune dysfunction and environmental medicine as a means to accurately diagnose and treat the underlying conditions needed to restore health. He employs traditional and natural antimicrobial and immune therapies, peptides, LDI/LDA, IV therapy, HBOT, ozone, prolotherapy, neural therapy and cellular detoxification to achieve this goal. He has both personal and professional experience working with hypermobility and EDS. In these patients he strives to identify and stabilize underlying metabolic dysfunction and sources of inflammation while addressing chronic structural concerns.
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Anne Hill, ND
Primary Care Practice, Naturopathic Medical Care
Anne Hill, ND
443 NE Knott Street
Portland, OR 97212
http://www.annhillnd.com
503-282-1070
info@knottstreethealth.com
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Dr. Hill has been in practice since 2004 and treats Chronic Infectious Disease, Autoimmune Disorders, Gastrointestinal Disorders, Mast Cell Activation Syndrome and Environmental Illness. She treats both adults and children. She has been through the EDS ECHO program and is connected with the other providers in her area and nation-wide to help understand her patient population better. She also teaches regularly in-person to other providers and online to both providers and patients on topics ranging from Hypermobility Spectrum Disorder, Gastrointestinal Health, Infectious Disease and Women's Health as well as doing instructive seminars on utilizing Craniosacral Therapy and Osteopathic Manipulation as well as Neural Therapy in practice to help our patients.
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Heather Purdin, M.S., P.T., CMPT
Physical Therapy, Chronic Pain, Ehlers-Danlos Syndrome, Orthopedic and Manual Therapy, Myofascial Release, Athletic Taping, Brace Fitting/Adjustment, Joint Mobilization, Strain Counter Strain, Trigger Point, Functional Indirect Technique, Muscle Energy Technique, Mulligan concepts, Craniosacral Treatment
Practice / Clinic 1
4475 SW Scholls Ferry Rd.
Suite 258
Portland, Oregon 97225
503-292-5882
https://goodhealthphysicaltherapy.com/
Practice / Clinic 2
4943 NE Martin Luther King Jr. Blvd.
Suite 258
Portland, OR 97211
https://goodhealthphysicaltherapy.com/
503-292-5882
admin@goodhealthphysicaltherapy.com
Professional Boards and Affiliations:
- American Physical Therapy Association
- Oregon Area Ehlers Danlos Society
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Unlike most fast-paced, high volume clinics our Portland based physical therapy clinic offers hour long personalized treatments. You will experience warm, holistic care that adapts to your level of injury and pace of recovery. Our experienced therapists work as a collaborative team, drawing upon their individual well developed clinical experience to provide you with care that best meets your needs.
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Michael Makher, PT, DPT
Chronic Pain, Therapeutic Movement, Strength Training, Manual Therapy, Ehlers-Danlos syndrome, Joint Mobilization, Release Techniques, Desensitization Techniques
Practice / Clinic 1
4475 SW Scholls Ferry Rd.
Suite 258
Portland, Oregon 97225
503-292-5882
https://goodhealthphysicaltherapy.com/
Practice / Clinic 2
4943 NE Martin Luther King Jr. Blvd.
Suite 258
Portland, OR 97211
https://goodhealthphysicaltherapy.com/
503-292-5882
admin@goodhealthphysicaltherapy.com
Professional Boards and Affiliations:
- American Physical Therapy Association
- American Society of Manual Therapists
- International Association for the Study of Pain
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Unlike most fast-paced, high volume clinics our Portland based physical therapy clinic offers hour long personalized treatments. You will experience warm, holistic care that adapts to your level of injury and pace of recovery. Our experienced therapists work as a collaborative team, drawing upon their individual well developed clinical experience to provide you with care that best meets your needs.
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Chie Tadaki, PT, DPT
Chronic Pain, Neurological Conditions, Sports Medicine, EDS, Orthopedic PT
Practice / Clinic 1
4475 SW Scholls Ferry Rd.
Suite 258
Portland, Oregon 97225
503-292-5882
https://goodhealthphysicaltherapy.com/
Practice / Clinic 2
4943 NE Martin Luther King Jr. Blvd.
Suite 258
Portland, OR 97211
https://goodhealthphysicaltherapy.com/
503-292-5882
admin@goodhealthphysicaltherapy.com
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Unlike most fast-paced, high volume clinics our Portland based physical therapy clinic offers hour long personalized treatments. You will experience warm, holistic care that adapts to your level of injury and pace of recovery. Our experienced therapists work as a collaborative team, drawing upon their individual well developed clinical experience to provide you with care that best meets your needs.
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Kimberley Hindman, ND, LAc
Naturopathic medicine, acupuncture, aroma acu-therapy
Practice / Clinic 1
Dr. Kimberly Hindman ND, LAc
1820 SW Vermont St
Suite E
Portland, OR 97219
http://www.healingdragon.net
503-784-1027
khindman@healingdragon.net
Professional Boards and Affiliations:
- AANP
- OANP
- OAAOM
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Dr. Hindman works with patients with EDS to support in three different areas. The first area is to help the EDS with correct diagnosis and referrals and naturopathic supports for connective tissue. Second is to investigate, treat, and work with other practitioners for other conditions that are often seen more commonly with EDS, including POTS, MCAS, occult tethered cord, Chiari, and cranio-cervical instability. Third is to work deeply with patients to identify underlying factors that may be contributing or exacerbating their EDS symptoms as well as their overall health as an individual, including hormone imbalances, dietary and nutrient deficiencies, toxic exposures and detoxification needs, possible chronic infections, stress, and energetic patterns. Treatment focuses on both the medicine of chemistry as well physics and can include lifestyle changes, nutrients, herbs, and medications as well as energetic treatments of acupuncture or aroma acu-therapy, biotherapeutic draingage, and homeopathy. Dr. Hindman also draws from her personal experience with hEDS to support the symptoms and issues associated with EDS as well as the whole person who is experiencing those symptoms.
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Osvaldo Schirripa, M.D., M.S.
Clinical and Molecular Genetics
Practice / Clinic 1
Central Oregon Clinical Genetics Clinic
143 SW Shevlin-Hixon Drive, suite 203
Bend, Oregon 97702
541-678-5417
cocgenetics@gmail.com
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Dr. Schirripa's training:
Clinical Genetics at The Children's Hospital, Denver, Colorado.
Molecular Genetics at The University of Colorado Health Science Center, Denver, Colorado.
Clinical Cancer Genetics at The City of Hope Medical Center, National Cancer Center, Duarte, California.
Dr. Schirripa is also an Anatomic and Clinical Pathologist with training in Molecular Pathology.
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Joanna May, ND
Primary care, mental health/psychiatric conditions; GI disorders, hormone balancing
Practice / Clinic 1
Woodstock Natural Health Clinic
4938 SE Woodstock Blvd
Portland, Oregon 97206
http://www.woodstockclinic.com
503-771-0615
drjoanna@woodstockclinic.com
Professional Boards and Affiliations:
- Oregon Association of Naturopathic Physicians
- American Association of Naturopathic Physicians
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Own and operate a naturopathic primary care practice in Portland Oregon. patient population is significant for multiple chronic comorbidities. Personally see a large amount of patients with functional GI disorders, mental health and psychological disorders, as well as chronic vaginal dysbiosis. Utilizing interdisciplinary treatment modalities inclucing pharmaceutical therapies, IV therapies, herbal & nutraceutical therapies; hydrotherapy. Versed in MCAS, lyme, SIBO/SIFO.
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Valerie Ferdinand, ND
Immune Dysfunction, Mast Cell Disorders, FQAD, Tick-Borne Disorders
Woodstock Natural Health Clinic
4938 SE Woodstock Blvd
Portland, OR 97206
http://www.woodstockclinic.com
503-771-0615
drvalerie@woodstockclinic.com
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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Naturopathic provider that integrates medication with supplements to address complex chronic illness including EDS, MCAS, FQAD, etc
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Ashley Baker, PT, DPT
Orthopedics
Movement-X
Portland, OR
www.movement-x.com
503-893-9157
ashley.baker@movement-x.com
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At MovementX, we do physical therapy differently. You can see your physical therapist in the comfort of your own home, office, or outdoors, on your schedule. With a network of skilled therapists across the country, getting individual, patient-centered one-on-one care has never been easier
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Amanda Hoffman, MD
Naturopathic Options, Regenerative Therapies, Gastrointestinal, Women
Calypso Natural Clinic
2191 NW 2nd st
McmInnville, OR 97128
https://calypsonaturalclinic.com/
503 472 5500
dra@calypsoclinic.com
Professional Boards & Affiliations:
- Oregon Association of Naturopathic Physicians
- American Association of Naturopathic Physicians
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As a physician with Marfan's syndrome, my mission is to help ease the pain and support a better quality of life for my loose connective tissue tribe. I offer telemedicine, courses and one on one visits and consultations. Nutritional workups, alternative therapies from herbs, nutricueticals, regenerative injections, stem cell therapy and more. We offer memberships and VIP services.
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Brittini Ramp, DC, CCSP
Chiropractic
REVIVE Injury and Wellness
1750 Blankenship Ste 295
West Linn, OR 97068
http://www.reviveinjury.com
5033444378
info@reviveinjury.com
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We offer gentle, effective techniques to help individuals with EDS or other hypermobility disorders manage their symptoms.
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Kirstin Wilson, ND, ATC
Naturopathy; Neurology; Brain Injury; Chronic fatigue; environmental illness; mold; mental health
Tree Root Wellness/MediPro Holistic Health
17933 NW Evergreen Place Suite 285
Beaverton, OR 97006
info@treerootwellness.com
971-220-8627
https://www.treerootwellness.com
Professional Boards & Affiliations:
- Oregon Naturopathic Association
- National Athletic Trainers Association
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Dr. Kirstin Wilson sees patients in her private practice via telemedicine only and can work with patients in Oregon. She additionally consults with anyone in the US. She also works for a collaborative clinic, MediPro Holistic Health, that is focused collaborating on complex health conditions. She has a special interest in brain injuryies, neurological conditions, and environmental illness.
Dr. Wilson received her Naturopathic Medicine Doctorate from the National University of Natural Medicine (NUNM). During her time at NUNM, she did additional training in osteopathic medicine including; cranial sacral, myofascial release osteopathic therapeutic manipulations, integrative visceral techniques, functional neurology, environmental medicine, applied kinesiology, shamanic practices, and bilateral nasal specifics.
Dr. Wilson offers free 15-min consults to get to know her approach in more detail for any potential patients.
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Pennsylvania
Dawn Cox, PT, MSPT, CFMT
Physical therapy for those with hyper-mobility syndrome, EDS, runner and dancer specialty
Prana Functional Manual Therapy
617-a North Prince Street
Lancaster, PA, 17603
http://www.pranapt.com
717-390-4822
info@pranapt.com
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Prana Functional Manual Therapy is an outpatient orthopedic clinic in downtown Lancaster, PA. We have six physical therapists on staff. We do not employ physical therapy assistants. We are all highly skilled physical therapists who have a passion for individuals maximizing their function to be better for themselves, their families, their passion and their communities. We specialize in patients with end-range dysfunctions like dancers, yoga enthusiasts and those with hyper-mobility syndrome and EDS. We do it all in a space that is open, airy and calm.
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Nicholas DePace, MD, FACC
Cardiology, Autonomic Dysfunction, POTS, Ehlers-Danlos Syndrome, Chronic Fatigue Syndrome
Practice / Clinic 1
Franklin Cardiovascular Associates, PA
2300 S. Broad Street
Suite 201
Philadelphia, PA 19145
Practice / Clinic 2
Vineland Office
2848 S. Delsea Drive
Vineland, NJ 08460
Practice / Clinic 3
Sewell Office
438 Ganttown Rd
Suite 8 & 9
Sewell, NJ 08080
https://franklincardiovascular.com/
(856) 589-6034
rsantiagofca@outlook.com
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Here are some of the services that are offered in the Franklin Cardiovascular:
Hospital Care
Congestive Heart Failure and Cardiac Transplantation Assessment
Transesophageal Echocardiography
Sleep Apnea Testing
Emergency Care
Bi-V Defibrillator Insertion and Monitoring
Pacemaker Insertion and Monitoring
Defibrillator Insertion and Monitoring
Electrophysiologic Testing
Arrhythmia Ablation
Cardiac Catheterization
Peripheral Renovascular Angiography
Peripheral Vascular Angiography
Coronary Angioplasty and Stenting
Cardiac Rehabilitation
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Aviva Gaskill, PhD
Psychologist
Aviva Gaskill, PhD
308 E. Lancaster Ave
Ste 200
Wynnewood, PA 19096
https://www.avivagaskill.com/
484-679-6299
aviva@avivagaskill.com
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I am a clinical psychologist specializing in the treatment of young adults and adults living with chronic and terminal illness and co-occurring psychological concerns. I utilize integrative therapeutic techniques in my practice to aid patients and their families to cope with the process of living with and/or caregiving for individuals with chronic and terminal illness and comorbid mental health issues.
I am also able to offer teleheath services in the following states: AZ, CO, DE, GA, IL, MO, NE, NV, NH, OK, PA, TX, UT, VA, NC.
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Laura Jacobs, DPT
EDS, POTS, Hyper Mobility Syndrome
Select Physical Therapy
550 N Twelfth Street
Lemoyne, Pennsylvania 17043
(717) 737 9818
laura.jacobs@selectphysicaltherapy.com
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Our goal is to help you discover how to achieve the pinnacle of healthy living, expand your boundaries, feel younger and revitalize your health.
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Mark Lavallee, M.D., C.S.C.S., F.A.C.S.M.
Family Medicine, Sports Medicine, Orthopedics
UPMC West Shore Hospital,
2005 Technology Drive,
Suite 100,
Mechanicsburg, PA 17050
717-791-2620
lavalleem@upmc.edu
Hospital affiliations:
- Ass't Clinical Professor, Pennsylvania State University, College of Medicine, Hershey, PA
- Adjunct Clinical Professor, Drexel University, School of Medicine, Philadelphia, PA
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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I see all my new Ehlers-Danlos Patient at our West Shore Hospital at our Bone and Joint office which is located in Mechanicsburg, PA (suburb of Harrisburg, PA) I ask patients to supply the following information at least 1 week PRIOR to their scheduled appointment so I may review ahead of their appointment.
1) 1-2 page outline of their symptoms, surgeries, treatment successes and failures
2) relevant operative reports
3) medical genetic consultation or genetic testing
4) clinical recent and relevant imaging"
For those coming from far away, we have a Holiday Inn Express on our medical campus. For local/regional airports, we have our Harrisburg International Airport is less than 10 miles away and BWI is about 1.5 hour drive due south of us.
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Kenneth Liu, MD, FAANS, FACS
Neurological Surgery, Neurovascular Surgery
Penn State Milton S. Hershey Medical Center
30 Hope Drive
Hershey, PA 17033
http://hmc.pennstatehealth.org/neurosurgery
717-531-3828
kenneth.c.liu.md@gmail.com
Hospital affiliations:
- Penn State Milton S. Hershey Medical Center
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Dr. Liu is a board-certified, fellowship-trained neurosurgeon specializing in open vascular and endovascular neurosurgery and utilizes advanced techniques and technology to tailor treatment to each individual patient. He has extensive experience in the treatment of intracranial hypertension with stents and shunts, particularly in the EDS population, as well as extensive experience in the treatment of strokes and intracranial hemorrhages.
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Kimberly Poehlmann, PT, DPT
Physical Therapy, Chronic Pain, Hypermobility Disorders
PHOENIX Rehabilitation & Health Services
800 Bethlehem Pike
Suite 2
Sellersville, PA 18960
United States
https://www.phoenixrehab.com/sellersville/
215-257-3900
kpoehlmann@phoenixrehab.com
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At PHOENIX, we believe that patient care should be efficient, purposeful and cost effective. These drivers are guided by the principles of employee satisfaction and quality clinical outcomes delivered in a customer friendly and professional health care environment. When you choose PHOENIX, you join a family. Our highly trained staff is dedicated to helping you feel like you again. From your first appointment to your last, you can expect the highest quality of care.
We offer physical therapy services to address pain, weakness, and factors contributing to overall movement dysfunction. Whether you have experienced an acute illness/injury or an overall decline in your ability to participate in daily life, we will perform a comprehensive evaluation in order to design a specific, goal-oriented treatment plan for helping you get back to doing the things you love.
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J. Christopher Potts , PT, DPT
Outpatient Orthopedic PT, Myofascial Release, Pilates, Gyrotonic
Healing Motion Physical Therapy & Wellness Center
5840 Ellsworth Avenue
Suite 302
Pittsburgh, PA 15232
https://www.healing-motion.com
412-363-4050
info@healing-motion.com
Professional Boards and Affiliations: PA State Board of Physical Therapy
Undergraduate School: Marquette University | BS
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Healing Motion was founded by J. Christopher Potts, PT, DPT in response to a need for comprehensive physical therapy and wellness services all under one roof. He feels strongly that the traditional way physical therapy is provided does not place the patient and their healing process as the first and most important priority. Healing Motion was founded to create a treatment environment that fosters a collaborative relationship between patient and therapist, and allows the therapist the freedom to craft the best possible plan of care for each patient. This requires hour-long, one-on-one therapy sessions with each patient.
When a patient finishes physical therapy at Healing Motion, they leave with a wealth of management techniques and a complete education in their own care. In addition to continuing with a home program, some individuals find it beneficial to have periodic Myofascial Release and massage sessions to maintain the progress they have achieved in therapy. Other patients who have become hooked on Pilates and Gyrotonic continue their study, maintenance, and care at Healing Motion with one of our certified instructors privately or in a group lesson.
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Julia Kajen, PT, DPT, OCS
EDS, Chronic Pain, Pelvic Floor Dysfunction, Endometriosis, Performing Artists
Strive Physical Therapy
2 Penn Center, 1500 John F Kennedy Blvd
Suite 450
Philadelphia, PA 19103
jkajen@strivephysicaltherapy.com
215-454-2812
https://www.strivephysicaltherapy.com/philadelphia/
Professional Boards & Affiliations:
- APTA Pennsylvania Finance Committee
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Julia Kajen is a Board-Certified Specialist in Orthopedic Physical Therapy and a Pelvic Health Physical Therapist. She is the Director of the Pelvic Health Program at Strive Physical Therapy in PA and NJ. Julia specializes in treating transgender and non-binary patients, performing artists, and in treating Hypermobility and Ehlers-Danlos Syndromes, pelvic pain, endometriosis, pelvic organ prolapse, and dyspareunia. She is committed to empowering patients to understand and gain control over their symptoms.
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Rhode Island
Michael Healy, PT, DPT, DOMTP, IOMT, CPT, CSN, MBA
Physical Therapy, Advanced Manual Therapy, Craniosacral Therapy, Sports Medicine
Healy Physical Therapy & Sports Medicine, Inc.
927 B Warren Avenue
East Providence, RI 02914
http://www.healyphysicaltherapy.com
401-438-0905
info@healypt.necoxmail.com
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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Our dedicated staff offers the highest quality of physical therapy services to promote your optimal health and function. We pride ourselves on successful outcomes and outstanding service. Our therapists give their patients their full one-on-one attention during each treatment session.
We accept all major insurances, and offer convenient hours with initial visits seen within 24 -48 hours of referral. We are fluent in English, Portuguese and Spanish.
We offer four convenient locations serving Rhode Island ( RI ) and Southeastern Massachusetts ( MA ) patients as well as out of state and international patients. It would be our pleasure to meet you and have the opportunity to help you achieve your physical therapy goals.
We offer comprehensive and individualized evaluations and treatment sessions, with a focus on patient education, manual (hands-on care), and evidenced-based treatment techniques.
Basically, we improve lives through pain relief. Our team of experts is experienced at helping those who suffer from:
- Connective Tissue Disorders
- Ehlers Danlos Syndrome
- Marfan Syndrome
- Loeys-Dietz Syndrome
- Craniocervical Instability
- Cervical Instability
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Pradeep Chopra, MD, MHCM
Complex Pain Medical Conditions
Brown M
102 Smithfield Ave.
Pawtucket, RI 02860
http://www.painri.com
401-729-4985 ext 211
snapa102@gmail.com
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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I have a special interest in managing chronic complex pain conditions. In patients with EDS this means not just understanding the cause of the pain but also figuring out what else is preventing them from functioning or contributing to their difficulty with functioning. It may mean managing fatigue, anxiety and brain fog. Finding solutions with associated conditions such as POTS / Dysauotonomia, Mast Cell Activation Syndrome (MCAS), mitochondrial dysfunction, chiari malformation, cranio cervical instability, tethered cord syndrome, gastrointestinal issues. My job is to put all these together and connect the dots, start treatments and make recommendations.
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Petra Klinge, MD, PhD, IFAANS
Neurosurgery
Neurosurgery Department, Life span physician group, Rhode Island Hospital
593 Eddy Street
APC 6th floor
Providence, RI 2903
https://brownneurosurgery.com/our-team/
401-464 2411
pklinge@lifespan.org
Hospital affiliations:
- Rhode Island Hospital
- Hasbro Childrens Hospital
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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My clinical practice comprises neurosurgical management of Chiari, Syringomyelia and tethered cord and associate Cerebrospinal fluid disorders.
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Kevin Muldowney, PT
Physical Therapy
Practice / Clinic 1
Muldowney Physical Therapy
667 Atwood Ave
Cranston, RI 02920
http://www.Muldowneypt.com
Practice / Clinic 2
Muldowney Physical Therapy North
261 Main Street
North Smithfield, RI 02896
http://www.muldowneypt.com
401-766-0022
Muldowneypt@gmail.com
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Our practice treated over 100 EDS Patients per week. We use both manual therapy techniques to align the joints as well as our own exercise protocol specifically designed for the EDS population to strengthen every joint I. The body.
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Kathleen Muldowney, PT
Physical Therapy
Muldowney Physical Therapy North
261 Main Street
North Smithfield, RI 02896
http://www.muldowneypt.com
401-766-0022
Muldowneypt@gmail.com
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Our practice treated over 100 EDS Patients per week. We use both manual therapy techniques to align the joints as well as our own exercise protocol specifically designed for the EDS population to strengthen every joint I. The body.
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Janelle Shannon, MS, LICSW
Counseling people with Ehlers Danlos Syndrome and other disorders, anxiety, depression, trauma, parenting, and more.
Brightside Behavioral Health LLC
469 Centerville Road
Suite 101
Warwick, RI 02889
https://brightsidebehavioralhealth.com/
(401) 773-3700
Info@brightsidebehavioralhealth.com
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Janelle Shannon, MS, LICSW
Janelle has been working with individuals, and families of all ages for 6 years. She provides individual and family therapy using a person centered/strengths-based approach, incorporating a variety of interventions, customizing each session to meet the needs of each individual client, or family, in an effort to help every client achieve their personal goals.
Janelle specializes in working with LGBTQ issues, children and adults with Ehlers-Danlos Syndrome and other chronic illnesses, Autism, special needs, Attention Deficit Hyperactivity Disorder (ADHD), Anxiety, Depression, Post Traumatic Stress Disorder (PTSD), those who have experienced trauma, and parent/child relational issues.
No matter where you are in your life, Janelle is dedicated to providing unconditional support and a reliable ear to help you become the best version of yourself, in a safe, and non-judgmental environment, assisting you as you navigate through your path, guiding you to a healthier place both inside and out.
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South Carolina
Susan Chalela, MPT
Physical Therapy for EDS and hyper mobility, ergonomics, neuro, ortho, pilates, posture, osteoporosis
Fyzical Therapy and Balance Center Charleston
125 River Landing Dr.
Suite 103
Daniel Island, SC 29492
http://www.fyzical.com/charleston
843-377-8210
schalela@fyzical.com
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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My practice is an outpatient private practice physical therapy practice specializing in EDS and hyper mobility syndrome. Also see ortho, neuro, posture, ergonomics, pilates and osteoporosis.
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Sunil Patel, MD
Neurosurgery
North Charleston Medical Pavilion
8992 University Boulevard
North Charleston, SC 29406
https://muschealth.org/MUSCApps/providerdirectory/Patel-Sunil
843-792-7031
Patels@musc.edu
Hospital Affiliations:
- MUSC Medical Center
- Ralph Henry Johnson Va Medical Center
Professional Boards & Affiliations:
- American Board of Neurological Surgery
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I do a lot of cranial based surgery and have a large cadre of EDS patients with Chiari, Tethered Cord, AAI and CCI.
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South Dakota
Brittany Jackson Grueb, DC
Chiropractic, myofascial release, instrument assisted adjustments, trigger point therapy, nutrition and muscle testing
The Wellness Connection
1107 Mt. Rushmore Rd STE 2,
Rapid City, SD 57701
https://www.thewellnessconnectionrc.com/
605-341-9100
drbrittanygrueb@outlook.com
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At The Wellness Connection, our chiropractic treatments focus on holistic healing for your body, mind, and being. With a gentle touch, multiple systems of your body can come into balance and provide you with the healing you need. Our clinic was established 15 years ago and Dr. Brittany has 4 years of experience in chiropractic care and 9 years of experience in nutrition. Our clinic is locally and family-owned and operated, so you never get lost in the shuffle of a big organization. We put our clients first, and you always receive personalized care.
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Tennessee
Seth Banks, MD
Internal Medicine
Heritage Medical Associates – Mount Juliet
660 S. Mount Juliet Road
Suite 100
Mount Juliet, TN 37122
https://www.heritagemedical.com/locations/mt-juliet/
629-255-2071
sbanks@heritagemedical.com
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Outpatient primary care practice
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Jessica Huddleston, LPC-MHSP
Neuropsychological evaluations, Psychological evaluations, Counseling
Practice / Clinic 1
Sabin Behavioral Health
695 President Place
Ste 202
Smyrna, TN 37167
http://www.wardtoday.com
Practice / Clinic 2
Sabin Behavioral Health
404 N Castle Heights Ave
Ste F
Lebanon, TN 37167
615-269-4990
office@sabintn.com
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We have been providing psychological services in Middle Tennessee since 1977. Our mission is to offer comprehensive and empirically based psychological evaluations and treatment in a confidential and professional manner. Our practice offers assessments and counseling including individual and group therapy.
We currently have a group especially for people with EDS run by Ms. Jessica Huddleston in both Lebanon, TN and Smyrna, TN.
Ms. Huddleston works with clients of all age ranges beginning at the age of 4. She has a special interest in EDS, OCD and other co-occurring disorders. She is a member of the OCD International Foundation and she recently attended the DYSAUTONOMIA INTERNATIONAL CONFERENCE in Nashville.
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Tennessee
Tina Simpson, OTR/L
Hand Therapy, UE rehabilitation, occupational therapy.
Tennessee Orthopedic Clinics
9430 Park West Boulevard Suite 202
Knoxville, TN 37923
865-650-8550
Simpsontm@tocdocs.com
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Outpatient Physical Therapy clinic specializing in orthopedic conditions and injuries.
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Ashleigh Moses, Pediatric Nurse Practitioner
Pediatrics
Pediatric Partners of Nashville
397 Wallace Road, Suite 407
Nashville, Tennessee 37211
amoses@nashpeds.com
6159421040
Professional Boards & Affiliations:
- PNCB
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Private pediatric office
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Texas
Sarah Kelly, MD
Internal Medicine
The Kelly Clinic
5503 FM 359, Suite C
Richmond, TX 77406
http://kellyclinic.net
281-828-0675
doctors@kellyclinic.net
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The Kelly Clinic, run by husband-wife team of Drs. Sarah and John Kelly, is an internal medicine practice that specializes in the primary care of adults and adolescents. Dr. Sarah Kelly, residency trained in both internal medicine (Mayo Clinic Arizona) and pathology (University of New Mexico), is affected by hypermobile Ehlers Danlos Syndrome (hEDS) and has a special area of interest and focus on the diagnosis and longterm management of Ehlers Danlos Syndrome, connective tissue disorders and "invisible disability" which is the focus of her practice within the clinic. As patients ourselves, we believe strongly in the healing power of the patient-doctor relationship and getting to the root of medical problems. This is the cornerstone of our practice. Our patients are entitled to thorough, affordable, easily accessible, personalized medical care. We recognize that all patients are unique and special and one-size fits-all approaches do not generally work for all patients. Therefore, rather than employing a more traditional, disease-centered approach to healing, we focus on the individual as a whole, not as a set of symptoms or diseases.
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Jonathan Parr, PT
EDS, POTS, Mast Cell Activation Disorder, Chiari Malformation, MALS, Bowel Disorders, Dysautonomia, Chronic fatigue syndrome,
Practice / Clinic 1
Parr PT Physical Therapy
7401 Old Bee Caves Rd
Austin, Texas 78735
512-387-4096
http://www.ParrPT.com
Practice / Clinic 2
Parr PT Physical Therapy
5503 FM-359
Richmond, Texas 77406
281-241-7022
http://www.ParrPT.com
Practice / Clinic 3
Parr PT Physical Therapy
24514 Kingsland Blvd
Katy, Texas 77494
281-241-7022
http://www.ParrPT.com
Jonathan@ParrPT.com
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Our facility specializes in treating not only EDS, but other associated diagnosis' commonly found in EDS. Our specialized therapy includes a series of autonomic physical therapy methods that begin to normalize the body's response to activity and day to day tasks. Specific gut physical therapy that includes hands on techniques, nerve balancing, and spinal alignment to improve and normalize pain and function. Advanced body awareness training that reduces the risk of recurrent injuries, stress on joints, and strain on muscles using a 6-8 week progressive exercise program. We provide patients video based exercise programs to allow patients to practice and familiarize themselves with each exercise. In addition to the program, we provide at home GI dysfunction and postural alignment remedies to speed up the healing process.
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Kimberly Meredith, PT, DPT, WCS
Physical Therapy, Hypermobility, Pelvic Floor Dysfunction, Pregnancy, Postpartum
S2S Functional Performance
4040 Bryce Lane
Flower Mound, Texas 75077
http://www.s2sperform.com/
940-241-1215
kmeredith@s2sperform.com
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I work in an outpatient physical therapy clinic. Our clinic also provides fitness classes including pilates and high intensity interval training. The environment allows our PT patients supervised access to all fitness equipment. I often use pilates based exercises with my patients.
I am a Women's Health Clinical Specialist with a special interest in treating hypermobility disorders, hip dysplasia, scoliosis, and the female athlete.
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Sophia Maines, PT, DPT, OCS, CSCS, CMTPT
Chronic Pain Management, Trigger Point Dry Needling, Myofascial Release
Sun Physical Therapy
10601 Pecan Park Blvd #302
Ste A3
Austin, TX 78750
https://www.sunphystherapy.com/
512-522-6447
info@sunphystherapy.com
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Personalized, high quality care in Northwest Austin metro area.
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Elizaveta Leeper, LPC-A, LCDC
Psychotherapy, Counseling
Baird Counseling
2770 Main Street
Suite 140
Frisco, TX 75033
https://www.psychologytoday.com/profile/809433
469-731-8671
leepercounseling@gmail.com
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I am a chronically ill, disabled therapist with lived experience of the lengthy, difficult Rare Disease diagnostic journey in the American healthcare system. I take my experiences throughout that difficult process and turn them into something positive: Helping patients through their own journeys of diagnosis, finding themselves and their truest personal values, and finding new ways to live according to those values.
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Brittany Anz, DC
Chronic Illness, Hypermobility Disorders, Pain Management, Pelvic Floor Rehabilitation
Total Health Solutions & Premier Chiropractic
11470 Broadway St
Ste 110
Pearland, TX 77584
https://www.premierchirotx.com/
281-223-1172
dranz@premierchirotx.com
Professional Boards & Affiliations:
- Texas Board of Chiropractic Examiners
- National Board of Chiropractic Examiners
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We are a integrated physical medicine clinic offering safe chiropractic care, spinal decompression, dry needling, soft tissue/manual work, custom orthotics fitting, PRP, Prolotherapy, Trigger point injections, Anti-inflammatory joint injections, and musculoskeletal rehabilitation.
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Kendel Lipe, PT, DPT
EDS/ HSD/ Dysautonomia management, Myofascial Release, Pelvic Floor Specialist for Men & Women, Visceral Mobilization, Chronic Pain, Trauma Recovery, Vestibular Rehab, Advanced Myokinesthetics, Trigger Point Dry Needling, Post-partum Rehab
Phoenix Physical Therapy and Wellness
604 W 35th St
Austin, TX 78705
https://www.phoenixpttx.com/
5128148101
klipe@phoenixpttx.com
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This is a private, integrative clinic focused on providing specialized and individualized care for complex conditions. My primary specialty is treatment for those with Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorder, POTs, Dysautonomia, and/or MCAS. I also specialize in myofascial release for athletes and patients with chronic pain, as well as treating men and women with pelvic floor dysfunction. I myself have hEDS and have spent many years studying the physiology, symptoms, and various treatment approaches to managing this condition. I have now regained 95% of my function and am passionate about empowering patients to do the same. I use a blend of John Barnes myofascial release, microstability exercises, vagus nerve microcurrent stimulation, visceral mobilization, scar tissue release, craniosacral techniques, trigger point dry needling, Advanced Myokinesthetics, vestibular rehab, custom orthotic casting, Chronic Pain science and meditation training and dietary/ lifestyle modification education. All sessions are one-on-one, virtual and home visits are available, and I am cash-based/ out of network with all insurances, however I can provide superbills for reimbursement.
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Jennifer Joseph, PT, DPT
Physical Therapist
Get Physical RX Balance and Physical Therapy Center
2940 FM 2920 Rd
Suite 170
Spring, Texas 77388
https://getphysicalrx.com
346-386-6683
jenniferj@getphysicalrx.com
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Get Physical Rx Balance and Physical Therapy center is A 5,500 square foot facility with patients in mind and with the eye of a physical therapist. We included a vast collection of equipment so you can not only complete your Physical Therapy Plan of Care, but also leave stronger and with more mobility than before. At Get Physical we focus on treating each patient with an individualized program tailored to their diagnosis. We specialize in out-patient physical therapy including, but not limited to post surgical, neurological disorders, spine, acute and chronic pain and injuries.
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Sharon Wisnieski, OT
Pediatric Occupational, Physical, and Speech Therapy
Line Leader Pediatric Therapy
3303 Northland Drive
Suite 312
Austin, Texas 78731
https://www.lineleadertherapy.com/
5122912669
lineleaderofficemanager@gmail.com
Professional Boards & Affiliations:
- Texas Occupational Therapy Association
- Texas Physical Therapy Association
- Texas Speech-Language Hearing Association
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Line Leader Pediatric Therapy was created in 2009 with one mission in mind – to help children & families achieve an optimal level of health & wellness. We do this by providing skilled pediatric occupational, speech, physical, & feeding therapy in environments that best meet the needs of each patient & family.
We provide a welcoming, clean, & inviting clinic space with a well equipped therapy gym, kitchen/ADL room, private therapy rooms, & consultation space. Services are also provided at private schools & home settings for parents who prefer these settings for their children.
Our team is comprised of licensed occupational, speech, and physical therapy professionals with a passion for helping children of all ages, as well as providing parent education. Empowering parents with strategies & exercises to use with their children at home is an important part of the therapy process.
Call us to schedule a time to tour our outstanding facility and learn more about the high quality services we provide. 512-291-2669.
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Utah
Jereme Sommers, DC
Chiropractic, EPIC upper cervical technique
Necks to Heaven LLC
31 N 470 W
American Fork, UT 84003
http://www.neckstoheaven.com
801-980-3388
info@neckstoheaven.com
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We specialize in the analysis and specific correction of the upper cervical spine using a sound wave. This helps balance the communication between the brain and body which in turn allows the body to heal and hold the correction for longer and longer periods of time. Muscle balance is incredibly important in the stabilization of joints and can result in alleviation of symptoms related to instability. The adjustment isn't forceful and does not stress the ligaments. Instead of needing an adjustment every few days you can go several weeks and sometimes months between adjustments. The doctor suffers from EDS as well as has treated and does currently treat many patients with varying degrees of EDS related symptoms. They are the ones who encouraged us to register with the EDS society so that more EDS patients can find us and benefit from our care.
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Ashley Greenwell, PhD
Psychological adjustment to chronic health conditions
Salt Lake Resilience Co
72 North Pioneer Fork Rd
Salt Lake City, UT 84108
https://theslrc.com
385-339-0022
info@theslrc.com
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The SLRC is a psychology practice co-located with other healthcare providers to offer science-based, compassionate care to improve the lives of individuals with chronic health conditions, including DGBIs, Ehlers-Dahlos. It is located in SLC, but Dr. Ashley Greenwell is licensed to offer psychology services in Arizona, Colorado, Delaware, Georgia, Illinois, Missouri, Nebraska, Nevada, New Hampshire, Oklahoma, Pennsylvania, Texas, Utah, and Virginia.
I help people cope with the psychological effects of living with EDS symptoms, but do not diagnosis EDS.
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Kyle Severe, DPT
Physical Therapy
The Worx Outpatient Therapy and Fitness
209 W 300 N
Logan, UT 84314
kyle.severe@sunshineterrace.org
4357168535
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We are an outpatient therapy clinic offering physical and occupational therapy. We pride ourselves on one on one treatment with the therapist with an emphasis in manual therapy techniques. We see many patients with chronic pain conditions and have several therapists experienced in treating EDS and HSD. We value continuing our education and understanding of the human body and frequently are learning new techniques to help our clients.
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Vermont
Dianne Villani, APRN
Family Medicine, Functional Medicine
Trillium Integrative Medicine
366 Dorset St
Suite 10
South Burlington, VT 05403
http://www.trilliumvt.com/
802 825-8326
dianne.villani@gmail.com
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Trillium Integrative Medicine is Vermont's only certified Functional Medicine clinic. We treat complex chronic illness by looking for root causes, considering the complex web of interactions in a patient's history, genetic makeup, physiology, and lifestyle that can lead to illness.
We integrate traditional Western medical practices with what are sometimes considered "alternative" or "integrative" medicine. When appropriate, we prescribe pharmaceutical medications to alleviate symptoms. Then we work with our patients to create wellness through nutrition, diet, and exercise; use of the latest laboratory testing and other diagnostic techniques; and prescribed botanical medicines, supplements, therapeutic diets, detoxification programs, or stress-management techniques.
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Virginia
Matthew M. Buchanan, MD
Orthopaedic Foot and Ankle Surgery
Nirschl Orthopaedic Center
1715 N George Mason Drive
Suite #504
Arlington, VA 22205
https://www.nirschl.com/
703-525-2200
DrBuchanan@NirschlOrthopaedic.com
Hospital affiliations:
- Virginia Hospital Center
- Inova Fairfax Hospital
- Harbor Heights Surgical Center
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Dr. Matthew Buchanan is an Orthopaedic Surgeon who has dedicated his practice to the care of the Foot and Ankle. Dr. Buchanan has received numerous accolades, including selection by his peers as a Washingtonian Magazine Top Doctor as well as an Arlington Magazine Top Vote Getter: Best Orthopaedic Surgeon. Dr. Buchanan was an orthopaedic foot and ankle consultant to The Washington Ballet and served as an Assistant Clinical Professor at Georgetown University.
He completed his Bachelor of Science degree at Duke University, earning the Dean's List Award. He received his medical degree from The Ohio State University College of Medicine where he was awarded the Department of Surgery Jonasson Prize for "Exceptional Performance and Dedication to Surgery". Dr. Buchanan completed his orthopaedic surgery residency at West Virginia University where he served as Chief Resident. He then went on to pursue further fellowship training in foot and ankle at the prestigious Orthopaedic Foot and Ankle Center in Columbus, Ohio.
He has extensive experience in non-surgical and surgical treatment of EDS and HSD patients.
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Kristen Hicks, PT
Physcial Therpay
Orthopedic Physical Therapy
2000 Bremo Rd. Suite 202
Richmond, VA 23226
http://www.orthopedicptinc.com
804-285-0148
kristen@orthopedicptinc.com
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Orthopedic Physical Therapy is a private practice out-patient setting committed to one on one patient care through a combination of manual and exercise based techniques. We understand that every patient is different and that the whole body is interconnected, therefore provide individualized treatment. We have been working with hEDS and HSD patients for many years and are committed to further understanding, treating and creating awareness of hypermobility problems and their related issues.
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Jordan Cannon, LMT
Massage Therapy
Nimbus Massage
1719 W. Main St.
Richmond, VA 23220
https://nimbusmassage.com
804-714-7932
jordan@nimbusmassage.com
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Nimbus Massage specializes in massage and complementary therapies for pain relief with a special focus on chronic pain. All of our therapists have or are working toward Board Certification and have pursued continuing education in therapeutic massage. We do in-house training on various chronic pain conditions including EDS/hypermobility.
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Kristen Hicks, PT
Physcial Therpay
Orthopedic Physical Therapy
2000 Bremo Rd. Suite 202
Richmond, VA 23226
http://www.orthopedicptinc.com
804-285-0148
kristen@orthopedicptinc.com
Education
- The George Washington University | BS
- Shenandoah University | MPT
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Orthopedic Physical Therapy is a private practice out-patient setting committed to one on one patient care through a combination of manual and exercise based techniques. We understand that every patient is different and that the whole body is interconnected, therefore provide individualized treatment. We have been working with hEDS and HSD patients for many years and are committed to further understanding, treating and creating awareness of hypermobility problems and their related issues.
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Christopher Johnson, MSW, LCSW, BCD
Psychology, Psychotherapy, Substance Use Disorders, Sexual Trauma, Chronic Pain, Co-Occuring Disorders
Therapy by Chris
11350 Random Hills Road, 8th Floor
Fairfax, VA 22030
https://www.therapybychris.com/
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I am an interactive, person-centered psychotherapist. My therapeutic approach is to provide support and pragmatic feedback to help my clients effectively address personal life challenges. I integrate complementary methodologies and techniques to offer a highly personalized approach tailored to each client. With compassion and understanding, I work with each individual to help build on their strengths and attain the personal growth they desire. My wife has Classical EDS, so I have first-hand experience in the challenges faced by those suffering with EDS, and the frustration involved with this poorly understood diagnosis by so many medical providers. I do not currently take insurance, however I can assist with filing out of network medical claims if your plan offers this, and I also offer reasonable rates of $175 for an initial consultation and assessment, and $125 for follow-up psychotherapy sessions. I offer 10% off for active duty military, as well as Ehlers-Danlos Society members. Please check out my website for more information: www.therapybychris.com. I look forward to hearing from you!
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Bryce Lee, DPT
Physical Therapy, Supervised Strength Training
StrengthSpace, LLC
1512 Technology Drive
Suite 102
Chesapeake, VA 23320
http://www.strength-space.com
757-828-5627
Info@strength-space.com
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StrengthSpace is a supervised strength training cofounded by A physical therapist facility focused on joint friendly muscle strengthening. Strengthspace also serves as a shared treatment space for physical therapists who see private clients and enjoy access to the specific equipment available. Dr. Bryce Lee, DPT, Cofounder of StrengthSpace, also practices physical therapy independently out of the shared space alongside other private physical therapists.
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Amanda Miller Avila, PT, DPT, WCS
Physical Therapy, Pelvic and Abdominal Health
Progress Physical Therapy – Midlothian
2436 Colony Crossing Place
Suite 2
Midlothian, VA 23112
http://www.progressphysicaltherapy.com/
804-918-8515
amiller@progressphysicaltherapy.com
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Progress Physical Therapy – Midlothian is an Abdominal and Pelvic Health speciality center. We treat pediatrics through geriatrics, with an emphasis on one-on-one individualized manual and exercise therapies including neuromuscular re-eduation and biofeedback. We have a interest in hypermobility disorders in pediatrics as well as managing EDS symptoms during pregnancy and the postpartum period.
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Kristina Page, LMT
Massage Therapy
Nimbus Massage
1719 W. Main St.
Richmond, VA 23220
http://nimbusmassage.com
804-714-7932
kristina@nimbusmassage.com
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Nimbus Massage specializes in massage and complementary therapies for pain relief with a special focus on chronic pain. All of our therapists have or are working toward Board Certification and have pursued continuing education in therapeutic massage. We do in-house training on various chronic pain conditions including EDS/hypermobility.
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Robin Zachary, LMT
Massage Therapy
Nimbus Massage
1719 W. Main St.
Richmond, VA 23220
http://nimbusmassage.com
804-714-7932
robin@nimbusmassage.com
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Nimbus Massage specializes in massage and complementary therapies for pain relief with a special focus on chronic pain. All of our therapists have or are working toward Board Certification and have pursued continuing education in therapeutic massage. We do in-house training on various chronic pain conditions including EDS/hypermobility.
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Sarah Houhoulis, DC
Chiropractic, Pelvic Floor Rehab, Strength Training
Anatomie Chiropractic
1320 Vincent Place
Mclean, VA 22101
http://www.anatomiechiropractic.com
571-317-1894
sarahhouhoulisdc@gmail.com
Professional Boards & Affiliations:
- American Chiropractic Association
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Dr. Sarah founded Anatomie Chiropractic in 2019 with the goal of creating a safe space for patients to heal, become independent in their health, and get strong. All appointments at Anatomie are one-on-one, and come with a specialized rehab exercise program for patients to continue their progress at home.
Dr. Sarah is a powerlifter, and utilizes a combination of manual therapies like Active Release Technique or dry needling with customized rehab exercises, designed to retrain the brain and body to move optimally. Dr. Sarah has taken many courses to be able to specialize in pelvic floor therapy, helping patients overcome pelvic floor dysfunction like prolapse, urinary and fecal incontinence, painful sex, and other conditions.
While Anatomie Chiropractic is not in-network with any insurance companies, Dr. Sarah provides a superbill after each visit for the patient to submit to their insurance company. Her prices are very reasonable and she offers different payment options for accessibility.
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Lisa Barr, MD
Physical Medicine & Rehabilitation, Pain Management
Barr Center for Innovative Pain & Regenerative Therapies
933 First Colonial Rd
Suite 200
Virginia Beach, Va 23454
https://www.barrcenter.com/
757-578-2260
Info@barrcenter.com
Professional Boards & Affiliations:
- Board Certified Physical Medicine and Rehabilitation
- Board Eligible Functional Medicine through IFM
- Member of the Spinal Injection Society
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We have over a 30 year history of treating EDS patients and those with hyper-mobility issues . We offer hands on therapies such as Osteopathic manipulation as well as prolotherapy and other regenerative options. Our medical staff is trained in Functional Medicine and our approach is holistic and empowering. We work with a network of other providers of the healing arts to provide a comprehensive approach to managing people with complex conditions such as EDS.
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Patrick Agnew, DPM, FACFAS, FACFAP
Foot and ankle medicine and surgery, all ages
Coastal Podiatry Group, Eastern Virginia Medical School
6477 College Park Square suite 108
Virginia Beach, VA 23464-3611
http://www.coastalpodiatrygroup.com – We are aware that this website is currently showing a fault and are awaiting updated details. We apologise for any inconvenience.
757-523-0414
pagnw@aol.com
Hospital Affiliations:
- SENTARA Norfolk
- Children's Hospital of the Kings Daughters
- Chesapeake Regional Medical Center
Professional Boards & Affiliations:
- American Board of Foot and Ankle Surgery
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After completing pre-medical studies at Montgomery College and Old Dominion University, Dr. Agnew attended the Temple University School of Podiatric Medicine (formerly the Pennsylvania College of Podiatric Medicine). The school is recognized for consistently demonstrating the highest board scores and residency appointments of the nine United States schools of Podiatry. The four-year curriculum parallels general medical schools for the first two years, then becomes specialized with the latest information on diagnosis and treatment of all disorders of the foot and leg.
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Cheryl Harris, MPH, RD
Digestive Health
Harris Whole Health
9675 A Main Street
Fairfax, VA 22031
https://www.harriswholehealth.com/
5712718742
rd@harriswholehealth.com
Profesional Boards & Affiliations:
- Academy of Nutrition and Dietetics
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Specialist in digestive disorders; worked with EDS/HSD patients for 15 years.
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Carly Murray, DPT, MTC, CMTPT
Phystical Therapy, Manual Therapy, Functional Movement Systems, Stott Pilates
Innovative Therapy & Wellness
2224 Virginia Beach Blvd. Suite #106
Virginia Beach, VA 23454
http://innovativetherapy.us
757-486-8663
admin@innovativetherapy.us
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Innovative Therapy & Wellness is a privately owned business located in Virginia Beach, VA. Our 60 minute, one-on-one treatments provide a great environment for treating chronic pain and complex therapy cases. Historically, we have treated EDS successfully using a mix of advance manual therapy skills, training in stabilization and movement therapies, dry needling, and kinesio taping. We have a state of the art facility with Stott Pilates equipment, Class IV Laser therapy, Infrared Sauna, in-house personal training and massage therapy. We also offer prenatal and postpartum evaluation and treatment therapies with our certified pelvic floor therapist. Collectively, our PT staff has over 80+ years of orthopedic experience and we are always advancing our skills. Please see our website for more information.
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Caryn Grogan, MSPT
Physical Therapist
Origins Physical Therapy
10246 Stratford Ave.
Fairfax, Virginia 22030
http://www.origins-pt.com
7037054000
caryn.grogan@origins-pt.com
Professional Boards and Affiliations:
- American Physical Therapy Association
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I am a PT/owner with 20+ years experience working in Outpatient Orthopedics. I have a niche practice working with Women's Health/Pelvic Floor and Chronic Pain patients including Ehler's Danlos Syndrome. I also treat headaches, TMJD, and POTS. I use a holistic and integrative approach in treating the entire body and have expertise using Fascial Counterstrain, which is a multi-system approach and gentle technique in treating fascia in every system of the body to decrease pain and improve function. Direct Access also available in the state of VA.
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Nicholas Marko, MD, FAANS
Neurosurgery
LewisGale Medical Center
1942 Braeburn Circle
Roanoke, Virginia 24153
https://lgphysicians.com/physicians/profile/Dr-Nicholas-Marko-MD
5404441240
nicholas.marko@hcahealthcare.com
Hospital Associations:
- LewisGale Medical Center
Professional Boards and Affiliations:
- American Board of Neurological Surgery
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I am a fellowship-trained, board-certified neurosurgeon with a particular interest in the care of complex patients with neurosurgical conditions of both the brain and spine. I have had the opportunity to care for many patients with EDS over the years, and I understand the challenges associated with both the decision-making and the surgical management of the wide spectrum of neurological disorders seen in patients with this disease. I treat cranial pathologies related to EDS, including intracranial hypertension, dural defects and CSF leaks, etc., and I also treat spinal disorders including spine deformity, craniocervical junction instability, and spontaneous spinal CSF leaks. I look forward to participating as part of a comprehensive team in the management of patients with EDS.
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Daun Jeong, KMD
Acupuncturist
Beyond Acupuncture Clinic
1489 Chain Bridge Rd
#201
Mclean, VA 22101
http://www.thebeyondacupuncture.com
571-332-9860
acupuncturesystem@gmail.com
Professional Boards & Affiliations:
- Acupuncture and Moxibustion Specialist in South Korea
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I am a founder and director of Beyond Acupuncture Clinic in McLean VA. My specialty covers a variety of orthopedic conditions and sports injuries. My comprehensive perspective comes from my unique background in South Korea. For 6 years, I learned 60% of western medicine and 40% of eastern medicine which gave me a wide point of view. While I was trained in a tertiary hospital setting from 2006 to 2010, I was able to care for diverse conditions from stroke, emergency care, musculoskeletal conditions, and internal illness as well.
My approach is based on anatomy, kinesiology, and neurophysiology which empowered me to provide quality care for each patient. I'm so glad that I can do my best for EDS patients suffering from diverse symptoms. I'm highly interested in reducing hypermobility by enhancing ligaments and strengthening musculature. My interest for body led me to become a certified personal trainer. I hope I can set a personalized strategy to jump over the huddle of EDS.
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Yousef Zarbalian, MD, LAc
Rheumatology, Internal Medicine, Medical Acupuncture
East-West Rheumatology
226 Maple Ave. W.
STE 202
Vienna, VA 22180
https://www.eastwestmd.com/
703-372-2646
Dr.Yousef@eastwestmd.com
Professional Boards & Affiliations:
- American Board of Internal Medicine
- American College of Rheumatology
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As a physician board-certified in internal medicine and rheumatology with additional expertise in acupuncture and herbal medicine, Dr. Yousef Zarbalian is uniquely qualified to provide comprehensive medical care for a wide variety of medical conditions. There are many medical conditions for which modern rheumatology has limited treatment options. The ability to look through a different lens (traditional medicine which includes acupuncture, nutritional modification, and herbal medicine) at each person's unique condition opens up options which would not even be considered in a standard western medical clinic. We can provide the best of both approaches (western pharmacology as well as holistic modalities) to our patients.
With regards to hypermobility syndrome and EDS, Dr. Zarbalian brings a wealth of experience as an internist and rheumatologist with diagnosing and managing these conditions.
Except for medicare, we are a Direct Pay practice. This allows us to provide high-quality, time-intensive care to our patients.
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Janine Scherm, DC
Chiropractic, Massage therapy
Scherm Family Chiropractic P.C.
8052 Elm drive
Ste I
Mechanicsville, VA 23111
http://www.schermfamilychiropractic.com
8048870772
jscherm@schermfamilychiropractic.com
Professional Boards & Affiliations:
- Board of Chiropractic
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We are a Chiropractic and massage therapy clinic that has experience working with EDS and hypermobility conditions.
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Morgan Steiner, PT, DPT
Outpatient Orthopedics
Hilltop Physical Therapy
605 Jefferson Davis Highway
Suite 202
Fredericksburg, Virginia 22401
morgan.steiner.dpt@gmail.com
5408990002
Professional Boards & Affiliations:
- American Physical Therapy Association
- Virginia Physical Therapy Association
- American Academy of Orthopedic Manual Physical Therapists
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Outpatient orthopedic clinic that focuses on the treatment of high complexity patients, including those with Ehlers Danlos Syndrome and hypermobility related disorders.
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Krysia Witkowski, MPT
Manual therapies, osteopathic therapies, pelvic floor rehab & stabilization, Pilates for rehabilitation, neuromuscular/posutral rehabilitation
INTEGRATIVE Manual Therapy & Wellness
350 W 22nd St
Suite 108
Norfolk, VA 23517
http://integrativetherapy.co
7572164151
imtw4u@gmail.com
Professional Boards & Affiliations:
- OCSC
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INTEGRATIVE uses a comprehensive osteopathic systems approach to treat the dysfunctions of the musculoskeletal and nervous systems, joints, connective tissue, viscera, and vascular and lymph systems. Some of our manual therapies include osteopathic manipulation, muscle energy techniques, cranial therapy, strain counterstrain, neural tissue techniques, Maitland mobilization, myofascial and neurofascial release, and visceral mobilization. Treatment sessions are one-on-one, hands-on, gentle, holistic, and educational. Our therapists are highly skilled practitioners who have made continued education and growth their goal to provide our patients with the best care possible. With these skills and our detailed approach, we can identify and address the primary source of dysfunction for each patient and then treat each patient's unique structural and functional needs. Our mission is to provide highly skilled, systems-based, integrative and hands-on care.
With an emphasis on an advanced skillset, customized care and patient education, we have integrated the best therapies to optimize our patients' health and keep them on the path to wellness.
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Washington
William Ericson, MD
Orthopedic Surgery, Hand Surgery, Upper Extremity Surgery
Ericson Hand and Nerve Center
6100 219th St SW
Suite 540
Mountlake Terrace, WA 98043-2222
http://www.ericsonhand.com
4257764444
ericsonhandcenter@icloud.com
Hospital affiliations:
- Evergreen Hospital Medical Center, Kirkland, WA
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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Exceptional education, training and experience in the evaluation and treatment of hand/wrist/arm pain, particularly chronic problems that do not show on standard diagnostic tests: 'RSI,' painful joint instability, peripheral nerve problems, tendonitis, arthritis, trauma; large operative experience in patients with connective tissues disorders including the Ehlers Danlos Syndromes; previous failed hand surgery; minimally invasive surgery; innovations in hand surgery.
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Kathleen Johnson, DNP, FNP, PMHS
ADHD, Autism, Developmental Disorders, Behavioral Health, Mold/Mycotoxin Illness
Yellow Brick Clinic: Integrative ADHD, Autism, Developmental and Behavioral Health
1800 Dayton Ave NE
Renton, WA 98056
http://www.yellowbrickclinic.com
Phone: 425-736-9609
Fax: 833-631-6941
kat@yellowbrickclinic.com
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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Yellow Brick Clinic opened last year to meet the need of pediatric patients up to age 25 with Autism and ADHD to evaluate and treat along with co-occurring mental health challenges. We have an Integrative Medicine approach, where we use nutrition and holistic support along with medications. A large population that I see has joint hypermobility, and so we also order appropriate genetic testing. We are trying to build a supportive network in the community by collaborating with genetics, cardiology, and specialists to care for patients who have autism, ADHD AND connective tissue disorders, such as EDS. We are not a PCP but we do collaborate with Family Providers to help patients access the best care.
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JoAnn Keller, OTR/L, CHT
Hand Therapy, Custom Splints (Orthoses), Occupational Therapy
Hands for Living
19221 36th Ave W Ste 213
Lynnwood, WA 98036
https://www.handsforliving.com
425-368-7943
office@handsforliving.com
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Hands for Living is a specialized hand therapy clinic that specializes in care for Ehlers-Danlos patients by making custom hand supports, measuring for Silver Ring Splints, and providing hand therapy services for shoulder, arm, and hand problems. We are Certified Hand Therapists (CHTs) and work closely with local and national physicians, surgeons, physical therapists, as well as other Certified Hand Therapists.
We are also preferred providers for custom hand supports after surgery for patients of Dr. William Ericson, a hand surgeon who specializes in the treatment of hyper mobility syndromes and the conditions that affect the hand, wrist, and elbow.
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Sherene Shalhub, MD MPH FACS
Vascular Surgeon
Vascular and Endovascular Surgery Clinic at UWMC
1959 NE Pacific St., 1st Floor
Seattle, WA 98195
206-598-4477
shalhub@uw.edu
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Director, Multidisciplinary Vascular Genetics Clinic
Associate Professor of Surgery, Division of Vascular Surgery
University of Washington School of Medicine
Seattle, Washington
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Ian Wallace, MS, CGC
Genetic Counseling, EDS diagnosis
Pullman Regional Hospital
1620 SE Summit
Pullman, WA 99163
https://pullmanregional.org/patient-care/services/genetic-counseling
509-332-5106
ian.wallace@pullmanregional.org
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I offer both telehealth and in-person appointments, so you don't have to travel to Pullman, WA, if it's not convenient. Wait-times for an appointment are generally 2-3 weeks.
Genetic counselors provide diagnostic testing, information, and support to families who may be at risk for a variety of inherited conditions and those who have a personal or family history of birth defects or genetic disorders. They identify families at risk, investigate the medical problems present in the family, interpret information about the disorder, analyze inheritance patterns and risks of recurrence, and review available genetic testing options with the family.
Genetic counseling is relevant to every medical specialty, however it plays an especially critical role in: connective tissue disorders, obstetrics, pediatrics, oncology, research, and testing.
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Ilene Ruhoy, MD, PhD
Neurology
Center for Healing Neurology
2900 NE Blakeley Street
Suite C
Seattle, WA 98105
206-379-1213
ilene@centerforhealingneurology.com
Professional Board Affiliations:
- ABPN
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My practice has focused on complex and chronic neurological manifestations of disease.
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Sabrina Kimball, ND, LAc
Naturopathic Medicine, Acupuncture, hEDS/HSD, Chronic Gastrointestinal Illness, MCAS, POTS, Chronic Pain
Meridian Medicine
2111 N Northgate Way, Ste 201
SEATTLE, WA 98133
https://meridianmedseattle.com/
2065258015
info@meridianmedseattle.com
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Dr. Sabrina Kimball specializes in integrative functional medicine and partners with her patients to help them better navigate the medical system and work with their unique health challenges.
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Lara Thompson, NMD
Nauropathic and Functional Family Medicine
Sound Holistic Health Clinic
2804 Grand Ave
Suite 300
Everett, WA 98201
https://www.shhclinic.com
4252584633
frontdesk@shhclinic.com
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Naturopathic and functional family medicine primary care and specialty care practice.
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Chelsea Zsigmondovics, CPT, PN-L1
Personal Training, Health & Nutritional Coaching
Chelsea Zsigmondovics Health & Wellness
PO Box 1434
Chelan, WA 98816
chelseawhalen.trainer@gmail.com
3607741607
http://www.chelsea-zsigmondovics.com
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Chelsea Zsigmondovics Health & Wellness is a combination of Personal Training, Health & Nutritional Coaching, and consulting.
I work with clients to build strength to support joint health, posture, and whole body strength for day to day life. I offer individualized training that helps clients with EDS learn improved mechanics and positioning, while adjusting exercise day to day to accommodate as needed. I believe that in order to make progress, it is necessary to recognize the starting point. Then learn new patterns to build a solid foundation in movement, nutrition, and overall health habits. I have found that a personalized approach works best for my clients, building a program that recognizes each individual's needs and preferences.
I work mostly remotely over zoom, teaching movement and improved health habits during sessions that last 30-60 minutes 1-3 days/week as is helpful for each client. Each program is flexible to fit with the specific needs of each person.
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Wisconsin
Linda Bluestein, MD
Anesthesiologist, Pain Management, Integrative Medicine
Hypermobility MD
225 S. Executive Drive
Brookfield, WI. 53005
https://www.hypermobilitymd.com
715-600-1722
BendyBodiesPodcast@gmail.com
Hospital affiliations:
- Aspirus Wausau Hospital
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Board-certified anesthesiologist, integrative medicine physician and former ballet dancer, Linda Bluestein, M.D., specializes in treating dancers and other athletes at increased risk of hypermobility disorders. She is the founder and host of the podcast, "Bendy Bodies with the Hypermobility MD" and also founded and is a former cohost of the podcast "Hypermobility Happy Hour". Dr. Bluestein is a contributing author for the book, Disjointed – Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders. Through her private practice, Hypermobility MD, Dr. Bluestein is helping people from all over the country live better lives.
Dr. Bluestein completed her anesthesiology residency at the Mayo Graduate School of Medicine after receiving her Medical Degree from the University of California, Los Angeles School of Medicine and is a member of the International Association for Dance Medicine and Science, the Performing Arts Medicine Association, and the Resources Committee for the Dance Healthy Alliance of Canada. She has published a number of original research papers and regularly presents her work at national and international meetings. Dr. Bluestein serves as an assistant professor at the Medical College of Wisconsin, Central Wisconsin where she is the course director for the RISHI Healer's Art Program.
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Sumana Koduri, MD
Urogynecology, Female Pelvic Medicine and Reconstructive Surgery
Medical College of Wisconsin
Froedtert Memorial Lutheran Hospital clinics
9200 W. Wisconsin Ave.
Milwaukee, WI 53226
https://obgyn.mcw.edu/
414-805-8603
info@obgyn.mcw.edu
Hospital affiliations:
- Froedtert Memorial Lutheran Hospital, Milwaukee, WI, USA
- St. Joseph's Hospital – West Bend, Wisconsin, WI, USA
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
Nathan Rudin, MD, MA
Physical Medicine and Rehabilitation, Pain Medicine
UW Health Pain Management Clinic
1102 S Park Street, 3rd Floor
Madison, WI 53715
http://www.uwhealth.org/painclinic
608-263-9550
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I specialize in Pain Medicine, in the context of Physical Medicine and Rehabilitation. At our clinic we focus on treating the whole person in order to improve function and quality of life. I have special interest in EDS and other hypermobility disorders, and have worked with EDS patients for over 20 years. Our in-house team includes other rehab physicians, anesthesiologists, nurses, physician assistants, physical therapists, psychologists, and psychiatrists. We also perform EMG testing, trigger point injection, and a full range of interventional procedures.
Through UW Health we work with specialists in cardiology/vasovagal disorders/POTS, allergy/immunology, orthotics, gastroenterology, neurology, neurosurgery, genetics, and other areas of importance to the EDS patient.
I teach locally, regionally and nationally on pain management topics, and am working to increase awareness and treatment access for individuals with EDS and their families.
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Anthony Penton, Pre-Licensed Professional Counselor
Mental healthcare
On Purpose Psyche
1102 S Park Street, 3rd Floor
Madison, WI 53715
https://www.onpurposepsyche.com/
920-933-9256
pentoncounseling@gmail.com
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I am a Clinical Mental Health Counseling program student at Northwestern University. My graduation date is April 2021. The profession's emphasis on growth, wellness, empowerment, and normal development is important to me. I work with clients of all ages ranging from children to older adults. My preparation for this career comes from a school that is certified by the Council for Accreditation of Counseling and Related Educational Program (CACREP). Since I am a pre-professional, my sessions are at no cost. My approach to psychotherapy is primarily through psychodynamics, DBT, and Motivational Interviewing. I am very familiar with EDS since my significant other has vascular type EDS. She is a spoonie and a tubie.
The practice is in Oconomowoc, WI. For those who prefer it or those who are less able to make it to one-on-one sessions, I am able to work through telehealth. Among other things, I am working to build EDS/chronic illness groups where people can gather for support. Caregivers or loved ones of those who suffer from chronic illnesses should not hesitate to reach out. My personal experience with vEDS aids me in providing care for the loved ones of those who have EDS.
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Carmine Van Deven, DO
Family Medicine, Neuromusculoskeletal Medicine/Osteopathic Manipulative Medicine (NMM/OMM)
Carmine Van Deven DO, PC
316 O Ave,
Anacortes
WA 98221
http://www.drvandeven.com/
610-345-7045, Fax 610-590-7745
drvandeven@drvandeven.com
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Structure determines function, and vice versa. Thereby, both need to be addressed to create the greatest potential for health and healing.
My practice is a synergistic blend of Osteopathy & Functional Medicine – both aim to identify the cause of disease. Osteopathy applies our understanding of anatomy and physiology into a gentle hands-on treatment. For EDS patients, it is especially helpful in resolving physical strain and pain throughout the body, but is also known to relax the nervous system, improve digestion, lung function, immune function, and much more.
Functional Medicine addresses our unique biology, hormones, digestion, immune function, nutrition, genetics, and lifestyle. All of which help to maximize the benefit from the osteopathic manipulation and provide a full, enjoyable life.
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Michael Karegeannes, PT, MHSc, LAT, MTC, CFC, CCTT, CMTPT
Orthopedics, Women's Health, Vestibular, TMJ, EDS, Dry Needling, Chronic Pain, Therapeutic Laser Therapy
Practice/Clinic 1:
Freedom Physical Therapy Services
6908 N Santa Monica Blvd
Fox Point, Wisconsin 53217
414-352-2082
Practice/Clinic 2:
Freedom Physical Therapy Services
1235 Dakota Drive Suite L
Grafton, Wisconsin 53024
262-376-2085
Practice/Clinic 3:
Freedom Physical Therapy Services
17495 W. Capitol Drive
Brookfield, Wisconsin 53045
262-790-9800
Practice/Clinic 4:
Freedom Physical Therapy Services
111 Atkinson Street, Suite 2
Mukwonago, Wisconsin 53149
262-363-3268
https://www.freedompt.com
info@freedompt.com
Professional Boards & Affiliations:
- Physical Therapy Board Certified
- Manual Therapy Certified
- Craniofacial & Cervical Therapeutics Trained Certified
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However you define freedom, we help you enjoy more of it. From four Wisconsin physical therapy clinic locations in greater Milwaukee—Brookfield, Fox Point, Grafton and Mukwonago—Freedom Physical Therapy Services owner Michael Karegeannes and his team of therapy specialists blend the science of healing with the art of caring. Hands-on, compassionate care starts with a convenient, welcoming environment, one-to-one attention and therapists who combine advanced techniques with a healing touch.Comprehensive, leading-edge treatments include services to address all ages and stages of life, activity levels, and expectations.
A program focused on you. As your partners, we listen closely to your concerns and evaluate your entire situation to tailor the most effective program for reaching your goals.Single-source convenience. Our PT and OT specialties cover the full scope of what you need: orthopedics, spine and sports injuries, headaches, temporomandibular disorders, myofascial release, vertigo, visceral manipulation, bowel and bladder disorders, chronic pain, dry needling, hand therapy, athletic performance and rehabilitation, lymphedema, mirror therapy, and injured workers.
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Telehealth
Alexann Masiko-Meyer, LCMHC
Psychotherapy
Alexann Masiko-Meyer / Summer Session Counseling
Teleheath services – Available in all cities in the USA, Canada, China, Japan, New Zealand, UK, UAE.
http://www.SummerSessionsCounseling.com
609-504-3468
alexann@summersessionscounseling.com
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With a specialty in anxiety, depression, life transitions for all, I also have hEDS and can deeply empathize with how to manage, and am very open to supporting others in their therapeutic process. I provide extensive telehealth / telepsychotherapy for clients in North Carolina, Texas and New Jersey! I also do evaluations for ESA's.
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Advanced Tele-Genetic Counseling, CGC
Genetics
Advanced Tele-Genetic Counseling (AT-GC)
4330 Glenview Ave, Ste 111
Glenview, KY 40025
http://at-gc.com
888-252-2842
general@at-gc.com
Professional Boards and Affiliations:
- American Board of Genetic Counseling (ABGC)
- National Society of Genetic Counselors (NSGC)
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AT-GC is a telemedicine-based genetic counseling practice providing access to comprehensive genetic counseling from certified professionals across North America.
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Aviva Gaskill, PhD
Psychologist
Aviva Gaskill, PhD
I am able to offer teleheath services in the following states: AZ, CO, DE, GA, IL, MO, NE, NV, NY, NH, OK, PA, TX, UT, VA, NC.
https://www.avivagaskill.com/
484-679-6299
aviva@avivagaskill.com
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I am a clinical psychologist specializing in the treatment of young adults and adults living with chronic and terminal illness and co-occurring psychological concerns. I utilize integrative therapeutic techniques in my practice to aid patients and their families to cope with the process of living with and/or caregiving for individuals with chronic and terminal illness and comorbid mental health issues.
I recently became a member of the PSYPACT for psychologists licensed in some states within the US. Now, I am licensed in NY, PA and can legally see patients in the following other states:
Arizona – AZ HB 2503 (Enacted on 5/17/2016)
Colorado – CO HB 1017 (Enacted 4/12/2018)
Delaware – DE HB 172 (Enacted 6/27/2019)
Georgia – GA HB 26 (Enacted 4/23/2019)
Illinois – IL HB 1853 (Enacted 8/22/2018)
Missouri – MO HB 1719/MO SB 660 (Enacted 6/1/2018)
Nebraska – NE L 1034 (Enacted 4/23/2018)
Nevada – NV AB 429 (Enacted on 5/26/2017)
New Hampshire- NH SB 232 (Enacted 7/10/2019)
Oklahoma – OK HB 1057 (Enacted 4/29/2019)
Pennsylvania – PA SB 67 (Enacted 5/8/2020)
Texas – TX HB 1501 (Enacted 6/10/2019)
Utah – UT SB 106 (Enacted on 3/17/2017)
Virginia – VA SB 760 (Enacted 4/11/2020) *Effective 1/1/2021
North Carolina – NC 361 (Enacted 7/1/2020) *Effective 3/1/2021
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Patricia Stott, DPT, PT, MS, ATC, CHT
Functional Medicine, Health and Wellness, Physical Therapy, Reiki
Elevation Wellness
10200 West 44th Ave
Suite 139
Wheat Ridge, CO 80033
http://www.elevationwellness.co
720-815-6433
info@elevationwellness.co
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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I offer Functional Medicine, Health and Wellness, Physical Therapy, ReikiWe focus on overall health and wellness for the individual with EDS in examining overall systemic inflammation (especially due to underlying chronic viral issues, tick borne illnesses, and mold exposure), treating with a natural approach to restore well being. Our practice provides a good deal of education to the patient to assist in long term management of HSD/EDS and associated conditions, while focusing on individualized treatment plans.
I also am a telehealth provider outside of my state, internationally as needed.
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Alison Murphey, LMFT
Psychology Services
Alison Murphey, LMFT
Telehealth Therapy for California
P.O. Box 5326
West Hills, California, 91308
https://www.alisonmurpheylmft.com
747-263-3433
alisonmurpheylmft@gmail.com
Professional Boards & Affiliations:
- CAMFT
- EMDRIA
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Thank you for taking the time to read about my practice. I am a Licensed Marriage and Family Therapist in the state of California. I maintain an entirely remote practice where I work with individuals using HIPAA compliant telehealth software. I am trained in EMDR, and maintain certification as a Certified Clinical Trauma Professional. I specialize in treating areas of anxiety, trauma, stage of life transitions and chronic health issues. I understand the challenges and stresses associated with an Ehlers-Danlos diagnosis as I am also living with it. I look forward to sharing more about myself and my practice. Please feel free to reach out.
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Cell Phone Repair Valley Mall Hagerstown Md
Source: https://www.ehlers-danlos.com/healthcare-professionals-directory-usa/
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